To be sick of all the newspaper articles saying lies about DLA and PIP

[elliejjtiny]

To get any DLA or PIP you have to be significantly disabled. To get the higher rate of either part you have to be severely disabled.

A motability car is not free, it's rented. To get one you need to either be unable to walk 50 metres or have a severe learning disability, which is very difficult to get.

It's always happened but since the stuff in the news about changes to PIP it's got worse.

Articles in the newspapers claiming you can get a free car for bed wetting, which just doesn't happen. There will be children like my ds who get DLA because they have a number of problems including bedwetting but nobody gets high rate mobility for bed wetting on its own.

There are other articles about people claiming PIP and DLA for various minor sounding conditions and I am so fed up with it. I know from experience that the newspapers will have talked to people claiming PIP/DLA and twist everything they say to make them sound like a scrounger.

All these articles are giving off the message that anyone with any minor disability can claim loads of benefits.

My son had cancer and was still in hospital when I started filling out the form so I had assistance from an oncology social worker (like the kid version of a macmillan nurse) and an oncology family support worker.

They told me what evidence they would expect and suggested things such as making sure it was clear on the form and the evidence that he can't walk at all because if I wasn't, he'd either get low rate mobility or not get mobility awarded at all.

The evidence I sent, for the record.

oncology consultant
gastro consultant
bowel nurse
physio
OT
speech & language
psychologist
oncology social worker
gastro social worker

I've since sent his hospital discharge letter which was 4 pages long and very recently, his EHCP as he starts back at school after the easter holidays.

And how many cases do they make up?

Ok - so the PIP forms themselves didn’t demand evidence? (Really hope things have got better for you. That all sounds nightmarish)

Not committed, that is a bit of a stretch. I don't know, maybe I am just responding to what is essentially a chat forum! 🙄 You are the one on here talking about your Cousin like that. And yes there are a lot of dubious claims on here, that's for sure!

The DLA form asks for supporting evidence and both the social worker and family support worker who help oncology families with DLA forms daily told me that supporting evidence is vital. They have seen children with cancer be denied DLA completely even with supporting evidence.

Thanks. He's in remission which is wonderful news but unfortunately, his body won't ever be the same again thanks to cancer. We're hoping he will eventually learn how to walk again but it's all a big unknown right now.

He had an incredibly low chance of survival so hopefully he will carry on beating the odds!

Why do these threads always descend into ND bashing by a particular poster?

They obviously have a problem. I applaud the poster who has taken them on, for her patience alone!

Posters keep suggesting reasons over this thread and many other threads.
You ignore each and every one because it’s not fitting your narrative of shitty parents with shitty children.
Like I said before, at this point I believe you’re trolling because surely no one could genuinely be this obtuse.

Like a moth to a flame innit.

They say they are disabled but not on benefits. Why do they comment on these threads with their hate? It is so upsetting to see.

Because it’s such a massive topic now that inevitably these arguments will move onto the topic of neurodiversity.

You can’t have every other poster either ND themselves or with ND children, demand people ‘educate themselves’ on the topic, want the entire world to reorder itself to suit ND people, without those people querying what it all means and whether or not they agree with what is being put to them.

It’s the same with gender identity. It’s being imposed upon the public and they’re being ordered to just seamlessly assimilate what they’re told, but people have their own minds.

I know. I’ve reported but MN are shit at moderating these threads. Probably because they draw in fuckwits revenue.

I don’t hate anyone.

In the same way the gender critical posters on here don’t ‘hate’ trans people.

Thank God he’s in remission, where there is life there is hope. Best wishes for his ongoing recovery.

I was curious as to whether the application demands specific things, or whether it’s a general ‘attach supporting evidence here’. As many posters say they had to supply lots of evidence - but that’s not the same as lots of evidence actually being requested. If you see what I mean

If you use the social model of disability then a lot if ND people are disabled because the world is not friendly to ND.
If you had an island of totally deaf people that use BSL, someone who can hear and not know BSL is going to be the disabled one.
That is how some of us with ND feel in the world right now. We are an Android in a world of Iphones.

Gender identity is totally different. Women's safe spaces are at risk. No one is at risk for making the world better for ND people. No one is being imposed upon for it either.

You get told to educate yourself on the topic because it is not up to disabled people to explain themselves to you. Your ignorance is your problem and your problem alone to solve.

This is true of pretty much every brain condition that there is. Brains are more complex that our most advanced supercomputers.

You might was to look, for example, at this:

https://www.thetimes.com/uk/science/article/map-brain-watershed-neuroscience-mice-787r0nbpl

Understandably, the human brain is the least understood organ in the body. Yet you don’t seem to be going around claiming that other neurological conditions don’t exist, so why do you have a specific issue with these particular ones (aside from the fact that the Daily Mail really hates them and denies their existence).

Before there was a test for various cancers, or diabetes, or asthma, did that mean they didn’t exist? That the people suffering the symptoms of them were just making it up, until the day that doctors found a way to actually prove each case rather than diagnose it from the very apparent symptoms?

Your comments are illogical, and just aren’t how medicine or science function, denying the existence of observable phenomena until we have a full explanation of how they work. Otherwise we’d still be claiming there weren’t any other stars in the universe and all of those twinkly lights at night must just be fairies flying around spreading fairy dust.

What on earth do you mean by “crunch the issue of neurodiversity”? So weird. What are you intending to do? Throw all of the people with neurological conditions into the back of a refuse collection lorry to be compressed and disposed of?

I also note how you’ve refused to respond to my comments about economics, now that you have belatedly realised that I’m not another person that you believe is beneath you as someone who isn’t in employment, and actually somebody who knows more about it than you do who you can’t bully.

Your disgusting ableist comments denying that people’s medical problems exist is in no way comparable to people being gender critical. In fact you’re more in line with those promoting unscientific beliefs that people can change sex, with your denial of the existence of medical conditions that you don’t like with no scientific evidence to support your assertions. You’re very firmly on the side of the flat earthers and fantastists and deniers of science.

Yep. But Dr Wildflowers is in charge now, so presumably none of them exist either….

Many posters on MN are ND, very often we don’t socialise much in rl and this is where we go, or other places.

For that same reason a higher than average number of us will be posting about our ND children, in fact MN has been one of the best places for advice and help in all things ND.

I don’t recall posters demanding you educate yourself. What I have seen is posters across various threads patiently explaining their lives, their children’s challenges, the issues faced in schools, and every single time you go all Teflon on them and are impervious. You’d rather blinkeredly sticking to your opinion, which has little basis in fact.

No one is expecting the world to reorder itself for us. It would be nice if education wasn’t so hostile towards many of us and our children though. It would also be nice if CAMHS learnt how to properly support our children instead of routinely dismissing them. All children have a right to education, and when that setting makes our children’s (and therefore their family’s) lives much worse, we are allowed to complain about that and dare to hope that things could be better for them one day.

Autism in some form or other has been studied since the 1800s. For the last 80 years it’s increased in a way that has informed modern medicine. It still holds some mysteries, but is very much a real thing, diagnosed by observable behaviour.

Gender ideology is a very poor comparison. In its current form the definition of trans has only been around for 11 years, since gay marriage was allowed and Stonewall basically became redundant overnight and needed a new direction. Humans thinking they can change sex is a batshit comparison for decades of hard research on autism. Gender ideology is akin to religion, which would disappear in an instant if we relied only on facts. Autism in the other hand is very well researched and documented.

I am ND as is my boyfriend. Both if us have criminal records because we have had meltdowns in public. We dont choose how our meltdowns present - our body and mind literally does. It is embarrassing and causes a lot of issues.
I have severe anxiety and am scared to leave the house incase I get overwhelmed and have a meltdown that my body dictates. I have no control on what direction it goes in. All I can do is avoid the triggers. So I am trapped at home.

Bring on assisted dying. I will be using it.

I actually think it’s very comparable .

No. That poster was responding to me and that wasn’t what I was saying at all. Please read my comments on the thread properly if you’re going to comment about them and don’t misrepresent me.

It mentions supportive evidence a few times in the forms. You need evidence to back up what you say on the form so I asked physio and OT to write a letter about how he can't walk, his oncologist obviously confirmed that he had cancer which caused all of the complications and then the gastro consultant and bowel nurse explained that he had a stoma and needed nutrition feeds through his central line because his bowel is damaged etc.

I couldn't imagine them approving his DLA with just me stating on the form that he has cancer, can't walk and his bowel doesn't work properly so he needs feeds. Those who advised me in hospital who, like I said, deal with DLA every day made it very clear that evidence was vital, as much as possible because ''we know what they are like''.

Gender identity has been around since the 1960s, so a good 60 years. There are 90 year old people who claim to have always known they were trans. I believe that THEY believe they’re trans, in the way I believe people who believe themselves to be neurodiverse also really believe that. But that doesn’t mean I believe it necessarily, perhaps I can be more objective.

Yes autism has been around a LONG time but in a completely different format to now. It was a very rare and quite narrow diagnosis. It didn’t have various ‘profiles’ with the main symptoms being anger, non verbalism, or what we used to call agoraphobia or a nervous breakdown. In the way you critique the modern application of transgender, I see autism in the same way. What was a very unusual diagnosis with strict criteria now means virtually anything really, it can be bended to encompass so many things.

I assume from your post you’re gender critical? I assume you don’t hate trans people, and you don’t think the way you do to be cruel or bullying? So can you accept some people may feel the same about ND?