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Behaviour/development

Talk to others about child development and behaviour stages here. You can find more information on our development calendar.

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Original poster

Do online Aspergers tests have any truth to them?

114 replies

SchrodingersMew · 09/10/2012 18:58

Have thought for a long time I have a problem in social situations (I get scared when talking to people in rl and do not know what to say, I don't know when to stop talking and I seem to talk without thinking along with other problems) and have been trying to get to the root of where this comes from.

I do not think I have Aspergers but have taken an online AQ test and scored 37 which seems to be fairly high.

I am sure this is not the problem as I do not think something like that would be missed all through school etc) but perhaps there is something with similar traits?

OP posts:

PedanticPanda · 10/10/2012 23:00

So is hypermobility syndrome and eds 3 the same thing?

Original poster

SchrodingersMew · 10/10/2012 23:08

Pedantic Not quite but pretty similar. EDSIII is a genetic disorder and it means you produce faulty collagen so we have very bendy joints but we also have very stretchy velvety skin most of the time and have problems healing and with anasthetic.

I think though, HMS has now been re classified as EDSIII but I don't know if this is right as you can only have EDS if you inherit it from a parent (50% chance of having it if 1 of your parents does).

Summer Me and DP are very similiar in some ways in the way we act but he drives me up the wall with the way he acts sometimes.

OP posts:

PedanticPanda · 10/10/2012 23:20

I have it as so does my son, plus the velvety skin and trouble with anasthetic (my epidural didn't even work properly) and we have bendy joints too I read a bit about it just there and loads of things relating to eds 3, even like IBS, I have. Would it be worthwhile asking a GP about it?

Original poster

SchrodingersMew · 10/10/2012 23:26

My epidural didn't work either! Was agony because they wouldn't let me move even though I could perfectly and was stuck on my side and my back with my hips coming out of place and a MW who obviously didn't read my notes.

Yes, definitely worth seeing a GP, I have IBS too and some problems with my heart rate and other bits, you would probably need to see a specialist to get a diagnosis but don't give up as you are taken more seriously once you have a definite diagnosis.

I had been going to the GP for years (since 10 or 11) being fobbed off, it took me 10 years to get a diagnosis of EDS and the Prof' I seen said that is the average time but if you already have a dx of HMS it shouldn't be as hard. :)

OP posts:

devilinside · 11/10/2012 08:48

I suspect my daughter has hypermobility syndrome. I don't think I do, but my epidural didn't work properly either

SummerRain · 11/10/2012 09:10

Ds1 has hypermobile joints, he's under OT and has orthotic insoles. It runs on my side. I don't think it's as severe as true hypermobility syndrome though.

HecateLarpo · 11/10/2012 10:36

From what I read on here, many people can give an opinion without telling a story of their own. I feel that's the difference.

My boys (both autistic) are both hypermobile. It's really interesting how many are. I didn't realise that.

Who else struggles to know when a conversation is over? eg email or text. I never know when we're done and agonise over whether I am supposed to reply to the last message, or whether the other person feels it's finished.

I also make my husband do de-briefs after every social interaction. I make him go over everything I said, did, the other person said and did, what he thought they thought of me, how he thought I did... It must drive him nuts

fuzzpig · 11/10/2012 10:42

Hello!

I was the one who started the other thread. It sometimes goes quiet but it is really lovely. We are all lovely people honest :o

I am still waiting for an assessment after my first got cancelled.

PedanticPanda · 11/10/2012 10:47

It's common for those on the autistic spectrum to have a degree of hypermobility too, I wonder why that is.

fuzzpig · 11/10/2012 10:47

I have bumped up the other thread if anyone is interested

I think the problem with these threads is that even online socialising is exhausting!

By the way I don't have hyper mobility but I am expecting a dx of chronic fatigue syndrome next month. Missed a lot of work this year.

HecateLarpo · 11/10/2012 11:20

Thanks fuzzpig. I joined in.

I do feel like I can't sustain involvement in long threads. That's why I never joined one of those long running threads. I feel intimidated by them. I do wonder if there's any value in a mini mn type place, eg facebook or small yahoo group or similar, where people can chat but it's broken down and not one long thread. I don't know if it's just me or if anyone feels the same? Not to break off but because a thread of 600, 700, 800 posts just feels totally overwhelming, iyswim.

Original poster

SchrodingersMew · 11/10/2012 12:14

I've had a look over the other thread and I will think about joining in. I feel the same as Hecate with long threads, I have tried to join in to a few but I feel I get lost and then confused because I don't know everything that has been written and it takes to long to get through the lot! Especially the ones that are on like thread 3 or more... Totally failed in the antenatal thread which is a shame as the people I have talked to have made friends from it. :(

It's interesting to hear all the people with hypermobility who are on the spectrum, I have just googled it too and it seems very common.

OP posts:

hk78 · 11/10/2012 12:52

Marking my place here as this rings so many bells. Done the first test linked by Schrodinger and got 36.

DD1 is the same, if not worse - I always thought this was part of her other disability (cerebral palsy) but as she's got older it's become more apparent. Same can be same of myself - no disabilities myself but the older I get, the more out-of-sync I feel in real life.

Mumsnet brilliant for stuff like this. Love reading what others have to say and getting that feeling of recognition.

hk78 · 11/10/2012 12:53

Also, forgot to say: dd2 completely NT and very 'successful' socially. My dad, I would say, is like myself and DD1.

fuzzpig · 11/10/2012 14:33

That's exactly what I feel about long threads! I steer well clear of all the nobdies, the slatterns, flylady threads, etc because they scare me! It feels like being the new girl in class (that's what I feel when I do the school run too :()

I hope that the other thread isn't like that, at least, it's full of other people who struggle in the same way, so maybe a bit more inclusive? Also it really doesn't matter if you don't know what else has 'happened' on it - we keep talking about the same stuff over and over again anyway.

(I sound like I'm trying to sell the thread here, sorry - just wouldn't want anyone to feel unwelcome there because I know only too well what that feels like!)

fuzzpig · 11/10/2012 14:35

I'd be very happy with a FB group Hecate - could do a closed group with invites arranged by pm or something

PedanticPanda · 11/10/2012 15:21

I was on fuzzpigs last thread for a while, but then got caught up with getting DS's ASD dx and tuned out of mn for a while. They are all really welcoming, you can join in at any stage and relate to what's going on, and can jump in and out of it too

CoteDAzur · 11/10/2012 18:39

This is interesting. My epidural didn't work, either.

Original poster

SchrodingersMew · 11/10/2012 19:30

HK So is it hereditary do you think? Interesting as I know nothing about a complete side of my family, including my Mother.

Fuzz You have sold. I promise I will sign in on it tomorrow, trying to get DS to bed and I am really unwell today. :( I'd also be happy with a FB group.

Pedantic Maybe we should join it again together, along with Hecate. :)

Cote I'm finding it really quite interesting that most of us have had failed epidurals.

OP posts:

HecateLarpo · 12/10/2012 06:27

no no, it's not that anyone on any of those other threads are doing anything to make me feel excluded! On the rare occasions I've dipped a toe in, they've been smashing, they really have. Very welcoming.

I just can't sustain participation in a long thread. Like I can't handle a long verbal conversation and I will in the end, tune you out I can't stand talk and talk and talk and talk and talk, iyswim. I like to say something, go away.

Ok. place for honesty, right? I like to say what I have to say and go away. The conversation is over once I have said all I want to say.

I know, I know how awful that sounds.

I'd really love a fb group or similar. Somewhere to have little conversations

Whistlingwaves · 12/10/2012 07:24

This reply has been deleted

Message withdrawn at poster's request.

CoteDAzur · 12/10/2012 07:57

Schrodinger - There is ample evidence that AS traits are hereditary and more marked in offspring if both parents have AS.

Before most people heard of AS, about 10 years ago, there was a great article in Wired (US) called The Geek Syndrome that you would all find interesting. I'm on phone now so can't link but you should be able to find it easily.

HecateLarpo · 12/10/2012 07:59

is this it?

SummerRain · 12/10/2012 08:50

My dad and his father are/were similar too. And the hypermobility comes from that side too so I wouldn't be surprised if they registered on the spectrum.

FB group sounds good, like hecate I struggle with sustained interaction. The only l oolong running thread I've posted on is my AN/PN thread from ds2 and even that I tend to fall in and our of a lot.

Original poster

SchrodingersMew · 12/10/2012 09:34

Hecate Your word is the final word.

Cote I'm going to have a read over that, it looks interesting. Unfortunately I don't know anything about either parent so can't compare. My Dad passed when I was 3 and my Mum ran off before that so I would have no idea. That's why it has taken so long to get a diagnosis of EDS as I basically have no known family history!

Really think the FB idea would be a good idea now!

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