to think that some people have NT dcs and still begrudge parents of children with SN a few extra pounds.

[posieparker]

I am very lucky all my children, so far, have perfect health and normal behaviour patterns. I couldn't care less if the family down the road got £20k per week to help with their daughter who has sn because I'm sure they'd rather have less money and a daughter who didn't suffer.

What's wrong with people?

What Glastocat said.

I saw the other thread but didn't go into it as just the title made me seethe.

Even before I nursed, just common sense told me that any child/adult with SN is going to need extra help.

The idea that a family with a SN person is "lucky" beggars belief IMO.

Dh told me that the thing that finally seemed to get through to the secretary of dd's last school that her SN is not all fun and games was when he casually outlined how much money we had spent on it in the last week. Taxis to hospital appointments, chiro (not available on NHS), time off work in emergencies, wheelchair, more taxis when she collapses suddenly- and that's before you even get to the kind of SN that no ordinary childminder will take on. The woman didn't have enough sense to realise what life would be like when living with someone who is in constant pain, always feeling unwell, never able to do what your peers do (note, all SN are different). But translated into pound signs, it made some kind of sense to her. People just don't think.

Though it is good to see that this thread is populated by parents of NT children who have thought .

The OP of the other thread seemed to think that you can just bung your child with SN into ordinary childcare and swan off and have the same kind of day as everybody else. How silly of you not to have thought of that, Riven But then she probably thinks you sleep at night too.

Some people sadly see everything in terms of money and are obsessed with it. Such people refuse to understand how money dosn't necessarily mean happiness and are generally cevertous, ignorant fools. And yes, with no imagination. All they think about is where their taxes are going and why they shouldn't be going.
It must be so hard bringing up an sn kid and you need all the help you can get.

I didn't see the other thread but I've sometimes thought we were cheeky getting DLA when others have kids who are so much worse than C who is ASD after all he can walk and talk but I still don't sleep much at night because he doesn't and he is bloody hard work and he has to be up by 6am to leave for school at 7.15am and he doesn't get back until 4.45pm I see this as my respite break but hes only got this and next year left at his school.

That's the thing, even those of us who don't agree with the OP (hopefully most!) don't actually realise all of the details. It never occured to me that filling in a form could be upsetting, didn't realise you'd have to describe in detail. Suppose i just thought you filled in the basics & it was countersigned. And yet everyone is saying that. Or that a car seat would be double the price of the best car seat for an nt child.

Stealthpolarbear, the DLA form is a nightmare for any parent applying for it.
You have to fill in everything that your child can't manage without support, every adaptation you have had to make and every challenge you have in your way. It's an unbelievably negative, soul-destroying exercise, and it goes on for pages and pages.
One of the many reasons it takes so long is that things keep occurring to you that you do as a normal part of your life that others don't. But to you it is normal, so you forget.

yes, i see that now, but in my ignorance just assumed it would be straightforward, child's name, parent's name, few ticky boxes, brief details of condition...
it does sound soul destroying

My son got his DLA awarded until 16 which is next year which means we need to reapply come early next year and it will drop down to 2 yearly again problem is he goes under a new team next year and they won't know him so how can they fill in the statements properly its bad enough for me.

yes, that's the other thing, why can't you just write "same as last time I filled this in, but she's BIGGER"?
at car seats costing the same as a good second hand car. But yes, something else I didn't realise - how would she get in??

riven we filled them in every 2 years from when my son was 3 but when he reached 11 it was awarded until 16 but once it goes to adult you start from square one again

My daughters old primary teacher has a 3 year old son with quadriplegic cerebral palsy and an 18 month old DS daughter.

dd's car seat cost about £600 thank goodness for charities.
we now have a WAV if we hadn't got a full grant we wouldn't have got that.

Riven - they have only aloocated you 4 nappies per day and one sling?! For a totally dependant child??

That is utterly disgusting IMO

I know there is more you have mentioned, but these two stick out like a sore thumb as they are everyday necessities!

Can anyone tell me why each family can't have a case worker or something to come to the house, help fill in forms and advise what help is available? Surely that could make the Govt more accountable? Perhaps this could be the extra 3000 workers employed by the Govt rather than those paid to seek out benefit cheats?

It just makes me soooooo annoyed to think the bankers get our tax money but not those in need.

Didn't see the other thread (fortunately), but aren't there statistics proving that families living with SN are far, far more likely to live in poverty?

posie that would cost them too much money because more people would get what their entitled to.

what's an NT child...?

NT -neurologically typical

thank you