CCG refusing to fund T3 medication. Where can I buy privately from abroad?

[insertrandomusernamehere]

I have suffered from an under active thyroid for years and was on a combination of Levothyroxine (T4) and Liothyronine (T3) to treat my symptoms. I’ve just received a letter from my GP this morning however saying that they can no longer fund the T3 due to budget constraints. To put it into context- there’s only one pharma company producing the drug and they’ve put their prices up by 6000%!!! That means a 30 day supply of this drug costs the NHS £250-£300 whereas it costs around £1-£5 a box abroad. I don’t blame the NHS at all for their decision but I wanted to know if anyone knew where else I could get this medication from abroad? I fall under the ECV for COVID-19 and don’t want my health to deteriorate when my current medication finishes. If anyone has any recommendations where I can buy the medication cheaply (I’d need it for life), please do let me know.

Alternatively, can I appeal the CCGs decision to stop funding?

My GP stopped funding it years ago but I was referred to Endocrinology (lots of ongoing stuff) and he happily gives me a hospital prescription for it to take along side my thyroxine. Could you request a referral to see if Endo will prescribe for you?

“NHS England guidance states that prescribers in primary care should not initiate liothyronine (L-T3) for any new patient, and that individuals currently prescribed liothyronine should be reviewed by a consultant NHS endocrinologist with consideration given to switching to levothyroxine (L-T4) where clinically appropriate. Prescriptions for individuals receiving liothyronine should continue until that review has taken place “

www.hey.nhs.uk/wp/wp-content/uploads/2020/05/AMBER-Liothyronine-March-20.pdf

I do vaguely remember people used to buy it and get it shipped in from Spain but ....Brexit.
Good luck.