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Original poster

High NIPT

15 replies

T168 · 10/08/2024 07:14

Hi all,

First post! Here goes.

I am 38 soon to be 39 next week.This is my first child. My NIPT came back as a higher chance and have the Amniocentesis on Wednesday. Has anyone else had this and all was ok? I’m now 15 weeks and just can’t sleep or function properly the wait is wearing me down.

OP posts:
sel2223 · 13/08/2024 10:42

@T168 I'm sorry, I haven't experienced this myself but just wanted to send positive wishes your way. Hope it all turns out OK

CrunchySnow · 13/08/2024 15:59

Have you had a scan yet? What has it come back with higher probability for? T21, T18 or T13. You are more likely to get a false positive for T18/T13 than T21.

Original poster
T168 · 14/08/2024 15:53

@CrunchySnow I had a scan at 12 weeks and NT was 3mm, I opted for the screening and it came back high, so then had the NIPT which came back as higher chance, both for T21. I have had the amniocentesis this morning, so waiting for results

OP posts:
Original poster
T168 · 14/08/2024 15:54

@sel2223 Thank you ❤️

OP posts:
JenJennie1985 · 18/08/2024 22:07

Sorry to hear this @T168 . I went through similar , and the outcome of all tests I had lead to the most awful decision to terminate . 3 months on now . feel free to message if you need any support x

CaribbeanCupcake · 18/08/2024 22:15

I went through this last year, same age as you. My result came back as 1:5 of DS and I had to have an amniocentesis. I was a mess waiting for the result as this was a much wanted baby after 4 years of TTC and having IVF.

The result came back clear and the relief was immense. I wouldn't wish the wait on anyone, it's so stressful and your mind goes everywhere. I'm so sorry you're going through this and hopefully you get your result very soon.

Sending love xx

Original poster
T168 · 20/08/2024 07:26

JenJennie1985 · 18/08/2024 22:07

Sorry to hear this @T168 . I went through similar , and the outcome of all tests I had lead to the most awful decision to terminate . 3 months on now . feel free to message if you need any support x

Mine has had the same outcome, I am booked in this week, I am just broken and lost x

OP posts:
Original poster
T168 · 20/08/2024 07:27

CaribbeanCupcake · 18/08/2024 22:15

I went through this last year, same age as you. My result came back as 1:5 of DS and I had to have an amniocentesis. I was a mess waiting for the result as this was a much wanted baby after 4 years of TTC and having IVF.

The result came back clear and the relief was immense. I wouldn't wish the wait on anyone, it's so stressful and your mind goes everywhere. I'm so sorry you're going through this and hopefully you get your result very soon.

Sending love xx

Thank you, it’s not a good outcome so in a mess at the moment x

OP posts:
CaribbeanCupcake · 20/08/2024 20:06

@T168 I'm so sorry 😭 There is no right or wrong way to deal with this.
Please be kind to yourself, thinking of you xx

Original poster
T168 · 21/08/2024 07:05

CaribbeanCupcake · 20/08/2024 20:06

@T168 I'm so sorry 😭 There is no right or wrong way to deal with this.
Please be kind to yourself, thinking of you xx

Thank you, it’s the most heartbreaking, soul destroying situation to be in x

OP posts:
sel2223 · 21/08/2024 07:46

@T168 I'm so so sorry

dizzydizzydizzy · 21/08/2024 10:03

This reply has been withdrawn

This message has been withdrawn at the poster's request

MrsScotland · 21/08/2024 13:21

I'm so sorry, I've been through this myself for a different trisomy. I've had a lot of support from a couple of boards on TFMR and also TTC after a TFMR over on Babycentre, let me know if you would like the links.

Original poster
T168 · 22/08/2024 07:32

MrsScotland · 21/08/2024 13:21

I'm so sorry, I've been through this myself for a different trisomy. I've had a lot of support from a couple of boards on TFMR and also TTC after a TFMR over on Babycentre, let me know if you would like the links.

I am in contact with ARC, but anything more would be useful please. Thank you x

OP posts:
MrsScotland · 22/08/2024 09:42

Yes ARC are very good, they have a private forum which is helpful. Here are the links to the other boards I mentioned

https://community.babycentre.co.uk/groups/a3723405/termination_for_medical_reasons_tfmr

https://community.babycentre.co.uk/groups/a3873235/trying_to_conceive_after_tfmr

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