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Reflux or CMPA???

4 replies

elly1255 · 15/06/2024 11:41

I need advice I'm loosing my mind!

But if back story. My son is 5 weeks old on Monday he's had a crap start to life born at 36 weeks then in the nicu for a week. Since being home he was on SMA little angels , he was super unsettled screaming day in day out. I thought colic, the doctors though CMPA since I have had 2 other children with it , he then trialed nutramigen but completely refused to drink it after throwing up the full bottle. Then he went back to sma little angels till they prescribed him something else, then they gave him neocate for a week trial but ended up worse screaming and around 15-18 poos a day his bum was blistered crazy, then we was told to trial him on a comfort milk to rule out colic which we are now on hip organic comfort milk for just under 2 weeks. The belly ache seems to have calmed down now he's taking gripe water , he tried carobel that gave him horrible constipation and belly ache made him cry all day. Now I've ruled out colic the doctors are 100% sure he has reflux and so am I. His symptoms are

-cry's after a bottle
-very unsettled
-squirms and arches his back
-constantly being sick and swollowing it
-being sick after bottles
-legs up to his chest and flaring his arms everywhere
-going red in his face
-hiccups and chokes on milk a lot
-sneezing
-very congested and sounds mucusy.
-flakey skin
-spots and blotches on skin after bottles.

Things he's had
-nutramigen (didn't drink it)
-neocate (had a lot of diarrhea didn't trial long enough)
-Carobel ( bad constipation and bellyache)
-gaviscon ( bad constipation very unsettled)
-lanzaprozol ( didn't see a difference)
-omeprazole ( still on this but chokes really bad taking it)

I'm so fed up as in his 5 weeks of his life they've changed milk so much im petrified to change again. I do feel like they didn't leave him long enough on the neocate and I have been given a choice , re try the neocate and omeprazole for 4 weeks or try the aptimal anti reflux they have prescribed. I'm not sure what to put him on as I don't want to change him to CMPA milk for it not to agree with him and have to change to reflux milk after 4 weeks ? Please any advice is appreciated!

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Are your children’s vaccines up to date?
elly1255 · 15/06/2024 17:06

Bump

OP posts:
Tommymummyft · 16/06/2024 20:07

Sorry it sounds like you’ve had such a rough time. My little boy has gaviscon I was really worried about him getting constipated on it so I started really slowly with putting it in one bottle for a few days till he was used to it then two bottles and so on. I realise you’ve already tried gaviscon but just wanted to share my experience and hopefully bump your post a bit!

CadyEastman · 18/06/2024 07:56

Lots of his symptoms are those of CMPA though? Maybe you could talk it through with Allergy UK?

Could it be possible that he has more than one allergy too?

elly1255 · 18/06/2024 10:21

@Tommymummyft @CadyEastman hello! Thankyou for your messages. It's day 5 and I've still had no sleep lol, endless doctors and hospital appointments , allergy confirmed for CMPA so pediatricians have started him on neocate and carobel and took his feeds to 3oz every 3 hours from 5oz. It's been 2 days on it and invisibly I won't see a change yet but I'm exhausted honestly 5 days no sleep and other children to look after and take to school is horrible 🥲 I try sleep when he does but the thing is he isn't sleeping so we both can't lol😂 gotta laugh or I'm cry.. again 🙃🥲

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