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To be sick of all the newspaper articles saying lies about DLA and PIP

1000 replies

elliejjtiny · 08/04/2025 22:37

To get any DLA or PIP you have to be significantly disabled. To get the higher rate of either part you have to be severely disabled.

A motability car is not free, it's rented. To get one you need to either be unable to walk 50 metres or have a severe learning disability, which is very difficult to get.

It's always happened but since the stuff in the news about changes to PIP it's got worse.

Articles in the newspapers claiming you can get a free car for bed wetting, which just doesn't happen. There will be children like my ds who get DLA because they have a number of problems including bedwetting but nobody gets high rate mobility for bed wetting on its own.

There are other articles about people claiming PIP and DLA for various minor sounding conditions and I am so fed up with it. I know from experience that the newspapers will have talked to people claiming PIP/DLA and twist everything they say to make them sound like a scrounger.

All these articles are giving off the message that anyone with any minor disability can claim loads of benefits.

OP posts:
Thread gallery
14
Sheeparelooseagain · 13/04/2025 14:59

"It’s a little naive to suggest that an expensive special school place is required because of phone use though."

Yes if a child requires an expensive SEMH school place there are far bigger issues going on or that have gone on than the use of a smart phone.

Wildflowers99 · 13/04/2025 15:04

Sheeparelooseagain · 13/04/2025 14:59

"It’s a little naive to suggest that an expensive special school place is required because of phone use though."

Yes if a child requires an expensive SEMH school place there are far bigger issues going on or that have gone on than the use of a smart phone.

What bigger issues? In the cases I’ve seen there are no issues - their parents are perfectly pleasant and able, their home life is fine. But the children have had unfettered access to tech. I’m not making this up, obviously I can’t give any details but honestly this does happen, and more often than you think.

RejoiceandSing · 13/04/2025 15:08

Pandersmum · 13/04/2025 14:24

I think the current system is not fit for purpose. Both from an affordability and effectiveness perspective.

There will be some in genuine need who currently don’t get the support they should and hopefully an improved and updated assessment process should help them more than current

If the overhaul is done properly, genuine claimants should have nothing to fear.

I am a genuine claimant of PIP under the current criteria. The criteria is changing, so that someone like me who needs (amongst many other things) assistance to get in the bath, will no longer qualify. This means I will lose half of my monthly PIP allowance. I am worried about that. It may make the difference between being able to live independently with paid-for care as required, and having to move back in with a parent. Yes, even though I work. I'm in my 20s, I don't want to be limited to where my parents live for the rest of my life. I have many skills to offer the workplace in fairly niche roles, which don't necessarily exist rurally where they live (for their work). My parents are getting older as well, they can't be helping me to bathe forever.

Sheeparelooseagain · 13/04/2025 15:11

"If the overhaul is done properly, genuine claimants should have nothing to fear"

The proposal includes that the most severely disabled who will never work will have benefits reduced until they are 22.

There is no chance of my son ever working so I will now be fighting for his EHCP to remain in place until he is at least 22 ( LAs generally don't want fund education for young people like him beyond 18) to compensate and so that his activities are funded.

Wildflowers99 · 13/04/2025 15:17

Sheeparelooseagain · 13/04/2025 15:11

"If the overhaul is done properly, genuine claimants should have nothing to fear"

The proposal includes that the most severely disabled who will never work will have benefits reduced until they are 22.

There is no chance of my son ever working so I will now be fighting for his EHCP to remain in place until he is at least 22 ( LAs generally don't want fund education for young people like him beyond 18) to compensate and so that his activities are funded.

I really think there does need to be a list of claimants who like your DS have no prospect of further improvement and therefore should not undergo reassessment. I don’t really understand why this isn’t done - anyone with a severe learning difficulty will never work so what’s the point. It seems unnecessary and stressful.

TigerRag · 13/04/2025 15:17

Pandersmum · 13/04/2025 14:24

I think the current system is not fit for purpose. Both from an affordability and effectiveness perspective.

There will be some in genuine need who currently don’t get the support they should and hopefully an improved and updated assessment process should help them more than current

If the overhaul is done properly, genuine claimants should have nothing to fear.

Look at the criteria. If you need assistance to wash your hair or below the waist you get 2 points. You also only get 2 points if you need assistance to undress and dress your lower body. Bizarrely you get 4 points if you need help dressing and undressing your upper body.

No one is suggesting the system needs an overhaul. But that shouldn't just be changing the criteria. Bring back paper assessments and ensure people are assessed properly.

PensionedCruiser · 13/04/2025 15:18

RejoiceandSing · 13/04/2025 15:08

I am a genuine claimant of PIP under the current criteria. The criteria is changing, so that someone like me who needs (amongst many other things) assistance to get in the bath, will no longer qualify. This means I will lose half of my monthly PIP allowance. I am worried about that. It may make the difference between being able to live independently with paid-for care as required, and having to move back in with a parent. Yes, even though I work. I'm in my 20s, I don't want to be limited to where my parents live for the rest of my life. I have many skills to offer the workplace in fairly niche roles, which don't necessarily exist rurally where they live (for their work). My parents are getting older as well, they can't be helping me to bathe forever.

I'm so sorry to hear this, RejoiceandSing, it must be a real worry for you. The prospect of losing your independence is a dreadful thing. I haven't studied the proposals closely, mainly because the Scottish Government is making soothing noises about any changes here, so I was wondering why your inability to get bathe without assistance is not going to be counted in future. Honestly, I'm not being nosey, but I am worried for you and others in this position.

ruethewhirl · 13/04/2025 15:23

Wildflowers99 · 13/04/2025 13:32

Am I not vulnerable? As a disabled woman I’ve been spammed relentlessly with 4 or 5 posters piling on at a time, been called disgraceful/stupid/half brained/idiot, been subject to posters posting each other about me in the third person.

Let me guess, that sort of ‘bullying’ is ok in your eyes as I deserve it? I’ve been unfailingly polite - no insults, no swear words, no personal accusations. You just don’t like what I’m saying. Particularly when it involves facts you don’t like.

You have chosen repeatedly, on this thread and others, to make remarks that you know damn well are inflammatory and will be upsetting to some. For people to object to these remarks is not bullying or spamming, and I think that given some of what you’ve said you’ve kind of waived your right to any extra protection by virtue of your disability, don’t you? I mean, you reap what you sow, and all that.

In any case you can’t have been that upset by it, or you’d have wound your neck in by now.

Sheeparelooseagain · 13/04/2025 15:24

"What bigger issues? In the cases I’ve seen there are no issues - their parents are perfectly pleasant and able, their home life is fine. But the children have had unfettered access to tech. "

Abuse, neglect, looked after and previously looked after children, prenatal exposure to alcohol and drugs.
There are also children with conditions such as Autism or ADHD whose needs cannot be met in mainstream school. A lot of SEMH schools take children with autism now.

Wildflowers99 · 13/04/2025 15:27

ruethewhirl · 13/04/2025 15:23

You have chosen repeatedly, on this thread and others, to make remarks that you know damn well are inflammatory and will be upsetting to some. For people to object to these remarks is not bullying or spamming, and I think that given some of what you’ve said you’ve kind of waived your right to any extra protection by virtue of your disability, don’t you? I mean, you reap what you sow, and all that.

In any case you can’t have been that upset by it, or you’d have wound your neck in by now.

Objecting to the remarks isn’t. Pile ons and personal insults might be though?

BlackWhiteCircle · 13/04/2025 15:29

Had a mirror I think article in my Facebook feed. Seemed written by someone just to rule people up and the photos were obviously AI generated!

Wildflowers99 · 13/04/2025 15:36

Sheeparelooseagain · 13/04/2025 15:24

"What bigger issues? In the cases I’ve seen there are no issues - their parents are perfectly pleasant and able, their home life is fine. But the children have had unfettered access to tech. "

Abuse, neglect, looked after and previously looked after children, prenatal exposure to alcohol and drugs.
There are also children with conditions such as Autism or ADHD whose needs cannot be met in mainstream school. A lot of SEMH schools take children with autism now.

I’ve seen 25-30 SEMH cases now and in 2/3 to 3/4 of them, none of what you have said applies. Their homes are adequate but a pattern emerges: unfettered screen use, huge meltdowns, school refusal where the child then stays home on more screens and slowly withdraws into an online world and their problems get more and more severe.

RejoiceandSing · 13/04/2025 15:43

PensionedCruiser · 13/04/2025 15:18

I'm so sorry to hear this, RejoiceandSing, it must be a real worry for you. The prospect of losing your independence is a dreadful thing. I haven't studied the proposals closely, mainly because the Scottish Government is making soothing noises about any changes here, so I was wondering why your inability to get bathe without assistance is not going to be counted in future. Honestly, I'm not being nosey, but I am worried for you and others in this position.

I think I get 3 points at present on bathing, and I'd need 4 in any one area as well as a cumulative 8 to get what I get now on daily living.

PandoraSox · 13/04/2025 15:53

RejoiceandSing · 13/04/2025 15:43

I think I get 3 points at present on bathing, and I'd need 4 in any one area as well as a cumulative 8 to get what I get now on daily living.

It is appalling and senseless that someone like you would lose the daily living component.

I really hope the government has a re-think about the 4 points.

GivenUpOnSleep · 13/04/2025 15:59

Navigo · 13/04/2025 13:50

Why are you making up stuff now? You are not coming across well. I’m afraid that you now look like you have a chip on your shoulder and an agenda here. I am sorry you have suffered at the hands of SS. But your case is just that, your case. You are being unfair.

Yeah, sure. I’m the unreasonable person on this thread. 😉

GivenUpOnSleep · 13/04/2025 16:02

Wildflowers99 · 13/04/2025 15:04

What bigger issues? In the cases I’ve seen there are no issues - their parents are perfectly pleasant and able, their home life is fine. But the children have had unfettered access to tech. I’m not making this up, obviously I can’t give any details but honestly this does happen, and more often than you think.

Still going to carry on with it, having taken on board nothing whatsoever that anybody has said to you, I see.

GivenUpOnSleep · 13/04/2025 16:04

Wildflowers99 · 13/04/2025 12:27

They sleep at night because they know they can’t fulfil all the EHCPs even if they wanted to. We now have well over half a million children with EHCPs and the cost is so enormous councils have gone, or are going, bankrupt. The ‘nasty council employee rubbing their hands together at the thought of depriving disabled kids’ is a myth. What you have is a massively overstretched resource doing its best but ultimately skint.

https://www.theguardian.com/uk-news/2025/mar/03/a-ticking-time-bomb-the-neglected-crisis-of-send-education-in-england

I’m afraid that is not a legally valid defence for deliberately breaking the law, let alone repeatedly. They belong in prison like all other criminals.

Wildflowers99 · 13/04/2025 16:05

GivenUpOnSleep · 13/04/2025 16:02

Still going to carry on with it, having taken on board nothing whatsoever that anybody has said to you, I see.

Why are you not taking on board what I say?

Wildflowers99 · 13/04/2025 16:06

GivenUpOnSleep · 13/04/2025 16:04

I’m afraid that is not a legally valid defence for deliberately breaking the law, let alone repeatedly. They belong in prison like all other criminals.

Then who would volunteer to do their jobs? Nobody would want it because of attitudes like yours.

Wildflowers99 · 13/04/2025 16:10

Also I find it laughable that you think individual employees should be in jail because their department breaks the law. Thankfully, the law doesn’t agree with you there..

ruethewhirl · 13/04/2025 16:11

Wildflowers99 · 13/04/2025 15:27

Objecting to the remarks isn’t. Pile ons and personal insults might be though?

If multiple people respond negatively it can be construed as a pile-on, true. In the context of this thread though, I think it speaks more of how offensive some of your comments have been.

Personal insults are typically deleted once reported. Again, though ‘personal’ is a somewhat fluid term. People objecting to your posts in strong terms isn’t the same thing.

Navigo · 13/04/2025 16:13

GivenUpOnSleep · 13/04/2025 15:59

Yeah, sure. I’m the unreasonable person on this thread. 😉

Not the only one of course.

Wildflowers99 · 13/04/2025 16:25

ruethewhirl · 13/04/2025 16:11

If multiple people respond negatively it can be construed as a pile-on, true. In the context of this thread though, I think it speaks more of how offensive some of your comments have been.

Personal insults are typically deleted once reported. Again, though ‘personal’ is a somewhat fluid term. People objecting to your posts in strong terms isn’t the same thing.

How convenient!

Commonsense22 · 13/04/2025 16:36

PIP is stressful not get for honest, non deceitful people. Those who are worried their true but not box ticking words will exclude them.

People who are deceitful, of which there are many, are not humiliated or scared about the process. Because it's not about their vulnerabilities, it's them thinking they can outsmart the system. They even get pleasure from it as it's a power trip.

Of course it's massive issue. Newspaper articles are inflammatory about everything, this is sad and true and the benefits issue is an easy target for them as it's relatable to everyone and emotive.

It's surely disingenuous to deny the abundance of people gaming the system, and the assessment baded on key words and boxes ticked is woefully inadequate. It by design trips up the genuine claimants and vets the frauds.

I don't know though if any system allowing for assessment based on the claimants own words is possible to support. It's just not viable.

TigerRag · 13/04/2025 16:39

Commonsense22 · 13/04/2025 16:36

PIP is stressful not get for honest, non deceitful people. Those who are worried their true but not box ticking words will exclude them.

People who are deceitful, of which there are many, are not humiliated or scared about the process. Because it's not about their vulnerabilities, it's them thinking they can outsmart the system. They even get pleasure from it as it's a power trip.

Of course it's massive issue. Newspaper articles are inflammatory about everything, this is sad and true and the benefits issue is an easy target for them as it's relatable to everyone and emotive.

It's surely disingenuous to deny the abundance of people gaming the system, and the assessment baded on key words and boxes ticked is woefully inadequate. It by design trips up the genuine claimants and vets the frauds.

I don't know though if any system allowing for assessment based on the claimants own words is possible to support. It's just not viable.

Edited

Are you seriously suggesting that blind people are faking it? RNIB are very concerned about how these changes affect those of us who are blind or partially sighted..

I'm worried because I only scored a maximum of 2s. I should, having gone through the criteria get at least a 4.

My claim is genuine. Just because someone scored 2s doesn't mean they're faking it.

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