Are your children’s vaccines up to date?

Set a reminder

Please or to access all these features

Behaviour/development

Talk to others about child development and behaviour stages here. You can find more information on our development calendar.

Does anyone have a child who did not point but has developed normally?

104 replies

spur · 27/03/2009 09:16

Hi there, my 15 month old does not point and I am freaking out about it. Does anyone have a reassuring story to make me feel better - I know all the bad stuff that it could mean - I can not even get her do a pointy finger. I have been pointing at everything for weeks now!

She will wave bye bye with help and prompting most of the time. She does not pretend play or mimic me.

She took a few steps last week and seems to be making babbling sounds....mama, dada, buba

I know I may be worrying prematurely but when I see other kids the same age and much younger pointing and copying peekaboo etc. it does highlight things. On the whole she is a very happy and content baby which now I am thinking may also be a sign that something is not quite right.

Would appreciate any comments

OP posts:
Are your children’s vaccines up to date?
NatiMark · 28/03/2022 13:12

I started noticing things when he was around 17 months old. No gesturing at all! And they must use gestures. It’s very fundamental for their speech and language development. He could not even wave buy. He didn’t have words. We started EI evaluations when he was 18 months old (the coordinator told us that they wouldn’t deny services to him if he’s already 18 months). By the first evaluation, I had already experienced a few panic attacks and mourned his future life that I had built before in my mind. Moms around didn’t help but isolate me even more. This thread was something that changed me so much, and it helped me to find peace! I’ve realized that there’s nothing wrong with being atypical (I myself was never diagnosed but always had social anxiety and difficulties with eye contact).
I noticed that with every negative talk about his behavior during evaluations, he would immediately display traits that I had never seen before. For example, his eye contact was always good. But evaluators (through phone) could not manage to keep the 18-months old baby’s eyes on the screen, so they would start explaining how bad his eye contact was. And for some time after he heard it, he would avoid eye contact with me. That helped me believe everything I was told during evaluations. It was so crazy that we introduced a rule to never speak about him in front of him and never let him feel like he is watched or evaluated 😃
I’ll tell things about him that were true and were caught during evaluations:
Not responding to any verbal commands,
Completely not developed receptive language,
No words at all,
No gesturing (and there have to be more than ten gestures before 18 months)
Difficulties paying attention during play, the meager attention span
Inability to play
Inability to regulate his emotions (he only knew to ask for breasts)
To ask us about something, he would find strange ways that helped him. For example, instead of going to the hall and pointing to the door, he would bring shoes.
I remember his psychologist was very alarmed when during the evaluation, the little guy came to me and tried to lead me to a room with a ball to initiate a game.
Hyperactive during playtime
He didn't like when his hands were dirty
He had a significantly disrupted sleep pattern
He would not let you touch his head
There were some reflexes that he lacked
He would absolutely NOT imitate!!! This was the worst thing to overcome. And the most critical part in the development.

What was noticed during evaluations, and I would always argue with them about it:
Poor eye contact
Not showing affection
Not responding to his name
Not showing interest in social games, and other peers.

But as you see, he had enough red flags and was clearly delayed.
By the age of 20 months old, I taught him how to point both when you see something unique and want to share (very important) and point to ask for something. I played social games with him, which increased his attention span and helped him a little with imitating. I taught him a few fundamental sign language gestures to help him communicate (”all done,” “more,” “food”)
His first accurate word was a cookie, and he said it probably when he was around 21-22 months old. He would add new words very slowly, but in language development matters everything, every sound he repeats for something (for milk, he would say “moo”), every gesture. He had around 30-40 such ways to say a word by 23 months. He started his first sentences when he was 24-25 months old. Straightforward phrases and mostly just repetitive stuff. I was not really paying attention to his expressive language development, and that's why it's so hard to recall exact months. What was very important was to master all prelinguistic skills (gesturing, imitating, good attention span, Joint Attention, Turn-Taking /Social Routines, understanding early words and following simple directions (receptive language), playing with toys appropriately, and some more). All these skills were in place when he started using expressive language freely and confidently. It happened after his second birthday. By 30 months old, he started speaking fluently in his native tongue. And his receptive English began to emerge. A few months after that, with little exposure to English-speaking tots, he started saying words and phrases he would hear at a playground.

You can google Laura Mize to learn more about speech and language development. She covers this topic excellently and has YouTube videos to teach therapists and parents how to help a child with all prelinguistic skills.
Ask me any questions you have!

NatiMark · 28/03/2022 13:28

@r1911 I forgot to mention you in the reply.

Aycddi · 11/04/2022 06:20

@NatiMark
I have a 15 month old. He doesn’t point, doesn’t follow point, no gesture, no words and many times doesn’t respond to his name. He also doesn’t go to anyone other than us (me and his dad). The doctor keeps saying he has got time but I have a feeling that I need to act now. Your message was really helpful - I have few questions.
I live in Houston- can we initiate the EIP ourselves? Does daycare help in this situations- I started sending him in daycare from last week and he cries constantly…you mentioned speech therapy- did you go to a therapist? I heard the wait times are crazy for everything… I just don’t know where to start what to do….

Aycddi · 11/04/2022 06:58

Hi @Roblyn my son at 15 months is almost the same. He can walk, smiles when sees us - makes good eye contact with us when we sing to him but not during conversations… he knows his name but sometimes he will respond and sometimes he will completely ignore.. did ur son always responded to his name? He also most of the times don’t follow if we are pointing to something… I am going crazy and just don’t know what to do- where to start…

NatiMark · 11/04/2022 13:44

I live in NY. We called EI agencies without a referral from our pediatrician (our State covers EI even if insurance won’t). Agency suggested waiting until he is exactly 18 months old. And they scheduled meetings with State the next day after his 18months birthday. They said that they are denying services very often to those who are younger than 18 unless there is a terrible physical delay. It will especially be true today when CDC changed its milestones and requirements and 18-months old is no longer required to have the same milestones achieved that before. They most likely did it to avoid funding so many cases of delay because of COVID.
babynavigator.com/soco/ can you use this soco checkup? I remember they asked so many detailed questions. And I had an option to speak with them and discuss the results. They were also able to look at videos of the child playing to see if there are signs of ASD. They might be able to help you start the EI process if needed. Wishing you all the best! Let me know if you have any questions.
P.S if you haven’t yet modeled gestures to your child and you two are basically the only ones who are around him, that might be a reason why he doesn’t use gestures. Start using gestures every time you interact with a baby. And see if the baby picks it up. There are activities also that teach pointing (can you google Laura Mize’s videos about pointing). She says that some babies just need to be taught how to isolate one finger to point.

Aycddi · 11/04/2022 20:30

Thanks @NatiMark for your response. I have called the EIC today they said they will call me back in 2 weeks. On top of that last month I went to tue Doctor she was in complete denial- I am going back this week again will push harder.
I am also trying to have initial evaluation done out of pocket to get things going…
I have tried to show pointing to him but it is very difficult to grab his attention. There are times he will play with us, do great eye contact and imitate…specially if we do something he likes such as sing to him or a rhyme. He has started feeding me recently and today attempted brushing his teeth imitating me…
But to grab his attention to point to things has been very difficult… i have already tried with water bottle for a month now- but I feel he doesn’t understand I am asking him to say water when he is thirsty… he just keeps looking at me and cries….
I have started watching Laura Mize videos on prelinguistic skills … did u watch any ABA videos - any suggestions? I will try the baby navigator site… thanks.

I have another question- I work full time. He had a nanny I don’t think it’s being very helpful- so started daycare starting last week. But he keeps crying all day by himself and teachers let him be. I read the last thing u want to do is let them be.. so I don’t know what I should be doing here. I am thinking of quitting job for time being but that’s a lot of financial pressure on my partner and what I am hearing is the therapies can be very expensive.

NatiMark · 11/04/2022 21:35

We had this issue too - he didn't want to pay attention to anything unless it was trains or buses.
I watched Laura's videos about ABA. And I’ve read her books, she teaches ASD kids and has lots of great suggestions.

At the very beginning, I’ve read this article
www.janetlansbury.com/2015/07/the-powerful-effect-of-respectful-parenting-for-children-with-special-needs-case-studies-from-sandra-hallman/ and stopped getting to know more about ABA. I’ve never really used it as a therapy, and our ABA therapist mixed his ideas and respectful approach (mostly respectful approach) and it was just right for my son.
I wish you to find a therapist who will not just use textbooks and will be very enthusiastic about helping your child. Unfortunately, I see that so many therapists just waste time and parents' resources.
I know it is such a hard decision. I had to stay home because I could see that even at my house therapists were not helping, so I was scared to send him to daycare. But the biggest deal breaker was the fact that I wasn't paid well enough to cover daycare costs here in NYC. If your job is well-paid and you love your job, it will be okay to send him to daycare. If you get EI services, his therapists will be around. You will still be able to micromanage them. Also, I do believe that being around peers is essential. I was told they need 2-3 hours a day of meaningful interaction/play to help with speech and communication delays. Therapists can provide it, and you and your husband will be able to contribute as well.
Sending you hugs! 🥰

Aycddi · 13/04/2022 15:25

Thanks @NatiMark. It means a lot.

How is your son doing now? It’s so good to know he is fluent in his native language and has picked up English too?

I am trying to understand my sons symptoms are mild or strong… so many of my sons behaviors were very similar to the post- non verbal not even mom dad (but he repeats when we say mom) no gesture (he claps but randomly) no pointing, response to name (not consistent) if he is playing with something he won’t look. He never kisses or let’s us kiss- but he likes skin contact- never wants to be alone, likes playing with us, loves reading book with us and while playing share interest.
He lately started smiling when he sees us after a while or specially after waking in the morning but doesn’t do that even with his nanny of 9 months.

There are so many red flags here- I am so worried.

Aycddi · 17/06/2022 15:42

Hi @NatiMark , I wanted to first start by saying how much hope I got from your messages - looking at what you wrote I felt my boy is exactly like that. And I started following the Laura Mize prelinguistic skills video diligently with 2-3 hours floor based play sessions with my son starting at 15 months ( at 15 months he had no play skills just put everything in mouth, he had no words or gesture - didn't like touching his head). I live in Texas and the ECI appoint for first evaluation I got for last week- almost after 2 months. So in the meantime I worked with a private ST (3 hours a week) and OT (2 hours a week). The play sessions following Laura's video and my ST's suggestions worked wonders for us so far. My little Boy who was not able to follow our pointing constantly points now showing me birds, bunnies, dog, trees and ofcourse CARS (he just loves cars). I don't know how but within this 7-8 weeks from no words we are at almost 20+ words and shows in books and flash cards around 50 words. His receptive language is getting better as well. So finally when ECI did the evaluation last week they said he is doing great as a 17 month old and doesn't have any red flags yet - truth be told my son was so happy on the evaluation day, he even surprised us with his responses. Now this was the good part. But I do have some specific concerns that I want your suggestion on from your experience-

  1. Regression: when my son was around 12-13 months he did have 1-2 words (i.e. mumma, dada) but most of the times without any meaning just babbling and also used to show his belly by lifting his shirt and at 14 months he completely stopped those. That really scared me. I am confused was it regression - if yes then even though he is making such good progress right now should I keep worrying about regression?
  2. The Diagnosis of private ST: the private ST has helped us a lot. She is also saying its not ASD but has mentioned it is 'mild to moderate constrictions in the DIR® Functional Emotional Developmental Levels'. Underlying contributing factors are sensory processing differences, sensory modulation difficulties, and challenges with motor planning and sequencing.” And “Mixed Receptive-Expressive Language Disorder (ICD-10: F80.2) and an Oral/verbal Apraxia (ICD-10: R48.2).” I am just struggling to wrap my head around it. I am struggling to understand what this is?
  3. My son knows 20+ words and doesn't like to use them much unless I ask him what's this. He will still have days when he wont respond much to me or follow a command. He can have great eye contact but does that only when we do something he really likes (sing to him or say his favorite Rhymes) but most of the times he does not look much. He loves to cuddle when we go to sleep but doesn't like kisses at all or wont give hugs. But he will always be around us-never wants to be alone and sometimes he just takes my hand to put on his face or while playing come and sit in my lap - so I just thing his love language is different but he does show affection. Should I be concerned?
  4. I am not seeing any benefit from OT session yet but some folks have told me that's how OT works (very slow progress). My son still at 17 months cannot drink with a straw or straw seepy cups - He just doesn't understand what we are asking him to do. The OT wasn't able to help much either. Any suggestions on how I can get him to drink from Straw?
  5. Even though ECI said no red flags for now- I do see concerns. Reluctant to use words more often , doesn't follow command consistently and no hugs - kisses. Has anyone seen cases where the early evaluation did not flag anything but later ASD was diagnosed?
MumofJnJ · 08/09/2022 02:11

Would love any updates on your dd. How is she doing?

MumofJnJ · 08/09/2022 02:15

@Roblyn thank you so much for this. It brought me to tears. You described my son and he is 16.5 months. I’m trying to just chill out and enjoy my time with him.

NewMum118 · 29/09/2022 17:17

Posting on this thread for some advice
I am concerned about my 21 month old.
His motor skills have always been great. But communication is behind his peers. I am not particularly concerned about words( He is quite verbal and can use some words in context)
I am more concerned about his communication. I have taken mchat and he scored a 3. He basically failed the pointing questions. I am listing down his strengths and my concerns basis mchat

Strengths -

  1. Good social referencing. He looks at me or his father before responding to unknown people
  2. Great eye contact e.g while playing rhymes
  3. looks at me when he is happy about something. He plays a game where is we fail to catch a ball he has thrown he is very happy and looks at me
  4. very good imitation - he imitates gestures, words and some phrases from early on
  5. good pretend play - e.g he drinks from an imaginary cup and then comes to us to make us drink
  6. Joint attention - loves playing rhymes, hide and seek, initiates peek a boo
  7. dances to songs
  8. play - plays ok. No repetition
  9. no sleeping or eating issues
  10. waved and clapped on time

Concerns.

  1. Does not show a lot of interest in peers. He sits besides them but is more interested in the toys around
  2. Name response is patchy. He answers mostly when I sing his name.
  3. Pointing - big concern His pointing has been late and is infrequent
  • He started whole handing pointing at about 14 month.
  • Proximal pointing at 16 months. He pointed to pictures on wall etc he wasn't interested in books. Now he is.
  • He responds to where is question by pointing but only for letters(proximally)
  • Distal pointing was very late 18.5-19 months and is still sporadic. He would point about once a day. He vocalises like he pointed to tree and said "tee" but does not check back.
  • I do not know how to test for following a point. He does follow in a few directions.
  • He has just started isolating his index fingers for requesting things but that too is infrequent. He mostly does the open Hans grabby thing.

I see a few posters here who are quite experienced. Please help with the pointing thing. I am very confused.

My problem is that he does most things but infrequently. I mchat wasn't this binary.

Worriedgo · 07/04/2023 16:18

@NewMum118 how is ur baby now?

NewMum118 · 07/04/2023 16:46

Hi @Worriedgo he is fine.

His receptive language is great. He has started identifying colors. He has even started initiating play.

He does speak some sentences but just a few. Example he says "i want mik(milk)" "i see mamma"

My concern was that he did point but not frequently. And that pointing emerged late in him( 18 month). He had always followed a point.

So not worried as much now.

NewMum118 · 07/04/2023 16:52

I would also like to mention that he had a lot of screen time as I was working then. He also ran around a lot. He still does. But i am not as concerned. We put him in a toddler group last month. He did fairly ok. He participated in all the activities. Initiated ringa ringa roses. He is very fond of music and constantly brings guitar to his father. He then pretends to sing and dances too. I guess that is also shared enjoyment. But he gets bored easily and his attention span can be better.

I think that is delaying his expressive. You cannot have conversations with him yet at 27 months. But all his playmates are girls and can they talk !!🙂

Worriedgo · 08/04/2023 04:54

@NewMum118 my 21 months pointing from 11 months and always looks back while pointing(ask, share, request). Has some words. If he do not found anything then says ‘not there’. But still do not shake or nod head for yes or no.

RiverRock22 · 08/04/2023 08:42

Mummy0ftwo12 · 04/11/2019 11:35

@Arhumuk he went on to be diagnosed with speech and langauge and social communication delay - but def not autism because it was a delay rather than a disorder.

Hi @Mummy0ftwo12 how did your DC get diagnosed with. Speech and Communication delay rather than Autism? I'm here with my daughter at the minute, speech and communication is poor but she doesn't tick the box for repetitive restrictive behaviours or have any sensory issues.

FinnsMammy · 09/04/2023 16:07

@RiverRock22 are you sure she has no sensory issues ? I thought the same of my son until I filled out the sensory profile and realised he did. He was super cautious going up and down steps and he would run into people . This is his sensory issues which I was u aware of. To me sensory was lights and loud noises etc. PM me if you would like me to email you on the sensory profile x

RiverRock22 · 09/04/2023 17:37

FinnsMammy · 09/04/2023 16:07

@RiverRock22 are you sure she has no sensory issues ? I thought the same of my son until I filled out the sensory profile and realised he did. He was super cautious going up and down steps and he would run into people . This is his sensory issues which I was u aware of. To me sensory was lights and loud noises etc. PM me if you would like me to email you on the sensory profile x

I just googled it there, very few of the typical sensory things seem to apply to her although the communication side such as not responding to name and easily distracted - difficultly staying on a task. The only other one that jumps out is under sensitivity to messy face/hands and isn't bothered by the cold.

Lack of receptive understanding is my biggest worry at the moment. She has really bad sleep apnoea and is due to get adenoids/tonsils out soon to help with this so unsure how much of an effect this is having cognitively.

NewMum118 · 09/04/2023 19:59

@Worriedgo i believe there is still time for it. He is just 21 months and he is pointing. So I think he should be on track

Cappuccino17 · 10/04/2023 12:55

I dont think my daughter pointed till late and shes 5 and fine. Ur child is developing in other areas and if there are no other concerns i wouldnt worry.

Mumofone89 · 07/06/2023 19:46

Hi folks
concerned about DD development.
things of concern
cannot point
sometimes follows a point
rarely answers to name
uses gestures only when she feels like, eg claps when happy and waves hand sporadically but not when prompted.
eye contact fair
does not bring toys consistently
does not include me in play often (sometimes will bring me bus to wheel and bring it back to repeat)
no words
some babble but mostly vowels

things Postive
initiates and enjoys being chased
enjoys peekaboo
search for objects when hidden
eats and sleeps well
shows affect
reaches for items she wants but doesn’t look back
enjoys nursery rhymes
will often show joint interest when reading nursery Rhyme books
has been walking from 11months
responds to no.
at times will follow me when I tell her to come here.
will bang cupboard in her nanny’s when hungry
has great interest in other children

Dd has been constantly sick from dec due to crèche. I feel this has held her back immensely as in the last month when she hasn’t been there her eye contact is brilliant.
we have a paeds appointment next week but Hoping to hear some similar experiences of above that turned out ok.

LCM35 · 08/06/2023 15:13

How old is she?

Mumofone89 · 08/06/2023 18:20

She is nearly 15months

NewMum118 · 09/06/2023 05:29

I think she is still young. Pointing may emerge as late as 18 months. I can see she does show things to you. That sounds positive. Does she imitate gestures ? And Is she a very energetic child. As in she runs around a lot? Very active toddlers sometimes can purposefully ignore you as they are busy running. I am not a professional. This has been just my experience.
I would say just keep an eye on her. It is easier said than done but try not to worry.