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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

New view on mental health

353 replies

Finallylostit · 06/04/2025 17:40

Read this today. This Doctor is refreshingly honest and a thought provoking perspective on the explosion in the mental health industry

www.dailymail.co.uk/health/article-14576559/REAL-cause-explosion-autism-depression-psychiatrist-DR-ALISTAIR-SANTHOUSE.html

OP posts:
Thread gallery
7
LegoTherapy · 07/04/2025 08:56

@AnnieMaud thank you for the OU link I’ve just signed up.

Isthiswhatmenthink · 07/04/2025 08:59

Riaanna · 06/04/2025 22:38

But she can’t have high needs by your logic. Because she goes to a mainstream school. Has friends. And will almost certainly go to university, get a job and live independently.

Yeah, I’m not sure that’s what they poster said.

AroundTheMulberryBush · 07/04/2025 09:02

Wildflowers99 · 06/04/2025 20:30

Well I know several children who are completely non verbal and very disabled, and their sole diagnosis is ‘autism’. The same autism as apparently Bella Ramsey has. How are we so certain they have the same thing?

I have long wondered about the diagnosis of autism and how it presents so differently from one person to the next. In those most severely affected,; is it a case of those individuals having comornid conditions which manifest as they do because of the underlying autism? I don't know but it seems crazy to me that Sarah off tiktok who dances to list the symptoms of her autism is classed as having the same condition as John who is non verbal, unable to meet the most basic of his own needs such as continence and is unable to communicate verbally.

Riaanna · 07/04/2025 09:03

Itssofunny · 06/04/2025 22:57

Okay, I really do want to head to bed, but clearly am struggling to switch off.

To answer your question, I actually think it really matters how depressed someone is, how deaf they are etc.

For one thing, no matter how bad things are we can be grateful they're not worse. If I were paralysed in one arm I would be relieved that I wasn't paralysed from the neck down.

More personally, I lost my dad to cancer, and am honestly grateful that it was a slightly milder form, giving us extra years together.

Secondly, it makes a massive difference in the accommodations, care, and support needed. Someone depressed to the point of suicide definitely needs more intense, round-the-clock care than someone depressed but not suicidal.

Again you’re missing the point. The severity impacts treatment abs support but it dissent change the condition itself. And you aren’t - as a lay person - able to measure impact. That’s down to the professionals. You’re also making assumptions that your perception of severity actually matters. The non verbal autistic person might not have intellectual delays. The autistic adult with intellectual delays might be the happiest soul. And, like I said, the child in a mainstream school with friends might not be able to use a toilet. Or have significant mental health needs.

CautiousLurker01 · 07/04/2025 09:04

AroundTheMulberryBush · 07/04/2025 09:02

I have long wondered about the diagnosis of autism and how it presents so differently from one person to the next. In those most severely affected,; is it a case of those individuals having comornid conditions which manifest as they do because of the underlying autism? I don't know but it seems crazy to me that Sarah off tiktok who dances to list the symptoms of her autism is classed as having the same condition as John who is non verbal, unable to meet the most basic of his own needs such as continence and is unable to communicate verbally.

They don’t have the same condition. They both have AN ‘autism spectrum condition’ - it’s a spectrum…

Mightymoog · 07/04/2025 09:05

CautiousLurker01 · 07/04/2025 08:41

downs syndrome [autism] doesn't have a range though. it's a chromosomal abnormality which is very very easy to test for.
The way that impacts a person may differ but the actual syndrome is black and white that you either have it or you don't

reading comprehension tip: ‘is like’ does not mean ‘is the same’ and comments may refer in part to a post, rather than the whole of it.

no need to be facetious…

Edited

sorry, that doesn't make sense.
Downs syndrome is a chromosomal abnormality therefore very easy to ascertain.
Autism isn't

CautiousLurker01 · 07/04/2025 09:09

Mightymoog · 07/04/2025 09:05

sorry, that doesn't make sense.
Downs syndrome is a chromosomal abnormality therefore very easy to ascertain.
Autism isn't

AUTISM is ALIKE in that it CAN be tested for; its IMPACT on the person may DIFFER; but you either have it or you don’t.

not responding to you any further.

Riaanna · 07/04/2025 09:09

Wildflowers99 · 07/04/2025 07:16

It’s not underfunded. ASD is costing a fortune. In my town alone (medium size) 2 specialist SEMH schools have opened primarily for autism, and many schools now have autism wings. 121s, transport, EHCPs, the staggering cost of special school places, the reason councils are basically bankrupt is because of the rise of needs in ND school children. That’s not a value judgement of the kids, they’re entitled to what they get. But as a society in the last 5 years alone we have had to give a staggering amount to a couple of conditions that seem to have skyrocketed from nowhere.

Even Labour have said there is no more money for SEN as it’s had everything.

You’re aware that’s because of underfunding right? Advisory services are now becoming traded. You cannot access any professional advice at all within schools unless you pay for it and CAMHS only see children if they’re an immediate imminent threat to life. Suicide attempt doesn’t qualify if deemed not serious. It’s an absolute nightmare for educators and parents. The end result of the underfunding and lack of early support is that an increasing number of children now have escalating and serious SEMH needs that cannot be met by mainstream schools. This is entirely due to under resourced and under funded provision.

P0ndl1f3 · 07/04/2025 09:10

Mightymoog · 07/04/2025 09:05

sorry, that doesn't make sense.
Downs syndrome is a chromosomal abnormality therefore very easy to ascertain.
Autism isn't

Why are we pulling apart autism diagnosis yet again. It wasn’t even what the crappy article was about.

CautiousLurker01 · 07/04/2025 09:13

Riaanna · 07/04/2025 09:09

You’re aware that’s because of underfunding right? Advisory services are now becoming traded. You cannot access any professional advice at all within schools unless you pay for it and CAMHS only see children if they’re an immediate imminent threat to life. Suicide attempt doesn’t qualify if deemed not serious. It’s an absolute nightmare for educators and parents. The end result of the underfunding and lack of early support is that an increasing number of children now have escalating and serious SEMH needs that cannot be met by mainstream schools. This is entirely due to under resourced and under funded provision.

This x1000%

Riaanna · 07/04/2025 09:16

CautiousLurker01 · 07/04/2025 09:04

They don’t have the same condition. They both have AN ‘autism spectrum condition’ - it’s a spectrum…

It’s not spectrum diagnostically. They have the same diagnosis. But assumptions have been made about need. You can dance to music and have significant issues. You can also dance to music and not be significantly impacted. The impact of ASD is, as has been discussed many times, huge. And that’s fine. I don’t know why people demand such a narrow range for this. We don’t for anything else.

Mightymoog · 07/04/2025 09:20

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

P0ndl1f3 · 07/04/2025 09:22

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

Oh the goady anti autism posters are out again. Would have thought it’s obvious why she’s angry.

Riaanna · 07/04/2025 09:31

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

I’m going to assume genuine intent from you rather than you just trying to upset others.

Being autistic is often very disabling for the individual. How that looks varies. No one is disputing that. But there is no place for judgment in this nor assumptions. The only people who know the impact are the autistic individuals and their caregivers if they need them.

Tinyrabbit · 07/04/2025 09:59

Wildflowers99 · 06/04/2025 20:30

Well I know several children who are completely non verbal and very disabled, and their sole diagnosis is ‘autism’. The same autism as apparently Bella Ramsey has. How are we so certain they have the same thing?

My cousin was diagnosed as "autistic" among other learning disabilities. She is, basically, a two-year old in her forties: incontinent, non-verbal and so on. Why adding an autism diagnosis to a person with severe brain damage always struck me as bizarre.

Mightymoog · 07/04/2025 09:59

I'm baffled as to why it seems offensive to state downs syndrome is a chromosomal abnormality and autism isn't.
I'm commenting on ease of diagnosis which is what the thread is about.
Why is that offensive?

Riaanna · 07/04/2025 10:15

Tinyrabbit · 07/04/2025 09:59

My cousin was diagnosed as "autistic" among other learning disabilities. She is, basically, a two-year old in her forties: incontinent, non-verbal and so on. Why adding an autism diagnosis to a person with severe brain damage always struck me as bizarre.

What caused the “severe brain damage”?

Riaanna · 07/04/2025 10:16

Mightymoog · 07/04/2025 09:59

I'm baffled as to why it seems offensive to state downs syndrome is a chromosomal abnormality and autism isn't.
I'm commenting on ease of diagnosis which is what the thread is about.
Why is that offensive?

Because that wasn’t the point that was being made. The point is you’re autistic or you are not. You aren’t a bit autistic anymore than you’re a bit Down’s syndrome.

8dateslater · 07/04/2025 10:27

I'm autistic and I function well in some environments and terribly in others. I'm the same person and both are true of me

My dentist for example sees me with noise cancelling headphones, predominantly non verbal, very obviously doing the things that help eg hand movements and physical grounding techniques. I have big flags on the system and have to take "someone" with me as per dentist requesr. I have a somewhat limited diet that isn't great teeth wise, can't engage with photos of teeth eg xrays and really really struggle with anything teeth wise including brushing sensory wise.

My dentist assumed my wife was a paid carer and that I lived with "support" etc, that i need to be getting more input from teams etc and they put all contact through her

The rest of the time, I'm a manager in the NHS in the very team he tried to refer me to. I line manage staff, have a successful career etc. I sometimes wear loops but generally am a world apart from the person my dentist sees because the dentist is a perfect storm of trigger stacking for me.

90% of the people I encounter would put me at one end of the spectrum, my dentist genuinely thought I couldn't live independently.

Its just not clear cut.

MuffinsOrCake · 07/04/2025 10:35

Curlycurio · 07/04/2025 08:29

Hmm? What is partial ND? A little bit of autism you can just ignore and get on with life just fine? You do realise that contradicts the diagnostic criteria, right?

It has to exist because someone told me their child is partially autistic and somewhat dislexyc.

My child for example does not have diagnoses so in forums when I need infos I might say she is ND but in real life she is just NT with sensitivities.

MuffinsOrCake · 07/04/2025 10:36

yes, also my child gets on with life just absolutely fine LOL. Few sensitivities will only enrich her life rather than disable it

Riaanna · 07/04/2025 10:45

MuffinsOrCake · 07/04/2025 10:35

It has to exist because someone told me their child is partially autistic and somewhat dislexyc.

My child for example does not have diagnoses so in forums when I need infos I might say she is ND but in real life she is just NT with sensitivities.

There is no such thing as partially autistic.

Why are you telling people your child is ND if they’re not? That’s weird.

TempestTost · 07/04/2025 10:53

Itssofunny · 06/04/2025 21:00

I've been told off on other threads for saying that some people have mild autism, others more severe autism. I was told by several posters that I didn't know what I was talking about and that 'spectrum' meant that exact symptoms can vary but that it has nothing to do with severity.

My question then is how anyone can seriously think their child, attending a normal school and making friends, can in any way be considered on the same level of need as a nonverbal child who is unable to care for themselves.

I've seen it as a teacher. Some kids have autism and I would barely even know if the parents didn't tell me. Others have autism and simply can't function in a standard classroom, meaning they have to attend a more specialised school. These kids don't have the same level of severity of autism. They just don't.

Yes, and frankly in many cases it's not just severity. There are fairly high functioning kids and adults, and then some, more recently, who IMO aren't even that, they are are people with some similarities in personality traits. ANd then you have people like my niece who will never live alone, who will do things like smear menstrual blood on the wall, who can only speak in pre-digested phrases from TV shows. And there are also people who are much worse off who are totally non-verbal, violent, self-harming, who can't even be left alone.

In certain autism groups you will see the idea that these people have "co-morbidities" so their real issue isn't autism. Ignoring that autism is in fact their diagnosis - that's just supposition. There is actually very little reason to think that all of these people have the same problems or the same causes.

I think a lot of people believe that diagnosis of many conditions is much more objective than it in fact is. Just because people have developed a test, and it's been put into general use, does not mean its a great test or defines a condition correctly. Any close study of the history of these kinds of diagnosis will show that they change all the time, get debunked, etc. Psychologists love to develop these kinds of tests but that doesn't necessarily mean they are very good tests.

Curlycurio · 07/04/2025 10:53

AroundTheMulberryBush · 07/04/2025 09:02

I have long wondered about the diagnosis of autism and how it presents so differently from one person to the next. In those most severely affected,; is it a case of those individuals having comornid conditions which manifest as they do because of the underlying autism? I don't know but it seems crazy to me that Sarah off tiktok who dances to list the symptoms of her autism is classed as having the same condition as John who is non verbal, unable to meet the most basic of his own needs such as continence and is unable to communicate verbally.

If you are wondering about it there is a lot of information out there to read. For example the very idea of the spectrum, and that different autistic people will have differences in different aspects, some of which are more visible than others.

I also think it's worth pointing out here that not all autistic people do have the same diagnosis as such. For example, some are also diagnosed with a language or learning disability. Some have a high IQ. All are disabled in order to be diagnosed but this shows up in different ways due to the nature of the spectrum disorder.

TempestTost · 07/04/2025 10:56

CautiousLurker01 · 07/04/2025 09:04

They don’t have the same condition. They both have AN ‘autism spectrum condition’ - it’s a spectrum…

The point is that no one really knows that, or what it means. It's just a label being applied based on some symptoms. The may or may not reflect a similar profile in terms of physiology, disease history, the causes. They really have very little idea.

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