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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Hand flapping

181 replies

Donttellanyone1 · 23/04/2025 15:38

Is this a worry? DD is 7 and has started flapping her hands when she’s excited. She often combines this with running and jumping, sometimes makes a bit of noise too although this has been going on for longer, at least the last two or three years. She also seems to do it when she comes out of school, as if to burn off the excess energy that she’s been holding on to at school. No other signs of ASD that I’m aware of and school haven’t mentioned anything. Should I be worried?

OP posts:
WaterInMajorca · 25/04/2025 20:47

Donttellanyone1 · 25/04/2025 16:52

Thank you for sharing that with me, it’s so interesting to note the similarities between our children at a similar age. Did school ever mention anything to you about it? We haven’t had any concerns from school yet but I worry if she carries on doing it, it’ll be commented on. Perhaps a good thing so if there any issues we can get them addressed. Did your son jump and flap, or does he run and flap too? My daughter just seems to need to motor around at times, even if she’s doing a club like football or gymnastics, she’ll join in with the class and then go off and do a little run about, and then dip back into the class again. Can I ask why you are satisfied it’s not ASD/ADHD? Hope that’s not an intrusive question

Hi. Well it's tricky! (Sorry this will be long!) School didn't raise any concerns specifically. He was v energetic, forgetful, distracted and talkative in reception and year 1 which was commented on, but lots of young children are.

I work in a field where I have knowledge of ADHD and ASC, but equally, where I have seen some children who in my professional opinion have been diagnosed too soon when their behaviours may be 'normal' variation on childhood behaviour and waiting for later diagnosis would perhaps have been preferable (and I know for many, early diagnosis is also important so the child can get the right help. I'm not suggesting otherwise.) My profession is also a little more sceptical of diagnosis in some circumstances than perhaps other professions and/or lay people may be. So like it or not, this likely has influenced my view. Although I am not averse to diagnosis

These things influenced me to want to wait and postpone any assessment. In all honesty I was pretty sure that at age 4 or 5 he would have met the criteria for ADHD had I wanted to pursue this. I know from working in the field that when a child has particular traits plus stereotypies, the presence of the stereotypies can lead to bias in the professionals opinion and a higher likelihood of diagnosis especially if the parent is wanting that and school are supporting that.

I was nervous to get him assessed because I thought there was a risk of a false positive diagnosis. I chose to wait. We got DS involved in lots of sport to channel his energy and thought we'd just wait for him to get a bit older and start to discover his personality, watch his friendships and interactions etc.. and see what happened. We were open minded to pursuing assessment for ADHD in the future.

By year 3/4 he was very much more settled in classes. Was calmer. Didn't talk excessively. He had excellent reports of in-class behaviour, was becoming less distracted and sport really worked to channel energy and help in managing his stereotypies. (By year 2 he was swimming 5 times a week! That's how much energy he had and how motor he was!) He had lots of friends and teachers had zero concerns.

By year 6 he was described as a model pupil and role model for other kids. He was seen as a well behaved pupil. He got exceed in all his SATS so I assume his concentration etc.. had improved. His stereotypies were significantly reducing. He's now in year 8, and honestly no evidence of ADHD whatsoever. He doesn't swim competitively any more because he doesn't need to anymore (at his peak he was swimming up to 8 x 90 minutes sessions a week) and nor does he particularly want to as his interests have diversified. He's no more energetic than anyone else now. He still does some sport in the week, but largely his pursuits are more geeky and sedentry. He's v attentive in lessons etc..

So I'm pleased I waited and didn't pursue early diagnosis because I genuinely believe there would have been a false positive diagnosis made. I do believe some children are just more 'motor' in the primary school years than others. For my son, channeling that energy through sport I believe was the right thing to do. And not jumping into diagnosis too soon was also right for us.

In terms of ASC - I can't really see any autistic traits at all. He's incredibly sociable, good at perspective taking, doesn't need structure or routine or anything. Like all of us, he has the odd quirk and the odd thing that could be seen as an ASC trait, but nothing that would be anywhere close to him meeting criteria for a diagnosis of ASC.

I just see DS as very average! He fits in well with his peer group etc.. Now age 13 there is no evidence of either ADHD or Autism. Given my profession if I had any concerns still now by this age, I would have him assessed. But there is nothing. He's a good, hard working, focussed student with lots of friends and varied interests.

My youngest is year 6 and is having a few difficulties with learning and is being assessed for dyslexia. Led by school. So I'm happy to be guided by advice and am not averse to diagnosis or getting appropriate help for my children. But equally I think as parents we do sometimes have an instinct for if something is wrong, and despite his stereotypies I just 'knew' in my gut that my son wasn't neurodiverse. Just like I do 'know' in my gut that my youngest does take a bit longer to understand some things than other children his age.

WaterInMajorca · 25/04/2025 20:51

Sorry, to answer your other question. No I don't think he's ever run alongside his flapping as a stereotypy. He did used to be v energetic and would run for fun, but not as a stereotypic movement. His movements were hand and arm flapping, jumping and mouth stretching. Sometimes all together. Also wiggling his legs as if he needed a pee (when he didn't actually need a pee but was just excited or focussing). I think they were the main ones and he still does the mouth stretching and wiggling his legs but the arm flapping and jumping, come to think of it, have ceased all together I think now. At least I've not noticed them for a long time :)

Maplesy10 · 25/04/2025 21:37

My daughter has mentioned that she will shake it out in school, often at the end of class.
It goes completely uncommented upon by her wonderful teachers.

Reading about it is interesting "Shaking activates the parasympathetic nervous system and signals the brain to calm, relax and let go. Shaking also activates the lymphatic system of our body, which helps our body get rid of the toxins"...

It sounds very healthy and therapeutic.
I haven't seen her doing it at home, but then she doesn't have double math, economics, accounting to sit through.

She is 100% focused in class and as she uses a lap top due to her dyslexia, supplies friends witj excellent class notes.

I think her extreme focus exhausts her and the shaking it out helps her rebalance and regulate.

My eldest son has been a model, extremely high achieving student throughout his entire education, which has undoubtedly masked his traits, but they are definitely there.

He has always had stomach issues and is prone to weight loss.
Presently he is finding walking and an excellent psychologist helpful to figure these post university years out.

papercranes · 25/04/2025 22:44

WaterInMajorca · 25/04/2025 20:47

Hi. Well it's tricky! (Sorry this will be long!) School didn't raise any concerns specifically. He was v energetic, forgetful, distracted and talkative in reception and year 1 which was commented on, but lots of young children are.

I work in a field where I have knowledge of ADHD and ASC, but equally, where I have seen some children who in my professional opinion have been diagnosed too soon when their behaviours may be 'normal' variation on childhood behaviour and waiting for later diagnosis would perhaps have been preferable (and I know for many, early diagnosis is also important so the child can get the right help. I'm not suggesting otherwise.) My profession is also a little more sceptical of diagnosis in some circumstances than perhaps other professions and/or lay people may be. So like it or not, this likely has influenced my view. Although I am not averse to diagnosis

These things influenced me to want to wait and postpone any assessment. In all honesty I was pretty sure that at age 4 or 5 he would have met the criteria for ADHD had I wanted to pursue this. I know from working in the field that when a child has particular traits plus stereotypies, the presence of the stereotypies can lead to bias in the professionals opinion and a higher likelihood of diagnosis especially if the parent is wanting that and school are supporting that.

I was nervous to get him assessed because I thought there was a risk of a false positive diagnosis. I chose to wait. We got DS involved in lots of sport to channel his energy and thought we'd just wait for him to get a bit older and start to discover his personality, watch his friendships and interactions etc.. and see what happened. We were open minded to pursuing assessment for ADHD in the future.

By year 3/4 he was very much more settled in classes. Was calmer. Didn't talk excessively. He had excellent reports of in-class behaviour, was becoming less distracted and sport really worked to channel energy and help in managing his stereotypies. (By year 2 he was swimming 5 times a week! That's how much energy he had and how motor he was!) He had lots of friends and teachers had zero concerns.

By year 6 he was described as a model pupil and role model for other kids. He was seen as a well behaved pupil. He got exceed in all his SATS so I assume his concentration etc.. had improved. His stereotypies were significantly reducing. He's now in year 8, and honestly no evidence of ADHD whatsoever. He doesn't swim competitively any more because he doesn't need to anymore (at his peak he was swimming up to 8 x 90 minutes sessions a week) and nor does he particularly want to as his interests have diversified. He's no more energetic than anyone else now. He still does some sport in the week, but largely his pursuits are more geeky and sedentry. He's v attentive in lessons etc..

So I'm pleased I waited and didn't pursue early diagnosis because I genuinely believe there would have been a false positive diagnosis made. I do believe some children are just more 'motor' in the primary school years than others. For my son, channeling that energy through sport I believe was the right thing to do. And not jumping into diagnosis too soon was also right for us.

In terms of ASC - I can't really see any autistic traits at all. He's incredibly sociable, good at perspective taking, doesn't need structure or routine or anything. Like all of us, he has the odd quirk and the odd thing that could be seen as an ASC trait, but nothing that would be anywhere close to him meeting criteria for a diagnosis of ASC.

I just see DS as very average! He fits in well with his peer group etc.. Now age 13 there is no evidence of either ADHD or Autism. Given my profession if I had any concerns still now by this age, I would have him assessed. But there is nothing. He's a good, hard working, focussed student with lots of friends and varied interests.

My youngest is year 6 and is having a few difficulties with learning and is being assessed for dyslexia. Led by school. So I'm happy to be guided by advice and am not averse to diagnosis or getting appropriate help for my children. But equally I think as parents we do sometimes have an instinct for if something is wrong, and despite his stereotypies I just 'knew' in my gut that my son wasn't neurodiverse. Just like I do 'know' in my gut that my youngest does take a bit longer to understand some things than other children his age.

I just wanted to say thank you for your posts @WaterInMajorca. You may have also seen from my replies to the OP that I have a 9 year old son who I believe has motor stereotypies. He sounds just like your son and it's great to hear that he's doing well at secondary school. While I worry less about him now that I can see his movements reducing and changing in public, going to secondary school still concerns me! So thank you - it's reassuring to read.

WaterInMajorca · 26/04/2025 08:38

papercranes · 25/04/2025 22:44

I just wanted to say thank you for your posts @WaterInMajorca. You may have also seen from my replies to the OP that I have a 9 year old son who I believe has motor stereotypies. He sounds just like your son and it's great to hear that he's doing well at secondary school. While I worry less about him now that I can see his movements reducing and changing in public, going to secondary school still concerns me! So thank you - it's reassuring to read.

Hi @papercranes

Thanks. I'm glad you have found my posts helpful. I've just read through all your posts and can see that your son seems similar to mine at that age. It is a worry because I don't think there is much info in the UK on motor stereotypies so we have to find the research ourselves! Like you, I also read bits and bobs from John Hopkins University. But there were times I wished we lived in the USA so I could access someone professional who knew about these things that I could talk to. I don't think in the Uk there is a lot of accessible knowledge on the topic. We are somewhat on our own.

Good luck to your son. I'm sure all will be well. If he's anything like mine, the stereotypies will have reduced significantly by secondary and he will.naturally learn to not do them at school or in front of his friends anyway. When I see my son now I almost miss his little movements when I don't see them for a while! They were such a big part of him and always signalled to me how happy and excited about things he was :) I think he'll keep a few movements occasionally in private for a few years to come at least. I'd like to think they'll be completely gone by adulthood. But since I also have a few and am late 40s, he may well.carry a few with him into middle age! It doesn't matter. It's just him! And I'm just me :) I did worry at one point about future girlfriends or whatever, but I'm sure he'll be fine and if the girlfriend is a keeper, she'll not care anyway! (my husband doesn't notice my flaps and claps etc really and we've been married 15 yrs!)

All the best to you and your son

papercranes · 26/04/2025 10:02

WaterInMajorca · 26/04/2025 08:38

Hi @papercranes

Thanks. I'm glad you have found my posts helpful. I've just read through all your posts and can see that your son seems similar to mine at that age. It is a worry because I don't think there is much info in the UK on motor stereotypies so we have to find the research ourselves! Like you, I also read bits and bobs from John Hopkins University. But there were times I wished we lived in the USA so I could access someone professional who knew about these things that I could talk to. I don't think in the Uk there is a lot of accessible knowledge on the topic. We are somewhat on our own.

Good luck to your son. I'm sure all will be well. If he's anything like mine, the stereotypies will have reduced significantly by secondary and he will.naturally learn to not do them at school or in front of his friends anyway. When I see my son now I almost miss his little movements when I don't see them for a while! They were such a big part of him and always signalled to me how happy and excited about things he was :) I think he'll keep a few movements occasionally in private for a few years to come at least. I'd like to think they'll be completely gone by adulthood. But since I also have a few and am late 40s, he may well.carry a few with him into middle age! It doesn't matter. It's just him! And I'm just me :) I did worry at one point about future girlfriends or whatever, but I'm sure he'll be fine and if the girlfriend is a keeper, she'll not care anyway! (my husband doesn't notice my flaps and claps etc really and we've been married 15 yrs!)

All the best to you and your son

Thank you so much @WaterInMajorca. Like you say, it's not something I've ever come across and the UK doesn't seem to diagnose it, so always so useful to hear of other people's experiences. Hearing how you've approached this and your experiences has been so useful. Your son sounds like he's doing great and I'm sure he'll continue to flourish. Thanks again x

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