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AIBU?

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Any idea what this could be, Dr doesn’t know!

194 replies

hubbabaloo · 17/04/2026 16:15

DD (8) has had swelling in her face all week. Drs originally thought it was down to her dermatitis so they prescribed some cream but it hasn’t made a difference. The swelling has been getting worse everyday, to the point this morning she could barely open her eyes, she also has swelling around her nose so she’s breathing through her mouth. It starts off worse in the morning and gets slightly better through the day but there is still some swelling there at the end of the day.
When we saw the Gp this morning her neck was also really swollen and he said every gland is up. She has no temp but a raised heart rate and says she doesn’t feel well but can’t really describe why. Dr said he has no idea, it could be something viral but her body is obviously trying to fight something as her glands are up. He said it will either get worse, in which case go to a&e or the body will fight it on its own.

anyone else’s child had this and have any clue what it could be?

OP posts:
cornflakecrunchie · 18/04/2026 22:41

So pleased things are much better.

smallglassbottle · 18/04/2026 22:50

nevernotmaybe · 18/04/2026 22:16

That is exactly the correct response to what he can see. He can't refer everyone as an emergency who looks exactly like that situation is applicable, but with the suggestion "it's worse at other times" from them who has a bias, or a parent with a worse bias. There would be thousands, more, entering hospitals daily as it is very normal and the entire system would collapse.

He missed a strep throat and sinusitis, both of which can be identified if a proper examination is carried out!

DownyBirch · 18/04/2026 23:02

So what are they doing about the cyst?

changenameagain555 · 18/04/2026 23:17

hubbabaloo · 18/04/2026 18:54

@Gloriia yes I agree. If I’m honest some of the drs we saw at the hospital weren’t much better! Two different drs told us her tonsils were infected.. despite the face she had her tonsils removed 3 years ago, when I mentioned this they said “oh yeh I can see that now”. Also since we’ve got home I’ve read her discharge notes and they’ve also diagnosed her with strep which wasn’t mentioned to us once whilst we were there. I’m guessing they are just so overstretched these things can happen but it’s a bit of a worry!

I presume she doesn’t have a rash like sandpaper anywhere as you didn’t mention it. DS had a swollen face when he had scarlet fever which is caused by strep.

Swiftie1878 · 18/04/2026 23:35

I am glad that your daughter has some meds and will hopefully recover quickly now, but this is just another thread showing the NHS is NOT fit for purpose. Your experience is truly shocking, and we should all be grateful that her symptoms were not for something much more serious.

Womblewombat · 18/04/2026 23:42

hubbabaloo · 17/04/2026 16:15

DD (8) has had swelling in her face all week. Drs originally thought it was down to her dermatitis so they prescribed some cream but it hasn’t made a difference. The swelling has been getting worse everyday, to the point this morning she could barely open her eyes, she also has swelling around her nose so she’s breathing through her mouth. It starts off worse in the morning and gets slightly better through the day but there is still some swelling there at the end of the day.
When we saw the Gp this morning her neck was also really swollen and he said every gland is up. She has no temp but a raised heart rate and says she doesn’t feel well but can’t really describe why. Dr said he has no idea, it could be something viral but her body is obviously trying to fight something as her glands are up. He said it will either get worse, in which case go to a&e or the body will fight it on its own.

anyone else’s child had this and have any clue what it could be?

Get her checked out for Nephrotic Syndrome.

Robogob · 18/04/2026 23:54

It bears all the hallmarks of Superior Vena Cava Syndrome. Have they done a chest X-ray or CT?

Crwysmam · 19/04/2026 00:29

There is a strange virus doing the rounds. I picked it up last week. It caused nasal congestion and sinusitis with full on laryngitis. Weirdly I didn’t have a sore throat or a runny nose just a lot of thick green discharge that was hanging around my naso pharynx.

I’ve only just got my voice back after 10days of whispering.

Try steam, either sitting in the bathroom with hot shower running. It helps to loosen congestion in the sinuses. Benadryl is good, but keep up with the calpol.
Avoid ibuprofen since it can make the swelling in nasal mucosa worse and prevent drainage from the sinuses.

nocoolnamesleft · 19/04/2026 00:44

I do wish people would at least read the OP's updates.

TeaBiscuitsNaptime · 19/04/2026 01:54

I know they ruled out allergies but it sounds like antihistamines could help to me

SparklyLeader · 19/04/2026 03:35

If it is impacting her breathing, even a little, take her to the hospital. They will assign a specialist. An essential shrug from your doctor is not OK. Hospital time.

Bobloblawww · 19/04/2026 03:44

You didn’t think a cyst on her face might be relevant? Why hasn’t it been removed?

hubbabaloo · 19/04/2026 06:30

Bobloblawww · 19/04/2026 03:44

You didn’t think a cyst on her face might be relevant? Why hasn’t it been removed?

It didn’t occur to me to mention it because it’s been something that has been there for over 6 months and we’ve been told it’s a dermoid cyst that is nothing to worry about. She has been referred to have it removed but the waiting list is over 2 years.

OP posts:
Gloriia · 19/04/2026 07:35

nevernotmaybe · 18/04/2026 22:16

That is exactly the correct response to what he can see. He can't refer everyone as an emergency who looks exactly like that situation is applicable, but with the suggestion "it's worse at other times" from them who has a bias, or a parent with a worse bias. There would be thousands, more, entering hospitals daily as it is very normal and the entire system would collapse.

No but at the very least the gp could've started antibiotics and the steroid spray with the caveat seek advice if any deterioration. Granted they shouldn't treat everyone with abs but with a dc with an elevated heart rate and inflammation it is the very least they should have done.

DownyBirch · 19/04/2026 09:44

Is she any better today, OP?

ThrivingNotDiving · 19/04/2026 14:00

@Gloriia I’m puzzled - from your posts you clearly have no knowledge of medicine, but you’re so quick to criticise the GP?

smallglassbottle · 19/04/2026 17:02

ThrivingNotDiving · 19/04/2026 14:00

@Gloriia I’m puzzled - from your posts you clearly have no knowledge of medicine, but you’re so quick to criticise the GP?

I do have some knowledge of medicine and I'm criticising the GP so she's not incorrect in doing so.

Gloriia · 19/04/2026 17:31

ThrivingNotDiving · 19/04/2026 14:00

@Gloriia I’m puzzled - from your posts you clearly have no knowledge of medicine, but you’re so quick to criticise the GP?

I have experience thanks, I certainly would not have sent a sick child away with a 'dunno wait and see' approach.

A&E departments all over are bogged down doing GP work for them.

Mackerelfillets · 19/04/2026 22:44

? Facial cellulitis. My sister needed IV antibiotics.

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