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12 week scan encephlocele

2 replies

Bumblejuly2020 · 19/09/2022 19:16

Hi, i had my 12 week scan today and they found a protusion at the back of my baby's skull, possibly an encephlocele. She said it looks like anencephaly but there is some skull, because it's a bank holiday there was no fetal medicine available but she said from what she has seen the prognosis is probably not good.

This is my second, my first has a congenital brain abnormality but no where near this severe. We knew there was chance of this baby having the same thing but because she has no genetic diagnosis we had no definitive risk.

I feel like an idiot for thinking it would work out. I really don't want to have a termination but I can't see another option.
We will hopefully hear from fetal medicine tomorrow and get some answers. I'm not sure why I am posting this except I could really use a hand hold.

OP posts:
Elsanore · 19/09/2022 19:30

Hand hold for you. I hope you have lots of support around you and you get some restful sleep tonight.

Nursemumma92 · 19/09/2022 19:31

So sorry to hear that you are going through this, awful to find this out and then not have any specialists available to discuss it with. Please don't feel like an idiot for having hope, it's totally natural and like you said, if your DC's condition is not a genetic diagnosis there was no reason to assume the worst. Really hope you get some answers soon OP, sending you hugs and strength xx

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