What’s wrong with me, hospital clueless

[elm26]

Yesterday at 1pm, I put my 6 month old on the rug with his toys and went for a wee.

As I was walking back I had a sudden severe pain in my right side radiating into my lower back and up to my shoulder, I was in agony.

I called DH who was luckily only on a job 15 mins away, he came straight home and took one look at me and called ambulance, I was shouting out in pain they gave me gas and air and morphine.

I had an emergency CT when dye last night and also have a catheter as lost the ability to wee. Nothing showed on CT, they got me settled on morphine and today I’ve had a transvaginal scan which shows ovaries and womb look normal.

Gynae can’t find a reason so they’ve stopped painkillers and just giving me paracetamol but somethings wrong I feel like somebody’s twisting my insides. The gynae consultant was horrible and said the surgical team will come see me if they think it’s worth it?? So I’m waiting for that if they come.

I’m in so much pain and genuinely scared they’ll send me home not knowing what is wrong with me.

Has anyone has anything similar?

Have they checked you for bowel obstruction and bladder retention? They need to catheterise you immediately if you’re unable to pass urine. That is actually really dangerous.

I'd put money on this being kidney stones. Very common after pregnancy. Pain was like nothing i had experienced in my life.

Just to say that if it is Cauda Equina, they've only got 24-48 hours to operate, as it is a surgical emergency. Ask about this, as it really is serious. I had it, and it was a blue light middle of the night transfer from our local hospital to the neurosurgical unit about 40 miles away. I'd had the surgery by 6am (which worked.)

Endometriosis?

Are your bloods flagging anything untoward? Don’t let them discharge you - somethings clearly not right so stick to your guns.

It’s generally reckoned to be an absolute nightmare trying to persuade the surgeons to actually see a woman of childbearing age with abdo pain. They always claim it must be a gynae problem. Misogyny in medicine.

This. Scans only showed “free fluid” nothing else.

Sounds like my daughter who had this with gallstones and had her gallbladder removed

That's exactly what happened to me when I discovered my gallbladder needed to come out. Usually can be diagnosed with a simple ultrasound

FIL went for a wee a couple of years ago and minutes later was sweating with pain, couldn't walk or move and then couldn't urinate. It was kidney stones and they'd lodged somewhere when he went for a wee.

Ru on MJ sounds like gallstones

Gallstones, kidney stones, kidney infection, diverticulitis or spinal would be my guesses

Pain sounds absolutely classic for ureteric colic.
What scan did they do?
Non-contrast CT KUB to diagnose and find the little bugger.
Hope you’re feeling better soon.

It sounds like gallbladder to me. I went to A&E with horrific pain which I’d had for 24 hours but was sent home with a kidney infection. 5 days later I could hardly walk and ended up on a drip for a week and emergency gallbladder removal.

I was going to go out on a limb here and suggest it could it be a pedunculated fibroid that's twisted ? ( I had that and it was very painful) However, I see you've had a transvaginal scan and all looks normal.

No other ideas.

Hope you feel better soon x

I do have endometriosis and have had 3 operations for it but never pain this bad. My usually very calm rational DH was an absolute mess waiting for the ambulance, I was screaming and crying, being sick. I wasn’t even like that in childbirth. I’ve still got catheter. Pain management team and surgical team both refused to see me today as not ruled an emergency even though pain management gave the go ahead ovwr the phone for morphine as and when I need it as paracetamol and codeine aren’t touching it. I just woke up after being knocked out by the morphine and the pain is right back, it’s relentless and I’m so upset I just know tomorrow they’re found to discharge me home because it’s “not gynae” related. I miss my kids, DH and my bed but I cannot go home not knowing what this is and scared it’ll happen that intense again.

This is what I was thinking. Cauda equina syndrome is a medical emergency and causes you to be incontinent. Ask the question OP. Hope you feel better soon. 💐

This was me last week. Kidney stone lodged in my urethra blocking my kidney and became infected. Never felt pain like it and came on so suddenly. I had a stent fitted and iv antibiotics. But nothing touched the pain, codeine, morphine nothing and I was being sick too. Definitely ask them to check
for stones x

Why on earth the fact that it's not gynae related a reason to discharge you?How about all the other things that can cause these symptoms? Are these somehow irrelevant just because they're not gynae related? It doesn't make any sense.

Cauda equina?

Don't do this. AI simply summarises a lot of Internet hot air and scares people. Press for a proper diagnosis and proper pain relief.
And don't get your medical advice from here.

Not an expert but doesn’t sound like you should be discharged. Can you ask for a second opinion using Martha’s law?

The pain you describe can be gall bladder pain - sometimes people's stones don't appear on CT scan. Women say they would rather give birth twice in a row than have gall bladder attacks.

Did they do a contrast (add a dye into your veins) when they did the CT? Do you have family history of gall bladder problems? Its more common after pregnancy as hormones encourage development of the stones.

I am not sure though about the no wee.

But regardless, have you heard of the NICE guidelines? They are the guidelines in the UK that doctors/hospitals have to follow - if you can work out how the hospital is meant to treat you in the NICE guidelines and start dropping this into conversations ie the NICE guidelines say X then the hospital has to listen to you.

Did your blood test show higher than average liver results? if yes then drs should be considering Magnetic resonance cholangiopancreatography to check for gallstones.

Diagnostic tests | Diagnosis | Gallstones | CKS | NICE

Suspecting gallstone disease | Diagnosis | Gallstones | CKS | NICE

from the NICE website:

• Some people with gallstone disease do not have classical symptoms or signs and present with mild and varied symptoms such as indigestion, intolerance to fried or fatty food, or epigastric pain.
• Consider gallstone disease in any person with any abdominal symptom that is not confirmed to be due to another cause.

as well as:

• An abdominal ultrasound examination — this may confirm the presence of one or more gallstones.
• The absence of stones on an ultrasound scan does not exclude their existence.