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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think this is the start of type 1 diabetes

551 replies

NeuroSpicyCat · 10/07/2025 00:11

Hand hold please.

My 13 year old son informed me tonight that he wet the bed last night.

This has never happened before.

His late father had Type 1 diabetes which started around this age.

My son also has a sore tummy (that comes and goes) and sore calves (that come and go).

He seems to have low mood also.

He's always been really thin.

My husband (his stepdad) is driving to A&E with him right now. I’m staying home with the other 4 children. (I can’t drive).

I’m autistic and scared. I’m so worried for him. AI said he is highly likely to be diagnosed given his symptoms and family history, and he’s likely to be urgently admitted to hospital.

Has anyone been in a similar situation?

OP posts:
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NeuroSpicyCat · 10/07/2025 00:31

steff13 · 10/07/2025 00:23

From what you've said, he wet the bed one time. That's something that can happen to anyone. Has he experienced increased urination overall? Increased thirst?

Bed wetting at 13 is suspicious (without any other likely trigger).

He said he’s not thirsty a lot, which I’ve told him is a good thing and that he should stay calm and remember that. I’ve stayed calm around him but as soon as they left for the hospital I broke into tears.

OP posts:
Missmarplesknittingbuddy · 10/07/2025 00:31

TheFairPoet · 10/07/2025 00:26

bed wetting on its own is NOT A SIGN. Excessive thirst is a sign, and children who suddenly drink a lot of water are more likely to bed wet, so you can get bed wetting as a byproduct, but OP’s son is not experiencing excessive thirst and increased drinking?

This is not the case , but a common misconception. In undiagnosed T1D urination increases first and the person then becomes thirsty to aim to compensate. As symptoms progress the person can become severely dehydrated as they cannot take in enough fluid to compensate for the loss.

x2boys · 10/07/2025 00:32

TheFairPoet · 10/07/2025 00:30

AI is not medically qualified.

So what you don't need around if you think it might be diabetes. DKA can be fatal.

TheFairPoet · 10/07/2025 00:32

The most likely causes are a uti, or hormonal changes affecting his sleep so he didn’t wake up needing the loo as he normally would. Don’t panic about T1D just because of AI, which is wildly inaccurate most of the time.

NeuroSpicyCat · 10/07/2025 00:33

TheFairPoet · 10/07/2025 00:23

No, it’s not. And whilst there is a genetic component to type 1, type 2 is actually far more hereditary. The majority of type 1 diabetics don’t have any direct relations with T1D.

Thank you for sharing this - it’s comforting if true. Do you have a source I can read?

OP posts:
steff13 · 10/07/2025 00:33

NeuroSpicyCat · 10/07/2025 00:31

Bed wetting at 13 is suspicious (without any other likely trigger).

He said he’s not thirsty a lot, which I’ve told him is a good thing and that he should stay calm and remember that. I’ve stayed calm around him but as soon as they left for the hospital I broke into tears.

It's not when it happens once. He could have been sleeping more deeply than usual and just didn't wake up.

TheFairPoet · 10/07/2025 00:33

Missmarplesknittingbuddy · 10/07/2025 00:31

This is not the case , but a common misconception. In undiagnosed T1D urination increases first and the person then becomes thirsty to aim to compensate. As symptoms progress the person can become severely dehydrated as they cannot take in enough fluid to compensate for the loss.

OP’S CHILD HAS NO INCREASED URINATION.

NeuroSpicyCat · 10/07/2025 00:33

Husband has confirmed they have now checked in.

OP posts:
NeuroSpicyCat · 10/07/2025 00:34

Missmarplesknittingbuddy · 10/07/2025 00:26

You are completely incorrect . Stomach ache can be a sign of raised blood ketones / ketoacidosis and bed wetting in a previous dry child is also common in diabetes . Children with a parent with diabetes are also at increased risk of developing T1D .

This is exactly what AI is saying!!

OP posts:
Missmarplesknittingbuddy · 10/07/2025 00:36

NeuroSpicyCat · 10/07/2025 00:31

Bed wetting at 13 is suspicious (without any other likely trigger).

He said he’s not thirsty a lot, which I’ve told him is a good thing and that he should stay calm and remember that. I’ve stayed calm around him but as soon as they left for the hospital I broke into tears.

Although I have corrected some misconceptions posted on the thread none of his symptoms are diagnostic in themselves . He is likely to have a blood glucose and / or HbA1c taken at the hospital which will confirm or rule out diabetes . IF , he is diagnosed it is a manageable condition and technology in diabetes has improved dramatically over the last few years .

x2boys · 10/07/2025 00:37

NeuroSpicyCat · 10/07/2025 00:34

This is exactly what AI is saying!!

You have done the right thing DKAis fucking scary if it turns out to be a simple UTI so what I wouldn't wish what I went through with my son on anyone

NeuroSpicyCat · 10/07/2025 00:37

Ponoka7 · 10/07/2025 00:24

Most people don't have a genetic factor, it plays less of a role than was once thought. He also has the symptoms of dehydration and a subsequent UTI.

Thank you. He hasn’t mentioned pain when peeing though?

OP posts:
Claireshh · 10/07/2025 00:38

My cousins son is the only other relative with Type 1.

Try not to worry too much. Even if he is diagnosed the technology is amazing. It can be really hard at times but she manages it really well and it hasn’t stopped her doing anything. X

NeuroSpicyCat · 10/07/2025 00:41

x2boys · 10/07/2025 00:26

Yes you are doing the right thing getting it checked out my son was diagnosed in DKA.
He actually has type 3c diabetes caused by acute necrotizing,pancreatitis but he's treated as type 1

I hope your son is doing okay now

OP posts:
Kimmeridge · 10/07/2025 00:42

Using AI is as bad as Googling. You always get the worst case scenarios. Youre putting far too much emphasis on what some daft AI programme has said

Missmarplesknittingbuddy · 10/07/2025 00:42

TheFairPoet · 10/07/2025 00:33

OP’S CHILD HAS NO INCREASED URINATION.

Not sure why you are typing in capitals but the polyuria( which can include bedwetting) is the cause of the polydipsia, not the other way around .

NeuroSpicyCat · 10/07/2025 00:42

Thank you to everyone commenting on this thread. I appreciate each and every one of you for keeping me company through this scary night.

OP posts:
TheFairPoet · 10/07/2025 00:43

Missmarplesknittingbuddy · 10/07/2025 00:42

Not sure why you are typing in capitals but the polyuria( which can include bedwetting) is the cause of the polydipsia, not the other way around .

And OP’s child has neither. No increased urination, no increased thirst.

MNpenisadvisor · 10/07/2025 00:44

Surely going to the GP tomorrow would be a better use of NHS resources than midnight a&e

NeuroSpicyCat · 10/07/2025 00:49

Latest update from husband: “We’ve been seen by a nurse for an initial assessment. They’ve tested his blood sugar and it’s fine. 4.8. We’re now waiting to see doctor which is a 2 hour wait. The blood test doesn’t entirely rule it out as it’s a snapshot of his blood now. She said doctor may decide to run full blood tests based on all information when we see them.”

A small win?

OP posts:
MsChilds · 10/07/2025 00:51

Type 1 diabetic here! You are foing the right thing if you are concerned. DKA is a medical emergency and a killer if untreated and children decline rapidly. I hope your ds is ok.

TheFairPoet · 10/07/2025 00:52

Honestly, you know his bloods are fine - don’t make him wait 2 hours in a&e. Seriously - just follow up with the gp tomorrow if you are still concerned.

MsChilds · 10/07/2025 00:52

Just seen your update that’s good news

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