Hi, Harry's Mum, so sorry to hear of the loss of your beautiful boy.
I just wanted to give an example of an NHS Unit which is very much geared to listening to parents opinions on their children's care. My brother and sister in law have recently had very premature twin boys, who are being treated in a Neonatal Unit in the East Midlands.
They have been consulted and continually updated on the boys treatment, and after my smallest nephew had an urgent operation a fortnight ago, the consultant paediatrician rang my Sister in Law during ward rounds, as she was making her way into hospital to spend the day with the boys, to ask her opinion on how he was responding to treatment and whether she felt he was ready to have his morphine reduced.
It seems clear to me that the attitude of those in charge of the unit, both doctors and nurses, is that parents are valued as their children's advocates.
I think this is partly due to the charity Adapt being on hand at the hospital to support parents in feeling confident that they know their child/children best.
If parents can be trusted, consulted and valued in this way, by one unit, in one hospital, then it is obvious that this can and should happen in all hospitals everywhere. I hope your campaign can help this to happen x