I'm starting for another flare I think. Last one was 3 months finished in December after 5 weeks of steroids. He said if I need the emergency steroids he prescribed me in the next few months, we'd have to reasses. Only on hydroxy at the moment. He won't put me on long term steroids but is worried about starting anything else when i have no organ involvement, because they are toxic and more side effects obviously.
If it wasn't for the foot pain, I'd cope. But it's really, really disabling.
Anyone in a similar situation?