doctor appt friday for DS (sicky, off-balance, bad ears)

[EdgarAleNPie]

right - he's had an anti-biotic ear spray for two weeks. he has been particularly sick the past week so its doing bugger all

my plan for friday is to ask

-for heavy oral anti-bs to realy kick the infection (if it is bacterial, as if its in the inner ear an exterior spray won't touch it).
-for a referral to a paediatrician (which i can always cancel if he gets better before it coes through)

• anti-emetics/ anti nausea pills? he's been keeping very little food down. quite thin.

how does that sound for a plan?

he already saw audiology, they said 'yes, there's fluid in his ear.' is there any point in seeing them again?

He's now been down with this since November. Gone from running and kicking a ball to staggering around the house and falling over. can't manage more than a few yards without support.

ok, any thoughts?

So very, very shocked and sorry, Edgar. Sending prayers your way for the difficult times ahead.

please sponsor TSCs Dh

[[

uk.virginmoneygiving.com/fundraiser-web/fundraiser/showFundraiserProfilePage.action?userUrl=JimLarkin here]]

who is doing a marathon for CLIC - the charity for children with cancer.

i admit I don't think i'll ever run a marathon (too much like exercise) , but i admire people that can.

I'm so sorry for your loss Edgar.

I'm not sure if its because I'm overseas but I can't get into the link.

I can't get the link to open either.

I just saw this, I'm so very very sorry.

THanks TSC.

Done

Great - I have donated

Still thinking of you.

I still can't believe this is true .

I am so sorry to hear of your loss of your precious little boy.

You are in my thoughts. Xxx

I am so so deeply sorry. There is nothing I can say that hasn't been said already.

I am thinking of you and your family, be kind to yourself and each other during this horrific time.

I wanted to come back and ask (probably the most stupid question especially from another bereaved Mum) how you are all doing? When people used to say that to me I used to say 'I'm fine!!!' I wish we lived closer (I'm in Lancashire) so I could put my arms around you and just hold you. You are all in my constant thoughts xxxx

still thinking of you xxx you are so brave

Edgar I am so so sorry for your loss, I have cried all morning for you and your wee angel. I told my ds who is 3 as he asked why I was upset and he said that "grandma (my mum) and Jesus will play with him in heaven and then he'll be happy"

I've asked our church and friends and family to pray for you if that's ok. If there is anything at all that we can do to help please let us know. Your and your dh's strength is amazing. We will sponsor too. Sending you all big hugs x x x

Edgar you and your family are very much in heart and mind. I'm so, so sorry for your loss.

I am so very sorry for your loss.

Oh Edgar

My thoughts are with you and your family x

Thank you TSC and TSC'sDH for giving us a way to feel an iota less uslessless in the face of this awful thing.

As Edgar has encouraged us to donate, could that link be copied onto every page of this thread, or another thread be started specifically to get the word out?

I'm sure there's a lot of potential for raising a lot of money for CLIC, given how many people have been so deeply moved by hearing about Edgar's DS.

Edgar and family, you are still preoccupying my thoughts, and I know that you will continue to do so for quite some time. I am yet another person who has been moved by the dignity and selflessness of your posts on this thread and others, but I want to reiterate what others have said: we want to be here for you, however you are feeling and however you need to express it, now and in the future. Please don't feel that we 'need' you to be dignified or pleasant or any way other than how you actually are.

You sound like such a truly lovely family, all five of you.

I am so sorry to read about the loss of your son. My mother's son, my brother, died in infancy. She carries him in her heart.
You and your family are in my thoughts x

I am so so sorry to hear about your son. My thoughts and best wishes are with you, your husband, your daughters and everyone who loved your DS. He sounds like he was a lovely, lovely little boy.

xxx

I am so very very sorry to hear about the terrible loss of your son.

I'm so sorry EAP. I wish there was something more I could say

Hi Edgar, sorry the reply is late.

The best way to outline to the hospital that you don't blame them would just be a simple thankyou card.

Thank them for what they did well, it's especially nice mentioning certain staff members if they went out of their way to do certain things to help you. They'd love to hear some memories about your DS as well. I love getting thankyous (who doesnt?!) so I think they would really appreciate it.

Lovely to see you're helping Clic, a brilliant charity. I will be donating as soon as I get paid.