I'm waiting for an appointment with a rheumatologist to confirm this diagnosis. Originally it was suspected scleroderma but my endocrinologist thinks its Eosinophilic Fasciitis as I have all the symptoms.
I had never heard of this disease before he said about it and neither has anyone else I know. I know its a very rare AI disease but just wondering if anyone has this, knows anyone who has it, or knows anything about it.
Feeling pretty anxious at the moment.