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Original poster

Angelman syndrome

6 replies

Pinklady19089 · 31/07/2021 21:51

I have a 22 month old daughter and under genetics and speech and language and development centre as she has developmental delay and microcephely but they have also said she may have Angelman syndrome but are not certain yet.... Has anyone else's child got this and can anyone give me some advice as I am a very nervous mummy and scared for her 💕💕💕💕💕 xx

OP posts:
BunnyRuddington · 03/08/2021 08:43

I've not got any experience but didn't want you to go unanswered.

Have you tried posting in the SN section? There might be a MNer with experience in there.

Have a look in the MN archive as well to see if you can find any old threads.

Good luck Thanks

percheron67 · 03/08/2021 09:13

I now a lad with Angelmans and he is a delight. Quite a few problems though and I understand that there is a support group. I wish her very well.

percheron67 · 03/08/2021 09:13

I know not now - apologies.

Original poster
Pinklady19089 · 03/08/2021 11:53

Sorry I'm very new to all of this can you please explain SN and MNer and MN please.
Sorry if I sound a bit silly and thank you for getting back to me x

OP posts:
Original poster
Pinklady19089 · 03/08/2021 11:54

Thank you for your reply. I'm very new.to all of this and just wanted people's help as it worries me x

OP posts:
BunnyRuddington · 03/08/2021 17:45

Sorry about the abbreviations. SN is Special Needs, MN is Mumsnet and MNer is someone who uses Mumsnet. There's a full list of them to help you understand what people are saying here Thanks

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