Please or to access all these features

Autoimmune disease

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

Infliximab side effects.

3 replies

sam235corner · 12/12/2019 10:11

My son has just had his second intravenous Infliximab dose for Crohn's. He literally can't get out of bed. Dreadful tiredness, no appetite and feels nauseous. Does anyone know if these symptoms will pass and how long it will take? He had his last dose on Tuesday.

OP posts:
Coffeethrowtrampbitch · 12/12/2019 10:18

I've been taking infliximab since April 2016 for an auto immune condition which is basically meningitis without bacterial or viral cause.
I've found it hard to describe how tired I am to doctors, and the advice I've had is to ration the energy I do have, so I think acute fatigue is common, as is nausea.

I've not stopped taking infliximab yet, but other patients I've spoken to say it takes 4-6 weeks for the symptoms to completely stop, but the nausea goes before the tiredness.

I hope your son feels better soon and the infliximab helps with his UC.

carol045 · 13/12/2019 09:49

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

Amichelle84 · 01/01/2020 16:58

Hi OP, I used to be on that for UC. I always was very tired and had cold like symptoms for a few days after the infusion, then it would go u till the next one.

New posts on this thread. Refresh page