to think that some people have NT dcs and still begrudge parents of children with SN a few extra pounds.

[posieparker]

I am very lucky all my children, so far, have perfect health and normal behaviour patterns. I couldn't care less if the family down the road got £20k per week to help with their daughter who has sn because I'm sure they'd rather have less money and a daughter who didn't suffer.

What's wrong with people?

Anyone who wants a glimpse into how horrible the DLA forms are should try the following exercise:

Sit down with a piece of paper and write every little negative thing you can think of about your child. Include everything your child finds difficult. For each point you need to add the phrase "A normal child of this age is able to do this easily." Don't put any positive comments down at all.

Now imagine doing that repeatedly for 20+ pages.

Riven, 4 nappies is ridiculous (I know you know that). Is there any chance of using the local rags against the PCT? I appreciate that this could be the wrong move for your DD.

Coppertop, yes, totally agree, it is bloody awful. And we have to do it again and again and again.....

Riven, we got 5 nappies per day. But we do have a truly lovely continence officer who - after suggesting that I BUY some extras for dd1 - realises that at nearly 9 years old, it is not possibly to BUY additional nappies as Tesco do not stock them that big..... (I feel I made inroads that day!)

ha ha ha ha ha ha @ the OP.

Someone so ignorant deserves to only be laughed at.

Here they say they give a 'contribution' to nappies. At one a day. So totally incontinent child = one nappy a day.

Actually the OP of the other thread needs to read this and this if there aren't too many big words for her.

I think this sums it up really - from the second link.

"Disabled children cost three times as much as other children to bring up. Yet their mothers are seven times less likely than other mothers to be in work, mainly because of a lack of childcare and early education provision. Small wonder that 55% of disabled children's families live in poverty and fall into credit card debt for food, heating and housing."

I didn't think that I could be properly shocked any more, but the original post I read yesterday just left me speechless.

I'm extremely lucky to have a child who isn't disabled in any way and wouldn't change this for all the money in the world.

I've declined triple testing for both my pgs which made it that far. Does this mean in some peoples' eyes that if my baby (due soon) has Downs I've 'won' some kind of prize which allows me to access a magical pot of gold? No, it means that our family will change in ways I could not yet begin to comprehend.

Sickening for parents of SN children to read.

I got as far as reading the op on the other thread and couldn't believe they were anything other than a dim troll .

I don't know anybody in rl who would ever begrudge a child with sn more help than they get at the moment never mind the pittance they currently get .

I am guessing that different areas have very varied social services with varying help available (or not available it seems )

Riven , I wish there was something we could do to help . The nappies issue seems nonsensical . Would it help if we all bombarded your local social services with letters ? Or is that a bit like pissing in the wind ?

Try filling out a DLA form for a child with terminal cancer.

Not directed at other SN mums btw. I dont compare, I wouldnt. Directed at those who think its worth having a sick or disabled child for the cash.

I'll give it all back tomorrow. Can I have DD back please.

Sorry self indulgent post but just read through the thread again and it made me feel so sad that people can be so unimaginiative.

Is anyone watching BBC1 right now??

Reminded me of this thread...

People are just full of it - I am very lucky that my kids are NT and healthy - my husband is too ill to work though but I still see myself as lucky. Because I am.

Yet it annoys me when people say I'm lucky I can work 3 jobs and he's at home with the kids. And he gets DLA. I'd rather he was well actually.

And if it hurts when people say it about my DH then it must be so much worse when its said about your DCs.

thanks Riven for pointing me to the other thread, I honestly could not have believed such utter crapola unless I'd seen it with my own eyes. The only redeeming point was that some of the responses were funny. But seriously, I'm glad it was pulled as it was incredibly offensive to me (with an NT child), let alone to people with SN children. I just wanted to say that not everyone thinks like that, there but for the grace of God,.....and also that I'm gobsmacked at 4 nappies a day, Riven. It's so wrong.