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Autoimmune disease

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PCOS/thyroid/CFS

6 replies

Scottishshortbread11877 · 20/01/2024 12:35

Has anyone ever had a PCOS diagnosis despite having a fairly regular menstrual cycle? I have regular periods but I do have acne, excess body hair, dry skin, dry scalp, tiredness, hair loss, bad circulation (to the point shop employees comment on how red and cold my hands are, they are really blotchy and my fingers are stiff and my hands and feet are like blocks of ice), sore joints, brain fog, general fatigue and mood swings. I was tested for PCOS about 15 years ago when I was in my 20s, I am now 36. It was an internal scan and all clear. I do not know if I am fertile as I am childless by choice and have never TTC. I went to my Gp with my symptoms in September 2023. He prescribed me antidepressants and only tested my thyroid levels which were within normal range. I still have all the symptoms and have had them for years. Starting to give up that I will ever get a diagnosis. I feel I have some autoimmune issue but feel the Gp gave me antidepressants and case coded.

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DustyLee123 · 20/01/2024 12:48

The cold hands sounds like Raynauds

Timelime · 27/01/2024 23:31

This is interesting. My DD 17 has nearly all of those symptoms. Her periods are a little irregular though she's never missed one. The cold.hands and blotchy/mottled skin. We've been to the GP for period/acne/ unusual tiredness and been robbed off each time. I did push for a thyroid test and got one and she had full blood tests. Folate and thyroid came back as satisfactory but we got no follow-up.

Pcos is on our minds but I don't have faith that a visit to the GP will be useful. If only women's health problems were taken more seriously. Sorry I have no advice. I hope you get some answers soon.

Tooolde · 27/01/2024 23:40

What was tsh as should be around 1?

Are you overweight as that could increase body hair

Scottishshortbread11877 · 28/01/2024 08:07

Tooolde · 27/01/2024 23:40

What was tsh as should be around 1?

Are you overweight as that could increase body hair

TSH 0.59

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Scottishshortbread11877 · 28/01/2024 08:08

Tooolde · 27/01/2024 23:40

What was tsh as should be around 1?

Are you overweight as that could increase body hair

I may be slightly overweight. I am 5"8 and around 11st 7lbs. I have always been this weight, fluctuating slightly

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Scottishshortbread11877 · 28/01/2024 08:09

Timelime · 27/01/2024 23:31

This is interesting. My DD 17 has nearly all of those symptoms. Her periods are a little irregular though she's never missed one. The cold.hands and blotchy/mottled skin. We've been to the GP for period/acne/ unusual tiredness and been robbed off each time. I did push for a thyroid test and got one and she had full blood tests. Folate and thyroid came back as satisfactory but we got no follow-up.

Pcos is on our minds but I don't have faith that a visit to the GP will be useful. If only women's health problems were taken more seriously. Sorry I have no advice. I hope you get some answers soon.

I'm sorry to hear about your daughter. I have had these issues since I was her age so I hope she gets answers soon and won't be like me 20 years later still pushing for diagnosis.

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