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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think this is the start of type 1 diabetes

551 replies

NeuroSpicyCat · 10/07/2025 00:11

Hand hold please.

My 13 year old son informed me tonight that he wet the bed last night.

This has never happened before.

His late father had Type 1 diabetes which started around this age.

My son also has a sore tummy (that comes and goes) and sore calves (that come and go).

He seems to have low mood also.

He's always been really thin.

My husband (his stepdad) is driving to A&E with him right now. I’m staying home with the other 4 children. (I can’t drive).

I’m autistic and scared. I’m so worried for him. AI said he is highly likely to be diagnosed given his symptoms and family history, and he’s likely to be urgently admitted to hospital.

Has anyone been in a similar situation?

OP posts:
Thread gallery
10
Willyoujustbequiet · 10/07/2025 22:53

Pricelessadvice · 10/07/2025 15:15

It’s got nothing to do with people “not understanding T1”, it’s because his very vague ‘symptoms’ are also symptoms of a hundred other things. So arguably by your defence, he should also have been rushed to A+E with cancer, kidney disease etc etc.
Do you not realise how ludicrous it sounds?

I might wake up in the night with a headache. The same headache that’s woken me up a few nights in the last few weeks. Do I rush to A+E with a suspected aneurysm or brain tumour? No. I ring my GP the next day.

This.

I'm rather frustrated with the comments about the lack of understanding of the seriousness of type 1.

I'm fully aware of the impact of diabetes having had both type 1 and 2 in my immediate family, having seen DKA and having been a nurse in my younger years. Based on the information provided by the OP I feel it was a complete overreaction and am concerned at the blind faith in AI.

HauntedMarshmallow · 10/07/2025 23:05

KennysLook · 10/07/2025 22:34

You do realise what could happen if people start going to A&E just because AI told them to, right?

You’re aware the original poster said her DS's symptoms have been on and off, which makes an earlier GP visit the right choice? The only new symptom she observed was one time bed wetting.

It’s not so much that she sent her DS to A&E with his stepdad, but that she did it because AI told her to, and that’s the worrying part.

If everyone with low health literacy starts asking AI which service to use instead of calling 111, A&E will end up even more overwhelmed and people with real emergencies will have even longer wait times.

Use 111 to access the right service, unless life threatening. Please.

Yes, misuse of AI and/or misunderstanding its correct applications and limits seems to already be a huge problem for the general population. (Based on what gets said on MN at any rate)

Thedevilhasfinallycaughtupwithhim · 10/07/2025 23:14

Rachie1973 · 10/07/2025 22:25

yes. If the child showed more acute symptoms. Nothing in his presentation according to his mother necessitated an urgent A and E visit.

My mother, brother and daughter are all type 1 diabetics, despite it not being a family link. Between them we’ve only ever needed A and E twice.

How many times do you think they would have needed A&E if they’d not had a diagnosis and all the equipment and medication?

Timetochillnow · 10/07/2025 23:17

How is your son now OP, hope all is well

EdithBond · 10/07/2025 23:26

How are you today @NeuroSpicyCat? Tired, no doubt. How’s your lad?

I recommend 111, at least initially. Helps them triage. IME, they call back quickly when it’s likely urgent tests or treatment is needed.

But they booked him in at A&E, so they clearly felt his symptoms warranted running some checks. And given his late dad had diabetes, it’s understandable you were worried.

Rachie1973 · 10/07/2025 23:52

Thedevilhasfinallycaughtupwithhim · 10/07/2025 23:14

How many times do you think they would have needed A&E if they’d not had a diagnosis and all the equipment and medication?

Well they were diagnosed because they recognised the actual symptoms and attended their GP in a timely manner.

During this appointment the appropriate tests etc were arranged, which followed with a diagnosis and equipment and medication.

So still twice.

TourdeFrance2025 · 10/07/2025 23:59

Rachie1973 · 10/07/2025 22:25

yes. If the child showed more acute symptoms. Nothing in his presentation according to his mother necessitated an urgent A and E visit.

My mother, brother and daughter are all type 1 diabetics, despite it not being a family link. Between them we’ve only ever needed A and E twice.

It's great your family haven't needed A&E many times.

however, if you'd read the thread there are children still alive because their parents took them when they felt there was something wrong.

I will NEVER tell a parent to ignore their feelings & do not care, not even one small but, if they go to A & E & it wasn't necessary. FAR FAR better many go & it turns out to be 'nothing' than one child isn't taken because someone on the internet has made a parent too uncomfortable taking them.

TourdeFrance2025 · 11/07/2025 00:08

MsJemimaPuddleDuck · 10/07/2025 11:47

And this is why people are still dying of undiagnosed type one diabetes in this country. Shocking.

Yeah, but people still won't listen because they think they know better.🙇🏻‍♀️🙇🏻‍♀️

TourdeFrance2025 · 11/07/2025 00:17

Pricelessadvice · 10/07/2025 11:57

They all see a doctor. This poster seems to think triage means the nurse decides who has to leave A+E, but that’s untrue.
I wish it was true though! Because I reckon 80% of people would be told to go and see their GP or a pharmacy.

Who would send them back to A&E. Don't blame people for the fact the MHS is fucked.

TourdeFrance2025 · 11/07/2025 00:25

Aweecupofteaandabiscuit · 10/07/2025 12:09

This attitude from our local GP landed my two year old a week in intensive care with DKA. He could have died.
I was told to be firm and not give him as much water to drink, and no they didn’t think they had to see him in person despite him showing all the classic symptoms of diabetes. Neither I nor DH have any close relatives with T1D so it was very unlikely that DS had it. Nevertheless he does, and he is part of the growing number of kids developing it in this country. It’s not as rare as you seem to believe.

I'm sorry you were so badly let down, sadly, I'm not at all surprised.

please keep repeating your story on these threads because it may save a child's life one day.

TourdeFrance2025 · 11/07/2025 00:30

Pickledpoppetpickle · 10/07/2025 12:37

I know several kids with it. It's treatable for most people with medication and dietary changes. I wouldn't have considered it an emergency unless he was having issues remaining conscious

FFS. Do not post about a condition you have ZERO understanding of. Type 1 diabetes is an autoimmune condition whereby a persons own body stops the production of insulin, rendering the pancreas useless. It can only be managed, not treated.

Anyone concerned about symptoms should not wait. When my son was diagnosed, I assumed he had a stomach bug my eldest was suffering with. Gut feeling told me to check it out. He was so far into DKA that I was told he would not have survived the night.

Type 1 is a serious condition which can quickly become life threatening. Sufferers and their carers will tell you there are days when you literally cheat death multiple times.

And Please stop peddling the lifestyle shite. Fuck all to do with lifestyle,

I'm sorry about your son x

please keep telling your story, one day it might actually educate some people!!

TourdeFrance2025 · 11/07/2025 00:39

Cati482 · 10/07/2025 14:47

My daughter has been diagnosed with Chronic Kidney disease at 8 years old and her only ever symptom has been bed wetting after being dry since 3. Maybe something to consider having checked? It’s a simple blood test to test creatinine levels in the blood to check kidney health. Hope everything works out, OP x

im sorry to hear that, I hope she gets the best treatment possible xx

its scary how people prefer to dismiss things like this in children.

TourdeFrance2025 · 11/07/2025 00:45

Pricelessadvice · 10/07/2025 15:15

It’s got nothing to do with people “not understanding T1”, it’s because his very vague ‘symptoms’ are also symptoms of a hundred other things. So arguably by your defence, he should also have been rushed to A+E with cancer, kidney disease etc etc.
Do you not realise how ludicrous it sounds?

I might wake up in the night with a headache. The same headache that’s woken me up a few nights in the last few weeks. Do I rush to A+E with a suspected aneurysm or brain tumour? No. I ring my GP the next day.

My Aunty died because her GP told her just to take some paracetamol. It didn't stop the aneurysm, funnily enough.

TourdeFrance2025 · 11/07/2025 01:02

rainingsnoring · 10/07/2025 21:53

That post has absolutely nothing to do with what the OP said though.

So? Are you unaware of how conversation works?

TourdeFrance2025 · 11/07/2025 01:11

rainingsnoring · 10/07/2025 21:57

I have read the posts @TourdeFrance2025. Why are you assuming that I have not? I just disagree with you and think that you are being hyperbolic.

Just to be really clear for you, type 1 diabetes is a medical emergency. No one has suggested that it is not. What the OP has described does not suggest a medical emergency and she did not need to rush her son to ED in the middle of the night. She should not have used AI to diagnose a medical condition. She should have spoken to a medical professional.

No, you don't just disagree with me. I'm not going over the whole thing again, it's there for everyone to see.

Don't try to lecture me when you can't even follow a conversation.

TourdeFrance2025 · 11/07/2025 01:14

x2boys · 10/07/2025 22:10

Agreed I don't think many posters understand the urgency of Diabetes and DKA my oldest son went from felling mildly unwell in the morning to collapsing at home at 7pm in DKA by 9pm he was in critical care fighting for his life
If the Op has over reacted thsn so what it's better then the alternative thankfully my son recovered but it was touch and go for a few days.

Agree with both of you whole heartedly.

Rosscameasdoody · 11/07/2025 05:52

Pricelessadvice · 10/07/2025 11:57

They all see a doctor. This poster seems to think triage means the nurse decides who has to leave A+E, but that’s untrue.
I wish it was true though! Because I reckon 80% of people would be told to go and see their GP or a pharmacy.

This is getting silly now. Below is from NHS. Has also been my experience - the most recent when l fell and cut my hand quite deeply. Was triaged by a nurse, sent for X-ray, and eventually went through to see a nurse clinician who cleaned the wound, used surgical glue to close it, dressed it and gave instruction on signs of infection. I was there two hours. Never saw a doctor throughout the process.

*2. Assessment – Triage
Once you have registered you’ll generally be pre assessed before further action is taken. This is called Triage. The process is carried out on all patients attending A&E. Triage ensures people with the most serious conditions are seen first.

  1. Treatment, transfer or discharge
What happens next depends on the results of your assessment. Sometimes further tests need to be arranged before a course of action can be decided. If your situation is not a serious accident or emergency, you may be sent to a nearby Urgent Care Centre, Minor Injuries Unit or referred to a GP onsite. This will reduce the waiting queue in A&E and at the same time allows you (the patient with the lesser injury) to be treated quickly as well. The waiting time target for patients in A&E is currently set to 4 hours from arrival to admission, transfer or discharge. However, not all hospitals have associated Urgent Care Centres, which means people with minor injuries may have a longer wait until they are seen. In some cases you may be sent home and asked to arrange for a GP referral or you may be given a prescription and sent home. Either way, the Hospital will inform your GP that you have been to A&E. If your situation is more complicated, you may be seen by an A&E Doctor or referred to a Specialist Unit. For example, this could happen for eye problems, strokes or emergency gynaecology.*
nhs.uk

Eye injuries

Find out what to do if you have an eye injury, including when to get medical help.

https://www.nhs.uk/conditions/eye-injuries/

Pricelessadvice · 11/07/2025 07:16

Rosscameasdoody · 11/07/2025 05:52

This is getting silly now. Below is from NHS. Has also been my experience - the most recent when l fell and cut my hand quite deeply. Was triaged by a nurse, sent for X-ray, and eventually went through to see a nurse clinician who cleaned the wound, used surgical glue to close it, dressed it and gave instruction on signs of infection. I was there two hours. Never saw a doctor throughout the process.

*2. Assessment – Triage
Once you have registered you’ll generally be pre assessed before further action is taken. This is called Triage. The process is carried out on all patients attending A&E. Triage ensures people with the most serious conditions are seen first.

  1. Treatment, transfer or discharge
What happens next depends on the results of your assessment. Sometimes further tests need to be arranged before a course of action can be decided. If your situation is not a serious accident or emergency, you may be sent to a nearby Urgent Care Centre, Minor Injuries Unit or referred to a GP onsite. This will reduce the waiting queue in A&E and at the same time allows you (the patient with the lesser injury) to be treated quickly as well. The waiting time target for patients in A&E is currently set to 4 hours from arrival to admission, transfer or discharge. However, not all hospitals have associated Urgent Care Centres, which means people with minor injuries may have a longer wait until they are seen. In some cases you may be sent home and asked to arrange for a GP referral or you may be given a prescription and sent home. Either way, the Hospital will inform your GP that you have been to A&E. If your situation is more complicated, you may be seen by an A&E Doctor or referred to a Specialist Unit. For example, this could happen for eye problems, strokes or emergency gynaecology.*

I don’t care what you say to be quite frank, because you are clearly more hysterical than most about bed wetting. The fact of the matter is that the OP sent her son to Accident + Emergency because he wet the bed and she made the leap to T1 diabetes.
Enough people on this thread think this situation is ludicrous for me to know it’s not just me being ‘toxic’.

If OP had genuine concerns, then ringing the GP or taking him to a walk-in centre the next morning would have been more appropriate. He wasn’t unwell and he wasn’t exhibiting any dangerous symptoms, so it wasn’t an emergency.
Absolutely she should look into him possibly having T1 diabetes if it runs in the family, but using A+E in the middle of the night when it was NOT an emergency right then is one of the reasons why resources are being wasted on people who do not need them in that moment. I am fairly sure that I’d have A+E staff supporting my viewpoint, who are sick to death of people their wasting time and resources and taking them away from actual emergencies.

I am done with this ridiculous argument. I wonder if, had it been Covid times, OP would have taken her son to A+E for bed wetting. I doubt it.

Jhun · 11/07/2025 07:20

Best of luck and I hope you’re wrong - try not to worry about the as yet unknown x

KennysLook · 11/07/2025 07:56

Go through your GP or 111 not AI.

The NHS is free at the point of use paid for by general taxation and National Insurance contributions.

Most people get more out of the NHS than they pay in over their lifetime.

Don't abuse the system by asking some random AI, go through the proper pathways and that is either your GP or 111 unless life threatening. That's what posters are saying, not ignore worrying symptoms.

In the UK, half of adults read at the level of a 9 - 11-year-old. They won’t be able to effectively deal with what AI tells them.

Call 111 or speak to your GP first, they can recommend next steps. Only go to A&E if it’s a real emergency. Posters are not saying not to access relevant health care including A&E but to use the proper channels so you know where to go.

If the NHS made an AI that talks in simple language and gives clear, easy advice, it could help people in th eifrst instance and ease the burden on 111.

Rosscameasdoody · 11/07/2025 09:01

Pricelessadvice · 11/07/2025 07:16

I don’t care what you say to be quite frank, because you are clearly more hysterical than most about bed wetting. The fact of the matter is that the OP sent her son to Accident + Emergency because he wet the bed and she made the leap to T1 diabetes.
Enough people on this thread think this situation is ludicrous for me to know it’s not just me being ‘toxic’.

If OP had genuine concerns, then ringing the GP or taking him to a walk-in centre the next morning would have been more appropriate. He wasn’t unwell and he wasn’t exhibiting any dangerous symptoms, so it wasn’t an emergency.
Absolutely she should look into him possibly having T1 diabetes if it runs in the family, but using A+E in the middle of the night when it was NOT an emergency right then is one of the reasons why resources are being wasted on people who do not need them in that moment. I am fairly sure that I’d have A+E staff supporting my viewpoint, who are sick to death of people their wasting time and resources and taking them away from actual emergencies.

I am done with this ridiculous argument. I wonder if, had it been Covid times, OP would have taken her son to A+E for bed wetting. I doubt it.

Hysterical ? Really ? And none of what you’ve said here addressed what I posted.

Goldengirl123 · 11/07/2025 09:05

I think the reason the OP hasn’t updated this thread is because all is fine and she feels silly for overreacting. If you are reading this OP, I think that maybe you need some help with your anxiety. Wishing you well

Rosscameasdoody · 11/07/2025 09:12

KennysLook · 11/07/2025 07:56

Go through your GP or 111 not AI.

The NHS is free at the point of use paid for by general taxation and National Insurance contributions.

Most people get more out of the NHS than they pay in over their lifetime.

Don't abuse the system by asking some random AI, go through the proper pathways and that is either your GP or 111 unless life threatening. That's what posters are saying, not ignore worrying symptoms.

In the UK, half of adults read at the level of a 9 - 11-year-old. They won’t be able to effectively deal with what AI tells them.

Call 111 or speak to your GP first, they can recommend next steps. Only go to A&E if it’s a real emergency. Posters are not saying not to access relevant health care including A&E but to use the proper channels so you know where to go.

If the NHS made an AI that talks in simple language and gives clear, easy advice, it could help people in th eifrst instance and ease the burden on 111.

I think the problem is that more and more people are turning to google because they can’t get timely access to a GP. From some of the posts here you’d think you can just ring the surgery as and when you need to and speak to a clinician. This is just not the case. Here, you join the 8am scramble for an initial phone appointment, but if there are no appointments left when you get through you’re directed to other services - including A&E. And the walk in centres here are a disaster. Most don’t open until noon and only let people in a couple at a time, so you’re queuing outside for ages before you can even get into the building to register.

Since covid GP’s seem to have decided that this is the way they want to operate. Access to them takes time, so it’s not surprising that people are turning to A&E where it’s their best chance of actually being seen for something that is happening now, as opposed to in two or three weeks time via your GP when you’re either recovered, dead or something in between.

TheFairPoet · 11/07/2025 09:15

TourdeFrance2025 · 11/07/2025 00:39

im sorry to hear that, I hope she gets the best treatment possible xx

its scary how people prefer to dismiss things like this in children.

Nobody has dismissed. People have said he didn’t have the symptoms of diabetes. Which he did not and which was confirmed by a normal blood sugar. And that seeking primary care would be more suitable than A&E. Which it would have been. You’ll note that the poster you are responding to said her child has chronic kidney disease, for which the symptom was bed wetting. This is a perfect example of a condition that OP’s child could have, which would be best diagnosed through primary care.

Thedevilhasfinallycaughtupwithhim · 11/07/2025 09:19

TheFairPoet · 11/07/2025 09:15

Nobody has dismissed. People have said he didn’t have the symptoms of diabetes. Which he did not and which was confirmed by a normal blood sugar. And that seeking primary care would be more suitable than A&E. Which it would have been. You’ll note that the poster you are responding to said her child has chronic kidney disease, for which the symptom was bed wetting. This is a perfect example of a condition that OP’s child could have, which would be best diagnosed through primary care.

They didn’t know his blood sugar levels without visiting the hospital and it was not worth risking his life to wait for a GP appointment