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5 year old with autism advice needed

4 replies

Gf247 · 06/11/2026 17:14

My son is 5. He was at an independent school pre-school for 2 years where we weren’t given much information that felt outside of the realm of normal 3/4 year old behaviour. In the change to reception, he has had a lot of trouble with regulating his feelings and often lashes out. We have had a paediatrician appointment where they said he may have high functioning autism and we are now on the pathway with getting him assessed.

The main issue is that I removed him from the independent school reception because they were reporting he was so upset that he was self injuring which is behaviour we haven’t seen at home and I just felt like I couldn’t in good conscience send him there anymore. We found another independent school who sounded like they might be a better fit for him as they follow a more child led relaxed ethos. However, they have given him one trial half day and then reported back that he is so high needs he needs a one to one person and they wouldn’t be able to accommodate that.

I feel like I’ve now accidentally fallen into a black hole because the school who have rejected him have inferred that state schools might not accept him and he needs to have an assessment and eventually an EHCP but that will take a while. In the meantime, I have a child who is out of school and I’m not able to attend work due to having to care for him.

Does anyone know what I should do now? I feel like he’s being treated like a pariah because he has autism and we have no support and no one is being forthcoming with information.

Any advice or support would be so gratefully received.

OP posts:
hibernatinghedgehog · 06/11/2026 20:09

State schools can’t just refuse a place because DS has SEN.

If you want a state school place, you can make an in-year application.

You should also request an EHCNA. On their website, IPSEA has a model letter you can use. But you don’t need to wait for an EHCP. Enforce requesting a state school place.

JustaSongAboutPingPong · 07/11/2026 09:07

hibernatinghedgehog · 06/11/2026 20:09

State schools can’t just refuse a place because DS has SEN.

If you want a state school place, you can make an in-year application.

You should also request an EHCNA. On their website, IPSEA has a model letter you can use. But you don’t need to wait for an EHCP. Enforce requesting a state school place.

This is very good adviceSmile

EverydayProfessional · 07/11/2026 18:39

Gf247 · 06/11/2026 17:14

My son is 5. He was at an independent school pre-school for 2 years where we weren’t given much information that felt outside of the realm of normal 3/4 year old behaviour. In the change to reception, he has had a lot of trouble with regulating his feelings and often lashes out. We have had a paediatrician appointment where they said he may have high functioning autism and we are now on the pathway with getting him assessed.

The main issue is that I removed him from the independent school reception because they were reporting he was so upset that he was self injuring which is behaviour we haven’t seen at home and I just felt like I couldn’t in good conscience send him there anymore. We found another independent school who sounded like they might be a better fit for him as they follow a more child led relaxed ethos. However, they have given him one trial half day and then reported back that he is so high needs he needs a one to one person and they wouldn’t be able to accommodate that.

I feel like I’ve now accidentally fallen into a black hole because the school who have rejected him have inferred that state schools might not accept him and he needs to have an assessment and eventually an EHCP but that will take a while. In the meantime, I have a child who is out of school and I’m not able to attend work due to having to care for him.

Does anyone know what I should do now? I feel like he’s being treated like a pariah because he has autism and we have no support and no one is being forthcoming with information.

Any advice or support would be so gratefully received.

Let the teachers and surronding children know what the child is feeling and if the teachers respect the child they then must address to his concerns and issues.

Nelly44 · 07/11/2026 20:43

Independent schools aren’t great at supporting SEN, have a look at your local schools, he’ll be much better supported there

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