SEND - children’s needs to be reassessed from year 6 2029?

[missbish]

Are they taking the piss? After the struggles parents have trying to secure support for their child, they’re then going to threaten to take it away once they’re due to go to secondary? Ds goes to secondary this year so I don’t think it will effect him but I am so angry for those it does effect.

SEND doesn’t go away. Kids that lose provision will still need it and teachers will be the ones expected to provide it which means the rest of the class will find they lose out.

Because you’re ignorant as regards PDA and autism.

I think:
Older parents
Children lacking a basic family structure - it used to be mum, dad, a few kids. Very clear hierarchy. A lot of children live with a single nervy parent and feel they are also an adult. The parent doesn’t know how to discipline.
Parents being urged to gentle parent and see everything as a disability
A void left by smacking where nobody knows how to discipline (no, I’ve never smacked and don’t agree with it)
Too much screen time and tablets rewiring toddler’s brains and blocking them from learning social skills
Junk food exacerbating hyperactivity and bad behaviour
Helicopter parenting creating anxious kids

So if I don’t believe every bad behaviour is autism or PDA, I’m ‘ignorant’?

There are zero signs this child has been properly parented.

I am absolutely sure your son's EHCP should not be taken away and I will stand with you to fight for his rights - he definitely should have the support he needs to attend school, and I wasn't saying he shouldn't. I also believe that my DC has just as much right to support to be able to get an education as yours does, so I hope you would stand with me on that.

Google what PDA actually is.

@Playingvideogames are you running for parliament?
If not, why do you think remarking in the fashion that you are repeatedly doing is helping parents facing the potential changes proposed?

What do you want to happen about children who have special educational needs? I don’t need to hear that it’s expensive and “can’t continue” - what exactly do you propose?

What is a result from school? A job? Is that the dole purpose of education?

She was diagnosed with PDA! Educate yourself

There’s no definitive test for PDA. It’s based on behaviours - the same behaviours caused by a lack of boundaries.

The only option is what they’re doing. Massively curtailing the legal obligations and special school places for SEMH, providing some basic support via mainstream and crossing their fingers. There is no perfect answer.

Absolutely!

I can see this from both sides. Before DS was placed on the autism pathway we were signposted to Occupational Therapy and we attended parenting classes. DH and I - 40 at the time, teachers - stuck out like a sore thumb amongst the other parents. However my brother was a school refuser in the 80s and would physically fight my parents if he “didn’t get his own way”. It’s clear to see now he’s autistic.

Which part of your list is responsible for children with cerebral palsy? Arthrogryposis? Genetic mutations that are de novo? Osteogenesis imperfecta? Rhett’s syndrome? Angel man syndrome? Mitochondrial disorders?

Why did you stick out like a sore thumb? If you don’t mind my asking.

What % of EHCPs do they make up?

I mean, virtually everyone contributing to this and other EHCP threads have children with ASD/ADHD. Not Rhett/Down/Angelman syndrome.

We can be fairly sure fewer children will be legally entitled to as much provision as they are now, because we cannot continue spending the amount being spent currently, so whatever happens will be building towards a system where less money is spent.

Because there isn't enough money. The bit that all the parents going on about legal entitlements and needs just wilfully ignore, you simply cannot have something if there's no money to pay for it.

A bit like some amazing medicines and treatmentsthat the NHS do not fund because they are simply too expensive - it's deemed that while they could give benefit the cost is too high to justify.

Because lots of the children weren't in school - they were truanting, kept home to watch younger children, in trouble, in borstal, you name it.

EHCPs are given and based on need not diagnoses.

Well the government isn’t so sure on that. They write “we expect the number of children and young people needing a Specialist Provision Package, and hence an EHCP to access support, will return to around today’s level by 2035.” They also claim the changes will involve spending more.

As the parent of DC who takes medication that was originally not funded by the NHS, decisions around medications and QALYs are far more nuanced than only looking at cost.

Mainly that we were much, much older than the other parents and engaged with the therapist in discussions and completed our “homework”.

Again, EHCPs are based on needs, not diagnosis.

I have 3 DC with EHCPs. The one with the most complex needs, DS1, does not have ASD or ADHD. DS3 does have ASD, but even if he didn’t, he would still meet the threshold for an EHCP.

Except you won't die if you don't get a maths GCSE and lots of children without any defined SEN won't get one. But swimming is a matter of safety.

My son with an EHCP also doesn't have ASD or ADHD.

I have 3 dc with autism and adhd and other diagnoses and only one has an EHCP.