Symptoms, 6 year old daughter:
- Petachie non blanching rash has been present intermittently on body and inside mouth since end of Dec 2023 - sometimes accompanies fever, sometimes not with a fever
- Red rash on her cheeks coming for months/last year or more on and off, doesn’t go over her nose and isn’t in folds around nose. Recent Hot summer mornings it’s bad, cooler mornings seems fine, after a meltdown it can sometimes come up (not always), when she’s had viral infections it comes sometimes up (not always)
- Diagnosed Pityriasis/tinea versicolor 13th June and diagnosed again 27th Aug
- End of dec/start of Jan 2024 period of 6 weeks with low grade fever, 20th Aug low grade fever started again and remains
- Redness noticeable on arms and legs after being out in the sun too (not sun burn) during periods that the redness on her cheeks was also visible
- Occasional Joint pain (doesn’t limit activities and seems very fleeting)
- Occasional tummy pain (doesn’t limit activities and seems very fleeting)
- Can see and feel swollen lymph node on her right side of groin and can feel on her neck during what seemed like a flare up period of red cheeks
- Her grandad (maternal side) has suspected lupus/roseca
- Her great grandma (maternal side) confirmed rheumatoid arthritis
- Low iron (but does have restricted diet)
- Fingers and toes turn purple in cold weather/water
- chilblains in winter
- At the moment seems very pale with huge under eye bags despite good sleep
- Has had 2 full blood tests this year and all was clear (last one taken 31st Aug)
- Been referred to dermatology and rheumatology (GP suspects lupus but I’m unsure as sun doesn’t always bring out red cheeks, only some of the time)
- Eating and drinking fine (for her), pooing and weeing fine, seems more tired than normal but not limiting activities and isn’t sleeping more than normal