Active discussions

Please or to access all these features

Talk
Antenatal tests

Get updates on how your baby develops, your body changes, and what you can expect during each week of your pregnancy by signing up to the Mumsnet Pregnancy Newsletters.

Original poster

Harmony at FMC

108 replies

KittyandTeal · 13/02/2016 12:43

It feels odd to be starting a thread here after all this time!

We lost dd2 to trisomy 18 last year. I'm now pregnant again and as part of our screening we've decided to have the harmony package at the fmc. My viability scan and blood draw is Monday and I'm shitting myself.

I guess I'm just asking for a hand hold and if anyone else has done the package there and what did the think? Was your first scan transvaginal? I had an 8 week tv scan but not sure if it will need to be at 10 weeks?

Sorry for all the questions, I'm normally here trying answer other people's questions 😳

OP posts:
ZombiesAreClammyDodgers · 19/02/2016 03:01

Kitty, I hope you got your results?
Another one here on the 2 week wait for the harmony results from the FMC. Bhcg and PAPP A were v low so it's going to be a nerve wracking few days.

Original poster
KittyandTeal · 19/02/2016 07:09

No results yet but the bloods were only taken Monday. I'm going to give them a call Monday and see.

It's a stressful 2 weeks, fingers crossed for you zombie. Have you had your combined screen results back then?

OP posts:
ZombiesAreClammyDodgers · 19/02/2016 14:11

Kitty yes.
1 in 5012 for trisomy 21 but 1 in 445 for trisomy 13/18. What about you?

Original poster
KittyandTeal · 19/02/2016 14:37

I've booked the harmony package so not had my combined done yet.

I've asked for it not to be reported to me as I have an utter lack of faith in them after being given a low risk T18 'score' that should have been picked up (the guys at Kings saw my results and knew straight away it was high risk for T 13/18)

Have they told you when to expect your results?

I'm really struggling today, feeling sick at the thought of going through it all again.

OP posts:
ZombiesAreClammyDodgers · 19/02/2016 15:16

They said two weeks and I gave my bloods yesterday. I'm hoping for any time after Monday 29th if I am honest..
Did I read correctly that you gave your bloods on Monday ie 15th?

Original poster
KittyandTeal · 19/02/2016 15:31

Yes my bloods were mon 15th then back on 29th for the 12 week scan.

I have my nhs combined on the 24th though so I'd like my results before that tbh. I think 9 days can be the turn around but they told us they'd only call us with high risk or no viable result. So I think I'll call them on Monday if they've not called by then

OP posts:
Original poster
KittyandTeal · 20/02/2016 14:27

I'm struggling today. Feeling sick and twitchy about the results.

I had a call from an 0207 number last night, turned out to be sales, but I was almost sick when I saw the number. It gave me a horrid flashback to being called by the screening mw to be told my results should've been there but weren't and I'd have to wait the wknd. I knew then they were positive as I knew anything after 48 hours meant they were doing a double check on a positive result.

I've spent this morning in tears. I don't know that I can do this.

OP posts:
FraterculaArctica · 20/02/2016 14:37

Can I join the thread and say I'm sorry to hear you're struggling this weekend Kitty? We haven't spoken before but I've read your very moving posts about the loss of your DD2 Flowers. I so hope you have good news about this baby soon. I'm going to the FMC for the Harmony test on Thursday and I'm nervous enough without any bad history - so happy to hold your hand if that helps. Take care x

Original poster
KittyandTeal · 20/02/2016 14:48

Please do join fratercula. It's a horridly nerve wracking wait.

Is there any particular reason you've decided to have the harmony or is it because it's more accurate?

OP posts:
Diggum · 20/02/2016 15:06

Here to hand-hold Kitty.

We lost DS to TFMR for T13 at 13 weeks in October. I'm 16 weeks now with DD2 and we had Harmony done at 11 weeks.

The wait was sickening. I was trying desperately not to think about it but every time I did (which was all bloody the time) I was imagining the worst and almost planning the aftermath- would DH have to stay with DD while I went for CVS?, who would mind her so we could travel to the UK again? It's such a terrible wait and I was held together by a thread for it.

Thankfully after 7 days I got the call with the all clear. I bawled my eyes out with pure relief. I went and bought a baby grow for new DD the day after and thought "I'll be taking you home in this". I know that's tempting fate still but I didn't care.

It is overwhelmingly likely that you will be doing the same in just a few more days.

Our early scans with DS showed he was small for dates and at our Harmony scan there was no "well, everything looks great but you never know" etc, as there was this time around. The signs are good for you so far but I know nothing can take away the weight of worry apart from that phone call.

Thinking of you and wishing you all the luck in the world Flowers

Original poster
KittyandTeal · 20/02/2016 15:17

Thank you diggum. I'm sorry you also have been through this.

Your post has made me cry again. I plan on doing the same and buying a baby grow after negative results, I will be bringing this bloody baby home!

We are in a similar situation of things look good at 11 weeks but you just never know. I know either way we'll be ok in the end, because we have been already. It's just horrendous having to wait and not know.

7 days you say? So not unrealistic for me to call on Monday? Did they call with negative results? They said to me they'd call us with high risk or no result but not a negative screen. I don't think I can wait until the 29th

OP posts:
FraterculaArctica · 20/02/2016 15:27

We had the Harmony done at 10 weeks with DS because our (large-ish) wedding was at 17+2 - given the timing of the NHS nuchal test, in the worst case scenario where we'd had bad news and decided to TFMR, this would only have been a week or so before the wedding and I wasn't prepared to take that risk. So having done it once, it seemed the obvious thing to have the test again in this pregnancy. Both DH and I are pretty risk averse and want the greater certainty and earlier result with the Harmony. I'll let you know how it goes on Thursday.

Original poster
KittyandTeal · 20/02/2016 15:40

That makes sense fratercula.

Good luck on Thursday. Do let us know how it goes (I'm sure it will be fine)

OP posts:
Diggum · 20/02/2016 16:23

They called us with the negative result Kitty. They had said they'd call either way but that it would be 7-10 days.

I'd say it would be reasonable to call on Monday to see.

Original poster
KittyandTeal · 20/02/2016 17:16

Thanks. I'll give them a call, even if the results aren't in at least I can ask if they call us either way.

Atm I'm just dreading my phone ringing, feels like it's really hanging over me.

OP posts:
ZombiesAreClammyDodgers · 21/02/2016 01:16

All the best kitty, hope you get good news when you ring on Monday.

TimeforaDietCoke · 21/02/2016 03:24

Oh Kitty I'm sorry you're feeling so anxious over the weekend Flowers . I remember waiting for the Harmony resukts this time around and getting a missed call from a London number. I was at work and got in a total panic only for the call to be a restaurant confirming a reservation Blush. The waiting is agony and I hope your resukts are available very soon.

Best of luck to others waiting for results too.

FraterculaArctica · 22/02/2016 09:30

Thinking of you today Kitty, I can only imagine how nerve wracking it will be to call them. Hope they have your results in.

Original poster
KittyandTeal · 22/02/2016 10:23

Thanks all. I'm umming and ahhing about calling now while dd1 is at preschool but dh asleep (and might not have today's results yet) or waiting until this afternoon when dh is up, dd1 is asleep and they're more likely to have the results in.

I know logically I should wait but it's killing me. I just want to know now!

OP posts:
GaryWilmotsWedding · 22/02/2016 13:15

Thinking of you Kitty. Will keep popping back to see if you have news.

Original poster
KittyandTeal · 22/02/2016 13:27

I've called fmc. They've said its all low risk Grin They won't give full results over the phone as the doc needs to go through them with us (I guess to explain low risk etc and take into account stuff from the scan) but she said its all good news and no need to worry now!

I'm not sure I've got my head around it yet. I guess we're back to being a 'normal' pregnancy in terms of risk etc now.

OP posts:
sparechange · 22/02/2016 14:00

Great news, Kitty. So, so happy for you Flowers

Original poster
KittyandTeal · 22/02/2016 14:14

Thanks. It doesn't quite feel real yet but I feel like I can go into our scan on weds a bit more light hearted.

OP posts:
TeamEponine · 22/02/2016 14:36

That's fantastic news! Flowers

GaryWilmotsWedding · 22/02/2016 14:36

Absolutely delighted for you! Really fantastic news. I bet this is the most brilliant 'normal' has ever felt!