Active discussions

Please or to access all these features

Talk
Antenatal tests

Get updates on how your baby develops, your body changes, and what you can expect during each week of your pregnancy by signing up to the Mumsnet Pregnancy Newsletters.

Original poster

Bladder exstrophy

2 replies

Nichola2310 · 11/05/2018 18:50

Had my 20 week scan a couple of weeks ago and everything was normal but they couldn’t see the bladder. The radiographer was very nice and said the baby probably had a wee and booked me in for a repeat scan. This led to going to fetal medicine today and being told the baby has bladder exstrophy, which means the baby’s bladder is on the outside of its body. We are completely devastated. Has anyone any experience of this? If occurs in 1 in 40,000 babies so I’m not hopeful!

OP posts:
HawkeyeInConfusion · 11/05/2018 22:29

I didn't want to read and run. I have no experience, but many posters suggest ARC as a good source of information and support.

And Flowers for you.

Hopingnwishing · 14/05/2018 01:42

I know of a baby who had this. Her bladder uterus and ovaries were outside. She went to Great Ormond street and had it fixed.

New posts on this thread. Refresh page