Ok who wants to swap £2500 a month in benefits for my husbands MS and my epilepsy, narcolepsy and fibromyalgia.

[bluebirdblackbird]

Well according to a lot of people on here we are on a good thing.

the 20 seizures I have in a week, chronic pain and night terrors, losing my memory after a seizure, pissing myself, hallucinations. They are all great fun. Not to mention the amount of times I have been accused of being drunk after a seizure.

or there is my husband. Diagnosed with progressive MS. Cronic Pain, shaking, cronic pins and needles, weakness in limbs plus losing mobility. Had to give up his teaching job 4 months ago after gradually reducing hours.

Not to mention the judgement when we use a blue badge because we look ok in that moment. And apparently labour are going to find us both work. Yippee cant wait to meet the employer who is going to take us both on. I am sure pissing my chair on a reg basis won’t matter to them or the losing counciouness at least a couple of times a day.

i am just fed up of yet another they are on benefits and get money and it’s not fair stamp stamp stamp. The bastards have saved up for a holiday- it’s not fair. The bastards have a mobility car but they look fine, OMG- they have got new carpets or a new sofa.

since I am guessing they none of the moaners would actually swap places with us if they could then STFU.

oh and that pip that is easy to get- my husband gets lower rate for both and that is despite providing all the evidence and appealing so we are off to tribunal. He can’t even dress himself most days and he can’t hold a pan safely or manage his medication plus many other things. If he stays on the points he is on he will lose his pip completely under these new labour proposals.

but most people know someone who’s friends, aunts, nephews, stepdaughters, cousin twice removed who lied and got it. I was taking to a lady in a wheelchair who does not get any mobility component of pip at all.

You csnt be that disabled, then, if you're capable of doing all those steps, but not working. I have fibro and I quite literally can't walk. My specialist told me not to exercise as it makes me worse. Why can't you work, if you can do all that exercise?

Exactly

basically walking a marathon a day

but also receiving PIP because basically can’t stand or sit for long and riddled with joint pain and extreme tiredness

You can guarantee that when asked how far Dan walk @Fireandflames didn’t admit to a Marathon a day

I think I would be exhausted and have joint pain if I was walking 28,000 steps every day!!

Fuck me, is she on PIP? I'm a wheelchair user and was initially given zero points for the mobility element! I had to appeal. How absolutely appalling.

My ex neighbour was a PIP fraud. She'd gleefully tell me how she knew how to play the system. She kept a wheelchair in her (Motability) car in case anyone was watching her, and told the DWP she needed full time care. Then she'd be off to her full time job, doing extreme sports in her spare time, as well as marathons, hikes, triathlons, heavy garden work, holidays alone etc. But according to the DWP she's housebound and cared for.

I know the fraud levels are low, but I think this is partly because they don't investigate reports. This woman has been reported at least ten times by various people over the last five years, but nothing has ever been followed up.

I don't have a disability relating to my joints but that would exhaust me. I might do 28000 steps once a month. Certainly not something I'll do often

She is yes

walking 28,000 step a a day

and bloody defensive about it

Nor do I have a disability

this poster has fibromyalgia and nightmare. I feel like I'm starting with the flu every single day...body aches, stomach issues, headaches, falling asleep constantly. I don't have the capacity to work under those conditions.

and manages to walk a marathon a day

pees me off!

"That disabled", Why are you comparing disabilities?. It's not a game where people win or lose. You don't know how I feel or how dead I am all the time.

"Oh look she can walk....must mean she's ok then". Let's ignore the fact she walks with stupid limpy hips like a cowboy or that she's hunched over like an old lady.

I can't work because I struggle with standing/sitting on top of all my other disabilities. Life isn't black and white.

A specialist in fibromyalgia knowing you suffer from extreme tiredness and joint pain suggests walking the equivalent of a marathon a day

sure

did you declare this during your successful PIP application?

That's absolutely disgusting.

Oh, come on. Anyone who can walk that amount every day is not eligible for PIP.

Not eligible

but sadly in receipt of

28,000 steps walked per day and you’re receiving benefits? I think you ought to be ashamed. I work full-time in a healthcare role where I’m sat down. I can barely manage 8,000 steps per day as I am so busy working.

If you’re walking that much, I think you can work.

That is such an improper qualification of a benefit, and that ought to be going towards someone who is truly immobile or disabled. My job causes me pain, tension, headaches at times but I’ve got to get on with it like the rest of the working population. 28,000 steps is making a mockery of truly disabled people and those of us who are working and paying tax!

i think we can all be fairly confident @Fireandflames is going to change username before posting further on the “awaiting PIP review” thread

Is there a job where you just get paid to walk and walk ? I don’t think there is ….

Postie I guess? Amazon warehouse worker is walking all day.

Quite! To achieve 28,000 steps per day, that person must be walking all day long?!

OP is also a single parent on that thread so 🤷

Or 19.5k each, as they are both disabled

Dog walker. Delivery person. Tour Guide. Security. Groundsworker. It's irrelevant really, though. If someone is able to walk that amount a day, they do not qualify for PIP. The mobility element is very clear. The care element is very clear. The poster is a benefit fraud.

Nowhere near 19k a year for one half of a couple.

They're delusional. PIP at its highest rate is £700 a month. £400 if you use the Motability element for a wheelchair or car. I get nothing else, because I'm married. We have to survive on one income since I had to stop working a few months ago. It's bloody wrong. I want to work desperately but can't find anything that allows me to be disabled and very ill at the same time. I'm sick of the narrative that we get sooo much more than "full time workers".

A. We don't.
B. Why are people so very against genuinely disabled people having an income that equals a full time minimum wage? Do they just want us to suffer? We already suffer enough.

Nope. It’s not just about how far you can walk. It’s about whether you can do it reliably, repeatedly and in a suitable time frame. That applies to all the daily living activities and the mobility component.

Reliably means without harm to yourself or others - meaning the way in which you carry out the activity. It has to be done in a way which does not put you or others at risk - including if it will contribute to making your condition worse.

Repeatedly means more than once - so as often as needed throughout the day without causing pain or undue fatigue.

In a suitable time frame means not more than twice the time it would take for a non disabled person to do the same activity.

In any descriptor for PIP the time taken, help from another person, any aids or appliances used, whether pain medication needs to be used before, during or after the activity and the amount/time of rest stops are all considered. If the person can only do the activity once in the day they are considered unable to do it, and if the qualifying condition is present at least 50% of the time, then it is considered a significant disability.

The answer to question B is that many people don’t see the disability itself - only the ‘advantages’ that they perceive as somehow being ‘perks’ of being disabled when in fact benefits like PIP and motability are designed to equal the playing field and mitigate the significant disadvantage that disability brings. When they’re bandying about terms like ‘free cars’ and assuming that disability benefits are a piece of piss to claim, they conveniently forget the level of impairment needed to qualify for these things. That fraudsters target these benefits is not the fault of the genuinely disabled..