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Mumsnet hasn't checked the qualifications of anyone posting here. If you have medical concerns, please seek medical attention; if you think your problem could be acute, do so immediately. Even qualified doctors can't diagnose over the internet, so do bear that in mind when seeking or giving advice.
Autoimmune disease
Lymes Disease
goldpendant · 24/02/2020 21:06
So, if I went to my GP with suspected lymes disease (classic bulls eye rash), and they sent me for a Bordetella Pertussis blood test, would I be right in thinking they had messed up the blood test order?
My quick google tells me the bordetella pertissis test is for a whooping cough antibody. Nothing that I can see to do with Lymes (which I still think I have 6 months on).
Really struggling to get GP to take it seriously. They did the blood test after they saw the rash and I was given antibiotics (as per NICE) guidelines, but I'm still suffering and having requested my notes, it looks like they might have done the wrong test too?
Mumma1984 · 02/03/2020 21:13
All I can suggest is please please go private - it's a million % worth it, GP's know next to nothing about lymes and it's so important it's caught early and antibiotics taken - it can leave you in a wheelchair eventually if it's left untreated for years - just go for a private test and get it diagnosed so you can claim the correct treatment! Xx
goldpendant · 02/03/2020 21:59
Hi @Mumma1984 - have you had Lymes disease? Actually saw the gp again today, seemed very unsure about what other tests were available.
Mumma1984 · 02/03/2020 22:04
I think the test you need is called borrelia antibody, I don't have it but I thought I did and found my GP utterly useless so I did some investigating myself, I went to breakspear medical and was tested https://breakspearmedical.com/treatments/lyme-disease/?gclid=CjwKCAiA-vLyBRBWEiwAzOkGVJ4573FlOoJnKFjynp66mOwEjvDh0Umu3RQiqA-KV6lPYPhskWddxoCsMgQAvDD_BwE but I also now see that you can get a home test on that 'let's get checked' www.letsgetchecked.com/gb/en/home-lyme-disease-test/?imp=cpc&om=health15&gclid=CjwKCAiA-vLyBRBWEiwAzOkGVGotrlz3vqywBaBFJh9lepo9GBtLXtjDjMhhm5SGW69X57n991L-XRoCcQUQAvD_BwE I would def advise ignoring the GP because they just don't know anything about it and prob will continuously tell you that you have anxiety causing any symptoms ! Xx
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