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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think this is the start of type 1 diabetes

551 replies

NeuroSpicyCat · 10/07/2025 00:11

Hand hold please.

My 13 year old son informed me tonight that he wet the bed last night.

This has never happened before.

His late father had Type 1 diabetes which started around this age.

My son also has a sore tummy (that comes and goes) and sore calves (that come and go).

He seems to have low mood also.

He's always been really thin.

My husband (his stepdad) is driving to A&E with him right now. I’m staying home with the other 4 children. (I can’t drive).

I’m autistic and scared. I’m so worried for him. AI said he is highly likely to be diagnosed given his symptoms and family history, and he’s likely to be urgently admitted to hospital.

Has anyone been in a similar situation?

OP posts:
Thread gallery
10
TheFairPoet · 11/07/2025 09:23

You seem to be basing your insistence that the 2022/3 guidance that nhs England uses currently and that is clearly displayed on their website as the current guideline on some information about eye injuries? As opposed to A&E triage which is what is actually being discussed? Actual a&e triage works on a 5 level system, not 2. And they do not send home directly from triage. They redirect to primary care. Which is not done at night when primary care is closed.

Goldengirl123 · 11/07/2025 09:25

Thedevilhasfinallycaughtupwithhim · 11/07/2025 09:19

They didn’t know his blood sugar levels without visiting the hospital and it was not worth risking his life to wait for a GP appointment

The problem that people have is that he didn’t have any symptoms. He wet the bed once

Thedevilhasfinallycaughtupwithhim · 11/07/2025 09:26

Goldengirl123 · 11/07/2025 09:25

The problem that people have is that he didn’t have any symptoms. He wet the bed once

His deceased dad had type 1 diabetes so they’re extra cautious.

Goldengirl123 · 11/07/2025 09:27

Thedevilhasfinallycaughtupwithhim · 11/07/2025 09:26

His deceased dad had type 1 diabetes so they’re extra cautious.

Yes I undetstand that but he didn’t have any symptoms

Rosscameasdoody · 11/07/2025 09:30

TheFairPoet · 11/07/2025 09:23

You seem to be basing your insistence that the 2022/3 guidance that nhs England uses currently and that is clearly displayed on their website as the current guideline on some information about eye injuries? As opposed to A&E triage which is what is actually being discussed? Actual a&e triage works on a 5 level system, not 2. And they do not send home directly from triage. They redirect to primary care. Which is not done at night when primary care is closed.

Nope that was a link that came up as I posted. The copy and paste was verbatim from NHS. Can’t be bothered with this any more, it’s pointless.

Thedevilhasfinallycaughtupwithhim · 11/07/2025 09:32

Goldengirl123 · 11/07/2025 09:27

Yes I undetstand that but he didn’t have any symptoms

He wet the bed, had sore calves, low weight and a family history of diabetes.
It’s not worth the risk to ignore it.

Pricelessadvice · 11/07/2025 09:37

Rosscameasdoody · 11/07/2025 09:01

Hysterical ? Really ? And none of what you’ve said here addressed what I posted.

Because none of what you have referenced is relevant. And we aren’t talking about urgent care centres, or eye problems, we are talking about A+E.
I agree with your later comments on the thread that getting a GP appointment can be difficult, but if the OP explains that symptoms and the family history of T1, the GP will make an appointment quickly. Particularly for a child.

And people can argue all they want that T1 is dangerous (no-one is saying it isn’t) but other than occasional bed wetting and a stomach ache, there are no other symptoms to point to this being a situation that requires EMERGENCY/URGENT treatment.

I am astounded and saddened that people still believe it’s ok to abuse A+E because they ‘might have something’ based one 2 symptoms. Particularly when the patient doesn’t even feel unwell. I feel like banging my head against a brick wall.

My father wet himself at night randomly a month ago, should we have rushed him to A+E in the middle of the night, despite him being fine, because his own parent had diabetes?

Thedevilhasfinallycaughtupwithhim · 11/07/2025 09:41

Pricelessadvice · 11/07/2025 09:37

Because none of what you have referenced is relevant. And we aren’t talking about urgent care centres, or eye problems, we are talking about A+E.
I agree with your later comments on the thread that getting a GP appointment can be difficult, but if the OP explains that symptoms and the family history of T1, the GP will make an appointment quickly. Particularly for a child.

And people can argue all they want that T1 is dangerous (no-one is saying it isn’t) but other than occasional bed wetting and a stomach ache, there are no other symptoms to point to this being a situation that requires EMERGENCY/URGENT treatment.

I am astounded and saddened that people still believe it’s ok to abuse A+E because they ‘might have something’ based one 2 symptoms. Particularly when the patient doesn’t even feel unwell. I feel like banging my head against a brick wall.

My father wet himself at night randomly a month ago, should we have rushed him to A+E in the middle of the night, despite him being fine, because his own parent had diabetes?

Your father needs to be checked for prostate cancer

TheFairPoet · 11/07/2025 09:44

Rosscameasdoody · 11/07/2025 09:30

Nope that was a link that came up as I posted. The copy and paste was verbatim from NHS. Can’t be bothered with this any more, it’s pointless.

I’ve sent you the whole policy. The link to how to find the policy. The place to search independently if you prefer to do so. You have a real problem admitting you’re wrong, but at least you’ll know better for next time.

UsingAMansNameInAWomensWorld · 11/07/2025 10:38

KennysLook · 10/07/2025 22:34

You do realise what could happen if people start going to A&E just because AI told them to, right?

You’re aware the original poster said her DS's symptoms have been on and off, which makes an earlier GP visit the right choice? The only new symptom she observed was one time bed wetting.

It’s not so much that she sent her DS to A&E with his stepdad, but that she did it because AI told her to, and that’s the worrying part.

If everyone with low health literacy starts asking AI which service to use instead of calling 111, A&E will end up even more overwhelmed and people with real emergencies will have even longer wait times.

Use 111 to access the right service, unless life threatening. Please.

This.

Entirely this.

She refused to call 111, an actual medical line, and instead used AI which isn't able to think for itself and scrapes the Internet for answers. Which means threads like this full of "omg he'll die if you don't take him right now" influence it

UsingAMansNameInAWomensWorld · 11/07/2025 10:48

Rosscameasdoody · 11/07/2025 09:30

Nope that was a link that came up as I posted. The copy and paste was verbatim from NHS. Can’t be bothered with this any more, it’s pointless.

You're highlighting the exact issue with people using Google and AI to get medical diagnosis

You were provided the information in 2 different ways for the actual guidance.

You decided this was incorrect and used Google

Google gave you a link to a specific area, clearly eye health and not A+E, but because it agreed with what you wanted to say then you used that as proof you were right

You then double down on being right and say you refuse to comment further because it's "pointless"

MeowCatPleaseMeowBack · 11/07/2025 11:23

Not a single person has argued that undiagnosed Type 1 isn't a serious condition, so I don't know why posters keep repeating it. What people are saying is that a teenager having a stomach ache, sore legs, and wetting the bed once is not sufficient grounds to rush him to A&E with suspected Type 1 because Chat GPT said so.

Pricelessadvice · 11/07/2025 11:53

Thedevilhasfinallycaughtupwithhim · 11/07/2025 09:41

Your father needs to be checked for prostate cancer

He has had prostate cancer and treatment a few years ago. He has 6 monthly bloods to check he is still free of it x

Pricelessadvice · 11/07/2025 11:55

UsingAMansNameInAWomensWorld · 11/07/2025 10:48

You're highlighting the exact issue with people using Google and AI to get medical diagnosis

You were provided the information in 2 different ways for the actual guidance.

You decided this was incorrect and used Google

Google gave you a link to a specific area, clearly eye health and not A+E, but because it agreed with what you wanted to say then you used that as proof you were right

You then double down on being right and say you refuse to comment further because it's "pointless"

Thank you! I feel like I’m banging my head against a brick wall with this poster!

MeowCatPleaseMeowBack · 11/07/2025 12:01

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

UsingAMansNameInAWomensWorld · 11/07/2025 13:03

Pricelessadvice · 11/07/2025 11:55

Thank you! I feel like I’m banging my head against a brick wall with this poster!

I've reread what they shared and it doesn't even prove their point!

It actually backs up that you may be sent to the GP/Urgent Care rather than kept in A+E

justasking111 · 11/07/2025 14:43

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

Rude

Do you really believe 111 is staffed by experts? They're going off a script akin to AI.

Thedevilhasfinallycaughtupwithhim · 11/07/2025 15:02

justasking111 · 11/07/2025 14:43

Rude

Do you really believe 111 is staffed by experts? They're going off a script akin to AI.

I’ve never phoned 111 and not been told to go to A&E.

321user123 · 11/07/2025 15:03

Wow OP, I empathise with your stress and I’m am so so shocked at how ignorant some of the replies are on this thread.

My advice first and foremost OP would be to buy a glucometer online with strips, it shouldn’t set you back more than £15-£30 and keep that in the back of a cupboard and if further symptoms are seen later on, you can just do a prick yourself and keep an eye on it then.

One thing to remember is that at its onset T1D it’s a “degenerative” condition, it takes time for your immune system to kill all of the pancreas beta cells, it’s not a light switch. For some people from the start of the process till they need insulin can take a month or it can take 6. During that time symptoms get progressively worse and blood sugars can be normal as your pancreas is still producing insulin.
a good test for early catching would be to test blood sugars about 1hr after a heavy carb meal and see if blood sugars as back to normal or not.
alternatively you could purchase something like a Freestyle Libre and let him wear it for the 2 wks and see if anything abnormal is seen. (To be fair this might be a good test for now).

While it is true that T1 has a genetic component to predisposition, it doesn't mean you will certainly develop the condition. However, having a parent and especially the father, does give you a higher chance to someone without a familial T1 diagnosis.
However, many T1s do not have any T1s in their family at all, I am one of them.

If it gives you a little bit of reassurance, I’ve been a T1 for over 20yrs now (I was diagnosed while still in primary) and I am rather healthy, fit, woman. I have not developed (knock on wood) any serious complications and my management in my early years was absolutely shocking (I didn’t have a lot of guidance, but that’s another story) and I only really took a much better grip on things in the past 6-8yrs.

One thing I have to say is that getting diagnosed today vs even just 5years ago is that you have so much access to technology that honestly makes life so so so much easier.
From insulin pumps to continuous glucose monitors to automated systems where insulin is adjusted based on glucose readings without your input and what’s best is that you’re usually on the fast track for these systems if you’re under 17 as soon as you’re diagnosed.
Are they perfect? Heck no, but I’d take them any day to the shit show (pardon my french) I had to endure 20yrs ago.

If it does turn out that he does have T1 I would recommend to look into T1 studies immediately as they often have very interesting reversal technologies they’re testing - but you have to contact them within a few weeks after being diagnosed (less than 3 months) and sometimes it can be too late.

Lastly, if this is something that worries you a lot and you’d really rather know if it’s something you need to prepare for in the near future, there are specialised blood tests that have been developed in the states which can rather accurately predict if you will develop T1 in the next 2-5years.

These would of course be out of pocket, but would be a few hundred pounds last I checked.
They’re called Islet autoantibody panels and test: GAD, IA-2, IAA, ZnT8. In fact, it might be worth getting in touch with the research companies as they might advise for best path forward as if autoimmune activity is found, they can advise for preventative treatment.

Good luck OP

Rosscameasdoody · 11/07/2025 17:08

UsingAMansNameInAWomensWorld · 11/07/2025 13:03

I've reread what they shared and it doesn't even prove their point!

It actually backs up that you may be sent to the GP/Urgent Care rather than kept in A+E

I didn’t ‘decide’ anything. I posted from the NHS and Google came up with a random link, as it very often does on MN. The site I quoted was nothing to do with eye care it was NHS and clearly stated the triage process. I’m very far from ‘you can’t argue with stupid’, thanks. Educated to degree level and spent twenty years as a disability outreach worker. Have spent enough time in A&E with various clients and a disabled DH to know that you don’t always see a doctor before being discharged from A&E. This is a toxic thread - throwing insults in the face of evidence you don’t agree with. I’m out. Pathetic.

Rosscameasdoody · 11/07/2025 17:18

UsingAMansNameInAWomensWorld · 11/07/2025 13:03

I've reread what they shared and it doesn't even prove their point!

It actually backs up that you may be sent to the GP/Urgent Care rather than kept in A+E

Or referred back to your own GP, or sent home with a prescription (which a nurse clinician can provide) and instructions for self care. None of which are seeing a doctor in A&E before being discharged. Which is the point.

Rosscameasdoody · 11/07/2025 17:22

UsingAMansNameInAWomensWorld · 11/07/2025 10:48

You're highlighting the exact issue with people using Google and AI to get medical diagnosis

You were provided the information in 2 different ways for the actual guidance.

You decided this was incorrect and used Google

Google gave you a link to a specific area, clearly eye health and not A+E, but because it agreed with what you wanted to say then you used that as proof you were right

You then double down on being right and say you refuse to comment further because it's "pointless"

Didn’t use AI. Navigated to an NHS website to evidence what I already have first hand experience of. Google didn’t give a link to the website and if you check it out it didn’t give any of the information I quoted - it came up as a random link as I posted. Not commenting further - I’m out. This is a toxic thread and this has turned into a derail.

UsingAMansNameInAWomensWorld · 11/07/2025 18:49

justasking111 · 11/07/2025 14:43

Rude

Do you really believe 111 is staffed by experts? They're going off a script akin to AI.

Real people are not like AI

They can also make bookings for A+E etc

UsingAMansNameInAWomensWorld · 11/07/2025 18:49

Thedevilhasfinallycaughtupwithhim · 11/07/2025 15:02

I’ve never phoned 111 and not been told to go to A&E.

We have

We've had advice for other services to use instead

UsingAMansNameInAWomensWorld · 11/07/2025 18:50

Rosscameasdoody · 11/07/2025 17:08

I didn’t ‘decide’ anything. I posted from the NHS and Google came up with a random link, as it very often does on MN. The site I quoted was nothing to do with eye care it was NHS and clearly stated the triage process. I’m very far from ‘you can’t argue with stupid’, thanks. Educated to degree level and spent twenty years as a disability outreach worker. Have spent enough time in A&E with various clients and a disabled DH to know that you don’t always see a doctor before being discharged from A&E. This is a toxic thread - throwing insults in the face of evidence you don’t agree with. I’m out. Pathetic.

It will show the link to the website you linked to...