Dandy-Walker variant

[Olla85]

Did anyone had a simillar diagnosis after 20 week scan? And confirmed at level 2 scan.

They cannot see vermis and the left hemisphere seems much smaller than the left one. They also see a cyst by the smaller hemisphere.

We were offered termination and the doctor said the baby could be severely handicapped. We went back to the hospital to have the procedure started but we had so many doubts, they instead run blood tests, amnio and and arranged for MRI (in 4 weeks!!! I am 22 weeks now!).

I am struggling to come to terms with termination as I do not understand the possible outcomes and it's been told that RARELY some people could live with the condition and not even know, however also I was told the doctor would be very worried about the outcome for our baby if we kept the pregnancy and that we would need to consider Foster care/care homes etc...

I am severely confused. Any helpful advice?

Hi,sorry you've been given this news.
It's always a shock when something unexpected comes up on a scan,it happened to me at 33 weeks and it was scary :/
Hopefully someone will come along with advice but I may be able to help a little.

I know someone who's son has dandy Walker and I am in some Facebook groups for special needs children (my son has a different condition) but there are lots of parents of children with dandy Walker in them.
There are also a few Facebook groups specifically for parents of children that have it,maybe you could join to get more of an idea of the future if you feel that would help you.