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Original poster

Inantile Spasms

8 replies

GoosevonMoose · 28/01/2017 14:42

Has anyone else had a baby who has been investigated for IS? We have been referred to GOSH and I'm terrified.

OP posts:
JiltedJohnsJulie · 29/01/2017 09:09

I haven't Goose but didn't want you to go unanswered. Hopefully this will bump for you.

Original poster
GoosevonMoose · 29/01/2017 13:12

Thanks, Jilted.

OP posts:
NCforIS · 02/02/2017 07:52

Have you had your EEG yet goose?

Original poster
GoosevonMoose · 02/02/2017 10:56

We've had the 1 hour now the extended at GOSH is tomorrow.

OP posts:
NCforIS · 02/02/2017 12:20

We're just out of an hour one. Good luck tomorrow

Original poster
GoosevonMoose · 02/02/2017 12:26

How did it go NCIS?

OP posts:
NCforIS · 02/02/2017 14:48

Shite. No change in eeg

Miloarmadillo1 · 02/02/2017 15:01

Hi. My daughter was diagnosed with IS 2 years ago and I'm an admin of 2 Facebook support groups. Goose I think you may be on the UK one already?
UK group
International one

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