Sjogrens and lips.

[SluttyButty]

Has anyone here who has sjogrens had issues with their lips?

I'm talking actually in the lip not around the edges. I keep getting lumps that are painful when touched but I'm aware of them being there without pain.

I'm seeing my rheumy next week so I'll definitely raise it with her because they only started about three to four months ago (which might coincide with starting cosentyx) but I thought I'd see if anyone else has them.

I had to stop Cosentyx because of the side effects...primarily oral ulcers so bad I couldn’t even swallow water through a straw. It did also give me a lot of coldsores, which combined with the dryness that Sjögrens brings, was not pleasant.

I gather you’re not getting pain but I would assume that the lumps are linked to the side-effects. It’s crap isn’t it?

By now you may have had your appointment. If so, I’m keen to know what they said.

Hope you’re ok. I am now on a different biologic and know that exactly 48 hours after injecting, I will get mouth ulcers.