I agree more assessments (not palliative) should be face to face and they are too reliant on 'self reporting'. I put in a claim for PIP in 2022 due to having arthritis, as my consultant said it would enable access to things like priority queuing at attractions etc. I didn't think I would qualify, my medical letters were very brief - just confirming my diagnosis, blood test results etc, nothing about my mobility, care needs etc. All the information they based their decision on was what I put on the form and what I said in a Teams call.
After a 3 years I was asked to put a review form to basically confirm nothing had changed and my claim was renewed, no evidence needed, and I just received a letter saying it wouldn't be reviewed until at least 2032. So 10 years of claims, worth over 60k, based 90% on what I wrote on a form and a 30 min call.
As a health professional, I was often asked to write supporting statements on DLA forms. Our manager has now told us not to after getting several complaints from parents for writing 'the wrong thing', being blamed when not awarded, being asked to change our statements etc. I cannot of course know what the family go through as home, I can only write as a professional opinion of a child's mobility.
I don't judge them, the nhs is struggling to provide decent amounts of therapy, and families use this DLA money to top up with private therapies, and try to get it however they can to meet their child's needs, but equally I cannot put my professional licence at risk by writing something I do not believe to be true.
A lot also comes down to skill in writing forms. Children who we expect to get higher awards often end up with lower and vice versa, and a lot seems to be based on how much experience, support and how articulate the parents are rather than the child's need levels
The system definitely needs an overhaul so those most in need get support quicker, and so assessments are more robust. Ideally these would be home visits so assessors can see the reality of a person's life, but the capacity just isn't there.