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Autoimmune disease

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Any suggestions

4 replies

putthehamsterbackinitscage · 28/02/2024 10:52

Have symptoms that suggest PMR but blood tests (esr 5.0 and Crp is 1.3) both normal - gp is arranging referral but in the meantime it's affecting day to day life quite a lot as my hips are sore/stiff especially in the morning and I've had to drop most activities such as running and hiking that are the mainstay of our weekends (DH and DD both run and we would usually spend our weekends out and about - eg parkrun then hike on Saturday, longer run or walk on Sunday).

Has anyone been diagnosed with similar issues - or had an alternative diagnosis that also fits the symptoms? (Bilateral pain across hips, painful going from standing to sitting, difficulty in bending, painful/difficult to turnover in bed, increased fatigue and sometimes night sweats/increased temp (already on high dose hrt too).

OP posts:
CadyEastman · 18/03/2024 08:02

Have you had any news on this yet @putthehamsterbackinitscage?

Imfreetofeelgood · 20/03/2024 16:42

Osteoarthritis in your hips? Side effects of your HRT? Hope you get answers soon.

putthehamsterbackinitscage · 20/03/2024 17:51

Had a private referral to rheumatologist- he thinks it unlikely and suggests "wear and tear" so sent me for mri of lumbar spine and ultrasound of shoulders with suggestion back to gp that there is mild scoliosis and probably spondylitis.

Got follow up in about 2 weeks time but radiologist said after mri there are significant disc issues.

That doesn't explain bilateral shoulder pain though and ultrasound only showed minor calcification on one side.

So I shall have to wait for the follow up to see what is next.

OP posts:
putthehamsterbackinitscage · 20/03/2024 22:04

Forgot to say cray if hips a few weeks ago was clear - no osteoporosis arthritis or anything related to sacroiliac joint.

I'm currently trying to get a list of questions for the follow up appointment to try to get the most out of it

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