I’m taking Stelera for Crohns. I took the last one on Tuesday. I ended up in hospital because my mouth started to swell and breathing became difficult.
I then had the most awful awful painful attacks of heartburn that lasted a minute or less each time. But the pain made me sweaty, dizzy and sick. So was treated with a dose of steroids and antihistamines.
The last 24 hours I’ve had the weirdest crohns flare. I’ve never had anything like it. The pain is excruciating when it reaches my rectum and I have to immediately go to the bathroom. The pain makes me feel like I’m going to faint.
It’s always the same pattern.
Very watery, black stools for a few seconds. Then intense pain when a couple of what resembles clots come away, then it’s a bottle of Coke cola has been emptied and poured into the toilet. In both colour and consistency and smells vile.
I’ve never had anything like it before. I’m not sure if it’s related to the reaction I’ve had to Stelera. It started happening yearly yesterday morning but not as frequently. I mentioned to consultant at the hospital. I was told it was just a histamine flare causing it make it. That I needed to contact my GI consultant on Monday if it hadn’t stopped.
I’m really struggling with it and how crap I’m feeling. But after telling my friend she asked if it was blood or stool. I told her it’s literally like a bottle of coke and quite dark.
So i took a proper closer look. Now I’m not sure. I’m worried I’m over reacting and letting her plant worry there. Whereas I would force myself to ride out the flare until I can get direct contact in the morning. I hate going through a&e to get treatment
GRAPHIC Pictures warning
I will attach pictures in order that it occurs every time. The first it the dribble I get at first that I have no control over. Then the blob things came out, this time it was three seperate ones that are on one tissue and so looks like one big one, then it’s the black watery after effects. That usually takes a good few minutes to get out and I have no control. If I couldn’t find a toilet it would just happen where I’m stood.
No I thought as it’s dark it was normal stool and I can see no red blood but my friend said it can be black. I’m so confused and feel so crap but don’t want to waste the hospitals time if it’s just a new flare