MOGAD

[Babycorndododo]

Does anyone else have any experience of this?
I've just been diagnosed with MOG antibody disease. I lost my vision in one eye (optic neuritis) and had numbness/tingling in one leg. I've been told this is a rare autoimmune disease that is very similar to MS and has a lot of overlapping symptoms.
There doesn't seem to be much information online about it so I'm hoping to find someone that I can chat/share experiences with.

Hi, I don't but my almost 4 year old does. He had it at 15 months so we spent time in Kings College Hospital. He's not had any more attacks, but does have long term disabilities as a result of the encephalitis and seizures that MOG-AD caused. I can tell which medical personnel we've met as every new one starts the conversation with "I've just Googled the condition...it's very interesting" 😆

Hope that you are recovering well. I think the infant version is a bit different to the adult, but very happy to chat. There's also some Facebook groups that bring people together.