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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Partner got a reactive HIV test result

89 replies

Foreverstar · 06/03/2025 20:59

Not sure if I'm posting in the right place but not sure where else to...My partner of 3.5 years got tested for STIs last week after speaking to his GP and having had a sore penis for a couple of weeks. He got the results earlier this week just before heading abroad to visit family. The HIV test came back with a reactive result, everything else clear. He needs to get tested again and they've told him it could be a false positive. I'm obviously worried. We both did an STI test when we got together except his blood test didn't have sufficient to get results for the HIV test but all else clear. I'm as sure as I possibly can be that he hasn't cheated and know it could be a false positive and also that it can lay dormant for years but I know he has had what could be called a very relaxed approach to contraception in the past (idiot I know!)...how worried should I be? Had anyone else had this? I realise even if it is positive treatment etc has massively advanced but he's away with limited contact and I can't really discuss with anyone at present...

OP posts:
WetBandits · 06/03/2025 22:48

redphonecase · 06/03/2025 22:33

sorry, < 2% are false +ve.........

https://i-base.info/guides/testing/test-accuracy-results-and-further-testing

https://pmc.ncbi.nlm.nih.gov/articles/PMC10911647/

https://pmc.ncbi.nlm.nih.gov/articles/PMC2952989/

https://journals.lww.com/jaids/fulltext/2024/12010/true_and_false_positive_hiv_point_of_care_test.7.aspx

he's almost certainly positive and you need to get tested asap

we both did an STI test when we got together except his blood test didn't have sufficient to get results for the HIV test but all else clear unless you actually saw that written down from the clinic, I call bullshit. Worked in GU clinics for many years and have never seen that happen.

Really? I repeat HIV tests all the time from home testing kits, usually due to an under-filled specimen container as they are really hard to fill.

FeministUnderTheCatriarchy · 06/03/2025 22:53

Mirabai · 06/03/2025 22:13

Good luck OP. I’m afraid my reaction to his blood test insufficient to get results for the HIV test is skepticism. Unlikely and he could always have taken it again.

My first thoughts also...

DarkMagicStars · 06/03/2025 22:58

Book an appointment for a full screening tomorrow. You can never be certain your partner hasn’t cheated.

Totototo · 06/03/2025 23:10

Foreverstar · 06/03/2025 21:46

Thanks everyone, obviously I don't really feel able to talk to people I know until he's back and takes the next test. It was a rapid test so hoping it is a false positive. I found the same stats that it is around a 28% chance given he's British so not from a country with a higher rate of HIV. Reading re treatment has been some comfort as it looks like it can reach the point of being non-transferable. Know I'll need to test, it was a home test we both did when we got together originally and he couldn't draw much blood which is why that one really didn't come through. I've seen all his other results, he's very transparent, like many of you have said it is simply a worrying time.

This is something that would concern me from the start. This would have made me suspicious from the beginning.

Do your own test asap.

Why wait?

redphonecase · 06/03/2025 23:21

WetBandits · 06/03/2025 22:46

Hi OP, I work in sexual health Smile

If I had a penny for every reactive HIV test I’ve repeated and sent to the lab, I wouldn’t need to work as a nurse anymore! Hopefully it will reassure you to know that I’ve not had any come back as true positives, and I have done hundreds of repeats.

Please don’t listen to the posters who are adamant that he is ‘almost certainly positive’ (I’m particularly surprised that the poster who claims to work in GUM would try to scare you like that as reactive does NOT mean false positive, it just means reactive), the home testing kits are a real fucker for reactive results. It does occasionally happen with lab bloods, but it’s less common. We have one patient whose result is reactive every single time we take it so we have to send it off to a special lab for extensive testing each time as he is high risk for a ‘real’ positive so we need to be sure.

Basically, the test works by looking for an indicator of HIV in the blood, almost like a ‘key’ that will unlock the result and show as reactive. If there’s no key, it’s a straight negative. If there’s a key that opens the door, it’s positive. Occasionally, someone will just happen to have a different key that fits in the lock, but doesn’t open the door, which is a reactive. Sometimes the key has disappeared by the time the bloods are repeated, and there is a clear negative. Sometimes the key opens the door in the repeat and it’s a positive. Sorry if that sounds horrendously patronising, it isn’t meant to be! It’s just how I usually explain it to patients in layman’s terms as most people can wrap their heads around it a bit better as it can be really overwhelming.

Please try not to worry about it until you have the repeated result. I know it’s easier said than done!

Wasn't a home test, sounds like a POCT in clinic.

redphonecase · 06/03/2025 23:22

WetBandits · 06/03/2025 22:48

Really? I repeat HIV tests all the time from home testing kits, usually due to an under-filled specimen container as they are really hard to fill.

Unless I misread, it was POCT in clinic, not a home one

Tandora · 07/03/2025 00:00

Gosh what a worrying time for you OP. You’ve had some great responses here. The chances are it is just a reactive test- not a true positive. In the minority chance he is positive , the treatments these days are excellent and he can live a normal life with HIV. Even if he is positive, again, the chances he’s passed it to you are also small. Sending hugs. hope it gets sorted soon xx

WetBandits · 07/03/2025 00:04

redphonecase · 06/03/2025 23:21

Wasn't a home test, sounds like a POCT in clinic.

I’ve also performed reactive POCTs which have returned negative lab results! That’s never fun as it’s horrendous having to try and explain it to someone who is already going to pieces in front of you and not retaining anything you’re telling them Sad and always late on a Friday afternoon when you can’t chase the lab for an urgent result!

PandaTime · 07/03/2025 00:56

redphonecase · 06/03/2025 23:22

Unless I misread, it was POCT in clinic, not a home one

The test with the insufficient blood sample was a home test.

Karen4President · 07/03/2025 01:38

PandaTime · 07/03/2025 00:56

The test with the insufficient blood sample was a home test.

Yes and the most recent test was a lab one.

PandaTime · 07/03/2025 01:55

Karen4President · 07/03/2025 01:38

Yes and the most recent test was a lab one.

Yes? I was replying to the poster who said it was a POCT in response to people talking about the insufficient sample test.

redphonecase · 07/03/2025 08:58

PandaTime · 07/03/2025 01:55

Yes? I was replying to the poster who said it was a POCT in response to people talking about the insufficient sample test.

ah sorry, didn't realise the insufficient one was a home one - take that comment back.

OP, assume you're getting tested now - try not to stress too much because even in worst case scenario, HIV is a chronic treatable disease with normal life expectancy, arguably less dangerous than diabetes.

Isthiswhatmenthink · 07/03/2025 09:21

we both did an STI test when we got together except his blood test didn't have sufficient to get results for the HIV test but all else clearunless you actually saw that written down from the clinic, I call bullshit. Worked in GU clinics for many years and have never seen that happen”

Quite. I think there’s more to this. And if so, I really hope he hasn’t been having sex with you without barrier contraception.

Maddy70 · 07/03/2025 09:42

Even if it is positive. It's not the disease it was. I have several friends with hiv who live perfectly normal lives they are amazing medication that stops it being transferred to anyone else. They have perfectly normal sex lives etc so try. It to worry you do need to get checked

Totototo · 07/03/2025 10:13

@WetBandits you need to reply to the threads appropriately I can’t believe someone who works in sexual health can get everything so muddled up! You have completely confused what tests other posters have referred to and given bad information based on your confusion!

WetBandits · 07/03/2025 10:17

Totototo · 07/03/2025 10:13

@WetBandits you need to reply to the threads appropriately I can’t believe someone who works in sexual health can get everything so muddled up! You have completely confused what tests other posters have referred to and given bad information based on your confusion!

Edited

What are you going on about? Confused

Totototo · 07/03/2025 10:28

Please don't listen to the posters who are adamant that he is 'almost certainly positive' (I'm particularly surprised that the poster who claims to work in GUM would try to scare you like that as reactive does NOT mean false positive, it just means reactive), the home testing kits are a real fucker for reactive results.
It does occasionally happen with lab bloods, but it's less common. We have one patient whose result is reactive every single time we take it so we have to send it off to a special lab for extensive testing each time as he is high risk for a 'real' positive so we need to be sure.

@WetBandits you put down a nurse by saying reactive home tests when OP and the nurse you insult wasn’t even talking about a reactive home test! It was a reactive LAB test!!!!! Read the posts and give appropriate advice. The home test was dodged by the OP’s boyfriend because of insufficient blood RED FLAG number one.

WetBandits · 07/03/2025 10:34

Totototo · 07/03/2025 10:28

Please don't listen to the posters who are adamant that he is 'almost certainly positive' (I'm particularly surprised that the poster who claims to work in GUM would try to scare you like that as reactive does NOT mean false positive, it just means reactive), the home testing kits are a real fucker for reactive results.
It does occasionally happen with lab bloods, but it's less common. We have one patient whose result is reactive every single time we take it so we have to send it off to a special lab for extensive testing each time as he is high risk for a 'real' positive so we need to be sure.

@WetBandits you put down a nurse by saying reactive home tests when OP and the nurse you insult wasn’t even talking about a reactive home test! It was a reactive LAB test!!!!! Read the posts and give appropriate advice. The home test was dodged by the OP’s boyfriend because of insufficient blood RED FLAG number one.

Edited

I’ve explained it to the OP, I’m not explaining it again to someone on a rant because they’ve got out of bed on the wrong side. I’ve seen some your comments on other posts, you are very strange and antagonistic and I’m not rising to it.

I’ve given the OP a clear and comprehensive explanation and advice re the question she asked. You have a good day now.

Totototo · 07/03/2025 10:37

This reply has been deleted

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Tandora · 07/03/2025 12:00

Totototo · 07/03/2025 10:13

@WetBandits you need to reply to the threads appropriately I can’t believe someone who works in sexual health can get everything so muddled up! You have completely confused what tests other posters have referred to and given bad information based on your confusion!

Edited

No she hasn’t at all. She’s given really helpful and appropriate advice based on her experience. No need for you to pick a fight and derail the thread.

Totototo · 07/03/2025 12:36

Tandora · 07/03/2025 12:00

No she hasn’t at all. She’s given really helpful and appropriate advice based on her experience. No need for you to pick a fight and derail the thread.

Below is what they advised and it is completely wrong and also unprofessional and inappropriate to mention a patient in their care and calling that patient high risk for HIV is also unprofessional given that this patient could easily identify themselves from the details in their reply. Also trolling me and calling me names by bringing up comments I have made on other threads is stalking behaviour imo.

‘Please don't listen to the posters who are adamant that he is 'almost certainly positive' (I'm particularly surprised that the poster who claims to work in GUM would try to scare you like that as reactive does NOT mean false positive, it just means reactive), the home testing kits are a real fucker for reactive results.
It does occasionally happen with lab bloods, but it's less common. We have one patient whose result is reactive every single time we take it so we have to send it off to a special lab for extensive testing each time as he is high risk for a 'real' positive so we need to be sure.’

They put down a nurse by saying reactive home tests when OP and the nurse they insulted wasn’t even talking about a reactive home test! It was a reactive LAB test!!!!! Read the posts and give appropriate advice. The home test was dodged by the OP’s boyfriend because of insufficient blood RED FLAG number one.

@WetBandits mixing up the reactive home test and reactive lab test and saying don’t listen to others who actually gave good advice on the reactive lab test being meant that @WetBandits has actually minimised the risk to OP and that is bad advice!! The worst advice anyone could give imo!

WetBandits · 07/03/2025 12:46

Totototo · 07/03/2025 12:36

Below is what they advised and it is completely wrong and also unprofessional and inappropriate to mention a patient in their care and calling that patient high risk for HIV is also unprofessional given that this patient could easily identify themselves from the details in their reply. Also trolling me and calling me names by bringing up comments I have made on other threads is stalking behaviour imo.

‘Please don't listen to the posters who are adamant that he is 'almost certainly positive' (I'm particularly surprised that the poster who claims to work in GUM would try to scare you like that as reactive does NOT mean false positive, it just means reactive), the home testing kits are a real fucker for reactive results.
It does occasionally happen with lab bloods, but it's less common. We have one patient whose result is reactive every single time we take it so we have to send it off to a special lab for extensive testing each time as he is high risk for a 'real' positive so we need to be sure.’

They put down a nurse by saying reactive home tests when OP and the nurse they insulted wasn’t even talking about a reactive home test! It was a reactive LAB test!!!!! Read the posts and give appropriate advice. The home test was dodged by the OP’s boyfriend because of insufficient blood RED FLAG number one.

@WetBandits mixing up the reactive home test and reactive lab test and saying don’t listen to others who actually gave good advice on the reactive lab test being meant that @WetBandits has actually minimised the risk to OP and that is bad advice!! The worst advice anyone could give imo!

Edited

It was a reactive POCT, which is NOT a lab test.

I can’t be bothered with you anymore, you are clearly just spoiling for a fight.

Totototo · 07/03/2025 12:52

@WetBandits have you read the research and statistics on the efficacy of POCT tests? When does OP say it was a POCT test and not a lab test?

Advising the OP to not listen to the advice of others advising her to get her own HIV test and implying this advice is trying to scare her is bad advice and I am happy for you to not be bothered with me anymore. Also, please stop using replies I’ve made on other posts because I feel this behaviour is inappropriate.

WetBandits · 07/03/2025 13:11

Totototo · 07/03/2025 12:52

@WetBandits have you read the research and statistics on the efficacy of POCT tests? When does OP say it was a POCT test and not a lab test?

Advising the OP to not listen to the advice of others advising her to get her own HIV test and implying this advice is trying to scare her is bad advice and I am happy for you to not be bothered with me anymore. Also, please stop using replies I’ve made on other posts because I feel this behaviour is inappropriate.

Edited

I never told OP not to get her own test, you’ve just pulled that out of your arse Confused I simply explained why he isn’t ’almost certainly positive’. POCTs are good, but they are not as sensitive as a lab test and cannot distinguish between a genuine positive and a nonspecific reactivity, which is why we need the lab result.

You are weird, rude and clearly have some other agenda. I’m just trying to help the OP. I have reported you for harassment because you’ve come after me for absolutely fuck all reason.

Tandora · 07/03/2025 13:31

Totototo · 07/03/2025 12:36

Below is what they advised and it is completely wrong and also unprofessional and inappropriate to mention a patient in their care and calling that patient high risk for HIV is also unprofessional given that this patient could easily identify themselves from the details in their reply. Also trolling me and calling me names by bringing up comments I have made on other threads is stalking behaviour imo.

‘Please don't listen to the posters who are adamant that he is 'almost certainly positive' (I'm particularly surprised that the poster who claims to work in GUM would try to scare you like that as reactive does NOT mean false positive, it just means reactive), the home testing kits are a real fucker for reactive results.
It does occasionally happen with lab bloods, but it's less common. We have one patient whose result is reactive every single time we take it so we have to send it off to a special lab for extensive testing each time as he is high risk for a 'real' positive so we need to be sure.’

They put down a nurse by saying reactive home tests when OP and the nurse they insulted wasn’t even talking about a reactive home test! It was a reactive LAB test!!!!! Read the posts and give appropriate advice. The home test was dodged by the OP’s boyfriend because of insufficient blood RED FLAG number one.

@WetBandits mixing up the reactive home test and reactive lab test and saying don’t listen to others who actually gave good advice on the reactive lab test being meant that @WetBandits has actually minimised the risk to OP and that is bad advice!! The worst advice anyone could give imo!

Edited

Nah you just completely misunderstood what she said and decided to start being angry and rude , it was as clear as day

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