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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think there must be something that can help DD?

112 replies

Owwdi · 26/07/2026 18:05

Sorry for the shameless post for traffic, but things are a bit desperate.

DD is 22 and has ASD. She has always suffered with anxiety but it was manageable. She takes sertraline to help with it.

She doesn’t have many friends or what you’d call a buzzing social life, but she does have a few friends who are into similar things as her, they are scattered around the country though rather than living locally.

Just over a year ago she went to Japan with one of her friends and got really sick on the plane. She’s always suffered with travel sickness but this was the first time she was ever sick on a plane. Then for the next week (half of their holiday) she was too nauseous to go out or eat much at all, and spent that time stuck in their room. I managed to get her friend to take her to an international clinic where they gave her an anti sickness injection and some pills, and she managed to get out and about for the second week.

Since then, she has been feeling nauseous a lot. She’s been to the doctor and it doesn’t seem like there’s anything physically wrong, and both the doctor and DD agree that it’s a psychological issue.

It’s really getting in the way of her life. We’ve been paying privately for therapy for her for the last 4 months with a therapist who uses various methods including hypnotherapy. I’d say her general outlook and mood, and desire to get out and about has improved, but the feeling sick remains.

Day to day she seems ok now, but it’s literally every time there is something she really wants to do, eg a concert or convention, she’ll end up vomiting too much to be able to go. It’s happened several times now in the last year, she’ll travel to London to her friend’s place, feel ok, then the morning they need to go and do something, she starts vomiting. She’s just on her way back now after another failed attempt at having a social life and she’s feeling broken and like there’s no point in trying anymore. It’s hard to argue with her at this stage, I’ve been encouraging her to keep trying and believe that she can do it, but without fail she starts throwing up and isn’t able to go.

Even times that don’t involve travelling, like recently it was her birthday and her friends came to stay here, they were planning on going out, but DD woke up in the morning and started throwing up.

BTW she doesn’t drink or do any drugs, so there’s no way that’s an element to causing sickness.

She can’t go on like this. GP doesn’t seem helpful. Private therapy doesn’t seem helpful. I’m not sure what to do next, but she’s so low and what kind of a life is it if she can’t do anything fun without being sick?

OP posts:
Adhdmum2 · 26/07/2026 19:16

I also have CFS and I get very nauseous with migraines and often sick with them.
Recently diagnosed with 'silent migraines ' which have no head pain whatsoever but neurological symptoms and nausea and vomiting. For me, I go weak down the left sign, similar to a stroke, but many vomit consistently.
Anxiety can often bring on migraines or CFS symptoms so I wonder if the anxiety is triggering a CFS response similar to a silent migraine

Owwdi · 26/07/2026 19:16

Gonnagetgoingreturnsagain · 26/07/2026 19:12

The wanting to be a child and getting hysterical at having to grow up I can sort of relate to as in my late teens I was very stuck to my parents and would socialise and cling to them. Gradually I got more independent.

She needs plans though for growing up and doing this in a safe environment or else she’ll be stuck in this cycle.

I know. I just don’t know how she can do that.

OP posts:
Octavia64 · 26/07/2026 19:17

I have a lot of nausea due to bowel issues.

anti histamines can help with nausea. They’re the main thing in anti travel sickness pills.

won’t stop throwing up though.

Owwdi · 26/07/2026 19:18

Hedgehogsaremyjam · 26/07/2026 19:11

Did the doctor actually do any tests?

I had the same for about 20 years. The doctor was convinced it was anxiety (as was everyon in my life) and put me on antidepressants then at the last minute ordered an endoscopy and a barium swallow.

Turns out I had a sliding hiatus hernia and a problem with my oesophagus. Been medicated for a few years and it isn't perfect but it has made a huge difference.

They did blood tests.

OP posts:
DorisTheFinkasaurus · 26/07/2026 19:21

I wonder if it’s the sertraline. As time went on, my DD became increasingly nauseous until it was an every day experience. I know nausea can be a general side effect at the beginning of treatment but in my daughter’s case, it was something that came on much later and remained a fixture. It stopped the minute she got off.

Owwdi · 26/07/2026 19:22

Newmeagain · 26/07/2026 19:08

is is extreme social anxiety?

What else is she doing with her life? Is she working or going to uni? Could exercise help with managing her anxiety?

Yes I think that’s exactly what it is.

She’s not really doing anything - she has chronic fatigue and with that and the fact she’s anxious about everything and mentally a lot younger than she is, she wouldn’t be able to get a job. She tried volunteering a couple of years ago for one hour, twice a week, but often they’d send her home after half an hour because she couldn’t keep her eyes open. Literally all she has in her life to look forward to are these occasional social events with the few friends she has, and now she can’t even do that.

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Owwdi · 26/07/2026 19:24

Gonnagetgoingreturnsagain · 26/07/2026 19:09

Yes, agreed. Psychosomatic. She associates going out with being physically sick (nauseous) and almost expects this to happen every time. Therapy, hypnosis or something similar should help. How about anti sickness tablets?

The doctor wasn’t happy about her taking anti sickness tablets regularly. But I will ask them again about that as surely it’s better than not being able to leave the house.

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Mumofoneandone · 26/07/2026 19:25

Bless her, this sounds really tough for her and so tough as a mum trying to support her.
Few random suggestions, particularly as I also suffer with CFS!
Your DD can take things like Rescue Remedy - drops either alone or in water or tablets or such homeopathic nux vom. tablets in the run up to an event that can cause sickness.
I would also suggest seeing a homeopath as well to see if they can support her to overcome the anxiety sickness.
Nausea is unfortunately part of CFS - I've never suffered to the same extent as your DD but might help her understand where it's coming from. If her body is using energy to cope with an outing, it may not have the energy to digest food - hence why she is sick.
I would also advise seeing an osteopath, as there maybe things out of balance in her system that are adding to the nausea issues.
There may also be a local CFS Facebook group that she could join for support too!
Also go to the GP to see if they can prescribe any anti nausea medication - even in the short term to help your DD.
Keep trying, am sure you will find a solution sometime.

Owwdi · 26/07/2026 19:25

LapinR0se · 26/07/2026 19:15

It's possible she needs to be on a much higher dose of sertraline. What's she on now?

She’s on 50mg now. When the first Japan incident happened she’d recently upped her dose to 100mg, so we wondered if it was that. But lowering the dose back down hasn’t helped at all.

OP posts:
Owwdi · 26/07/2026 19:28

Quartzfairy · 26/07/2026 19:05

It sounds like it could be an anxiety manifesting itself as a physical symptom. I suffer from this and so do both my DC. Propanol has been a game changer for us and has saved many holidays/ weekends away/ interviews, etc. Could be worth a try.

That was the doctor’s first suggestion when I took her to the GP last year, but sadly beta blockers made no difference at all.

OP posts:
Owwdi · 26/07/2026 19:30

Adhdmum2 · 26/07/2026 19:16

I also have CFS and I get very nauseous with migraines and often sick with them.
Recently diagnosed with 'silent migraines ' which have no head pain whatsoever but neurological symptoms and nausea and vomiting. For me, I go weak down the left sign, similar to a stroke, but many vomit consistently.
Anxiety can often bring on migraines or CFS symptoms so I wonder if the anxiety is triggering a CFS response similar to a silent migraine

I think her CFS is caused by being so anxious and her nervous system being on red alert for years (she had a terrible time at school until I got her an EHCP), so yes I think this could be part of a nervous system response.

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Lentilcakes · 26/07/2026 19:31

Owwdi · 26/07/2026 19:25

She’s on 50mg now. When the first Japan incident happened she’d recently upped her dose to 100mg, so we wondered if it was that. But lowering the dose back down hasn’t helped at all.

That’s barely a therapeutic dose. Has she tried other SSRIs?

Owwdi · 26/07/2026 19:32

Mumofoneandone · 26/07/2026 19:25

Bless her, this sounds really tough for her and so tough as a mum trying to support her.
Few random suggestions, particularly as I also suffer with CFS!
Your DD can take things like Rescue Remedy - drops either alone or in water or tablets or such homeopathic nux vom. tablets in the run up to an event that can cause sickness.
I would also suggest seeing a homeopath as well to see if they can support her to overcome the anxiety sickness.
Nausea is unfortunately part of CFS - I've never suffered to the same extent as your DD but might help her understand where it's coming from. If her body is using energy to cope with an outing, it may not have the energy to digest food - hence why she is sick.
I would also advise seeing an osteopath, as there maybe things out of balance in her system that are adding to the nausea issues.
There may also be a local CFS Facebook group that she could join for support too!
Also go to the GP to see if they can prescribe any anti nausea medication - even in the short term to help your DD.
Keep trying, am sure you will find a solution sometime.

I was just thinking earlier that I should try taking her to a homeopath. I know on MN generally people don’t believe in homeopathy but I certainly do and it’s really helped me in the past. Rescue remedy is a good idea, I’ll get her some, thank you 😊

OP posts:
Owwdi · 26/07/2026 19:33

Lentilcakes · 26/07/2026 19:31

That’s barely a therapeutic dose. Has she tried other SSRIs?

No that’s the only one she’s been on.

OP posts:
Hedgehogsaremyjam · 26/07/2026 19:34

Owwdi · 26/07/2026 19:18

They did blood tests.

That won't show up if the issue is something like a hernia. I was written off as being anxious for so long it ruined so many experiences I would push for more tests

Owwdi · 26/07/2026 19:35

DorisTheFinkasaurus · 26/07/2026 19:21

I wonder if it’s the sertraline. As time went on, my DD became increasingly nauseous until it was an every day experience. I know nausea can be a general side effect at the beginning of treatment but in my daughter’s case, it was something that came on much later and remained a fixture. It stopped the minute she got off.

That’s interesting. She’s on a very low dose but maybe stopping would help. Except then her depression would get worse so it’s a gamble.

OP posts:
Dontgetstuckinthepast · 26/07/2026 19:35

Oh bless her. My teen DD is a bit like this. She can only manage college, which is literally on the doorstep and one shop when she knows it'll be quiet.

Anyusernamewilldo8963 · 26/07/2026 19:35

If the GP is against long term anti sickness, is it possible to get some and after she's had a few and they've worked mix in some type of tablet that looks similar but not dangerous to take obvs and see if the placebo affect would work? Given it sounds psychological then if she doesn't know the tablet shes taking isnt actually an anti sickness then hopefully just the act of taking the placebo would help?

Owwdi · 26/07/2026 19:35

Hedgehogsaremyjam · 26/07/2026 19:34

That won't show up if the issue is something like a hernia. I was written off as being anxious for so long it ruined so many experiences I would push for more tests

She definitely is anxious though, she always has been, so I’m more inclined to think it’s anxiety related.

OP posts:
Millytante · 26/07/2026 19:38

Owwdi · 26/07/2026 19:09

She has chronic fatigue syndrome too.

I was going to suggest this anyway, but given her CFS too, then I definitely think she’d do well to try Pregabalin, principally for extreme anxiety, for which it is quite shockingly effective.
But it’s very good with pain and for energy loss too.
[It has drawbacks/risks but I believe that these are well worth it when your whole life is st a standstill snd very much stuck]
Certainly that Sertraline isnt doing any good at all.
Personally I’d ditch, or definitely change, the therapist too.

Hedgehogsaremyjam · 26/07/2026 19:40

Owwdi · 26/07/2026 19:35

She definitely is anxious though, she always has been, so I’m more inclined to think it’s anxiety related.

It's of course entirely up to you and I wish your daughter well but if there is a chance it could have a physical cause and there is her situation is virtually identifical to mine I just don't understand why you wouldn't push to rule out all physical causes before assuming it is anxiety.

Anyway wish your daughter well from me I know what it like to be her and it is miserable I wish someone had told me that it could be physical 20 years ago but like this thread everyone assumed anxiety.

I'll bow out

Owwdi · 26/07/2026 19:42

Millytante · 26/07/2026 19:38

I was going to suggest this anyway, but given her CFS too, then I definitely think she’d do well to try Pregabalin, principally for extreme anxiety, for which it is quite shockingly effective.
But it’s very good with pain and for energy loss too.
[It has drawbacks/risks but I believe that these are well worth it when your whole life is st a standstill snd very much stuck]
Certainly that Sertraline isnt doing any good at all.
Personally I’d ditch, or definitely change, the therapist too.

Thank you, I’ll do some reading about that. I’m going to phone the GP tomorrow and have another chat with them.

OP posts:
GaaNeen · 26/07/2026 19:43

From what you have said it sounds like long standing anxiety - maybe related to ND

a trigger situation where she was nauseas / sick - on a relatively long holiday a long way from home - I’m sure that was very overwhelming

then the development of an anxiety disorder - related to fear of nausea / vomiting / losing control when away from home - social events -

so almost a mix of social anxiety / panic disorder and emetephobia -

her anxiety will lead to nausea of course, which leads to more anxiety …

I would suggest a medication review -
as PP said she is on a barely therapeutic dose of an SSRI - she may benefit from trying another one at a more effective dose
and change therapist
you need one who understands emetephobia- which is one of the more complex anxiety disorders - and will be used to tailoring therapy for ND -

best wishes

FortyFacedFuckers · 26/07/2026 19:44

I had this from I was around 6-20 and it was social anxiety every Christmas/birthday/party/social gathering I would be vomiting all day, the only thing that helped was getting anxiety under control (to an extent)

Owwdi · 26/07/2026 19:44

Hedgehogsaremyjam · 26/07/2026 19:40

It's of course entirely up to you and I wish your daughter well but if there is a chance it could have a physical cause and there is her situation is virtually identifical to mine I just don't understand why you wouldn't push to rule out all physical causes before assuming it is anxiety.

Anyway wish your daughter well from me I know what it like to be her and it is miserable I wish someone had told me that it could be physical 20 years ago but like this thread everyone assumed anxiety.

I'll bow out

I do appreciate your suggestion, and I will add it to the list of things to raise with the GP, we have nothing to lose by exploring that option.

OP posts: