Hidradenitis suppurativa

[Mitchywoo]

Afternoon all.

Does anyone have much experience with Hidradenitis suppurativa?

I have had it very mildly for years and it’s never been to the point I can’t get on with normal activities.
but my recent flare has been awful. I felt a small bump on inner thigh on Friday but by Saturday it was about 3inches round (flat) but no head to it. Just under the skin.

ive mostly been able to take painkillers and get on but today its gotten the best of me. I think its gone down abit but the skin around is swollen and inflamed.

I haven’t got through to book a GP appointment yet but have sent off a e-consult.

But in the meantime has anyone got any tips? It’s hurting to walk and I have to do the school run soon :(

I have it mildly, but saying that, I have had two cysts surgically in groin removed. I stopped smoking and lost weight (thanks to monjouro privately, but wasn't ever drastically overweight) which has helped. I take Lymecycline twice a day (and have done for years) and use a course of clarithromycin for flare ups. I use dermol 500 as a body wash as recommended by the doctor. I got referred to the HS clinic at guys and st Thomas's which I would recommend. It took me years to be diagnosed and only because I went to a private doctor after looking up vulval dermatology. Most GPs I've seen have been really unhelpful.

To everyone who replied thankyou!

I have an appointment with the nurse at my GP tomorrow and hopefully will get some help.

Over the course of the evening it suddenly came to a head and started to drain. It’s very slow but a lot of the pressure and pain has started to go down!