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Coeliacs and hypothyroid: Has anyone had positive IgA and endomysial and not had coeliac disease?

2 replies

beeble347 · 08/03/2026 19:31

I recently had a whole range of blood work done. I've had hypothyroidism treated for 13+ years now and am 1 year postpartum.

My TSH is level 14, as high as when I was first diagnosed.

Coeliac related results: IgA level 8 (apparently a weak/borderline result) but positive endomysial too. GP appointment is almost two weeks after the blood test results came back, I've done a lot of ominous googling in the meantime. The NHS app is suggesting next stage is a biopsy.

I have to admit I'm really dreading the idea of a lifetime of checking labels, being worried to eat out and not being able to share food so easily with my DS (I know I still can but just this added complication to my idea of what life would look like together, travel to Japan, simple baking together).

I will have to make my peace with it and I would so much rather this than a severe allergy that could kill me on the spot or a life-threatening disease.

Anyway - anyone had similar results and turned out not to have it or is it basically a given?

OP posts:
Realisation14 · 09/03/2026 19:52

I think it's pretty much a given.

beeble347 · 12/03/2026 14:58

Realisation14 · 09/03/2026 19:52

I think it's pretty much a given.

Thank you - it's a pain. I've asked for a referral for a biopsy from my GP. I had to actually point out to him that I had endomysial antibodies as well, he was saying it was only a weak positive so it was likely just my thyroid.

OP posts:
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