Advice

[Gracelau]

Hi there!
This is my first time posting so hope I'm doing it right! So this is my first pregnancy, husband and I were on an IVF waiting list so the fact we conceived naturally was amazing. I am 24 weeks pregnant and have found out our little boy has moderate ventriculomelagy (14mm) and most recent scan has shown up a small cerebellum. We have already done an amniocentesis which came back normal and have an MRI scan in 2weeks.
Our most recent scan has also shown there is a problem with the great vessels in the heart so we have been referred to a heart specialist .
Has anyone else experienced any of these?I've been trying to stay as positive as possible but with the most recent possible heart issue added in I'm so nervous xx

It sounds like you are in a pretty difficult place right now. It is always frightening when “difference” is found in your baby. Inevitably there will be a great deal of uncertainty. Do you have a specialist midwife assigned to you? I am happy to answer any questions if you want to PM me - I am a specialist midwife and have worked with a great many families in complex situations.
Sending love x