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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

‘Game the system’ disability benefits

1000 replies

Tomatochocolate · 05/03/2025 11:30

WTF
just read a bbc article about welfare reforms

Apparently ministers think that it’s an incentive to claim disability benefits as the incentive is no work commitments on UC. That claimants ‘game the system’

It’s a long process and really hard to get awarded dla or pip. It’s not just ticking a box that says ‘I’m too sick to work’.

AIBU to think this is just horrific

OP posts:
Thread gallery
9
PandoraSox · 06/03/2025 16:08

Oof. Some of the posts on this thread have a strong whiff of "I'm alright, they'll never come for me". Don't bank on it.

Disabled people turning on other disabled people is pretty grim.

HÆLTHEPAIN · 06/03/2025 16:08

Wildflowers99 · 06/03/2025 16:07

Any others?

Why, does mine not count?

HÆLTHEPAIN · 06/03/2025 16:08

PandoraSox · 06/03/2025 16:08

Oof. Some of the posts on this thread have a strong whiff of "I'm alright, they'll never come for me". Don't bank on it.

Disabled people turning on other disabled people is pretty grim.

It really is.

iwentjasonwaterfalls · 06/03/2025 16:09

PandoraSox · 06/03/2025 16:08

Oof. Some of the posts on this thread have a strong whiff of "I'm alright, they'll never come for me". Don't bank on it.

Disabled people turning on other disabled people is pretty grim.

Well said.

JoyousGreyOrca · 06/03/2025 16:09

Wildflowers99 · 06/03/2025 16:07

Any others?

Genetic conditions where there is no treatment, you just have to get on with it.

PandoraSox · 06/03/2025 16:12

My DH and I occasionally go out to concerts, out to eat and even gasp on holiday (with much tedious research beforehand as so many places are not wheelchair friendly). I didn't realise this meant my DH was not seriously disabled.

Sheeparelooseagain · 06/03/2025 16:14

"Can you give some examples?"

Severe learning disability. If a person is healthy they won't see a consultant after childhood. My son has a severe learning disability and autism and didn't see a paediatrician after about age 10 and there is no equivalent for adults (which he is now).

PandoraSox · 06/03/2025 16:14

JoyousGreyOrca · 06/03/2025 16:09

Genetic conditions where there is no treatment, you just have to get on with it.

Yep. My DH does see his consultant once a year where it is "how have you been, sorry still no cure or treatment that'll make a difference, see you next year". It is rather pointless.

HÆLTHEPAIN · 06/03/2025 16:16

PandoraSox · 06/03/2025 16:12

My DH and I occasionally go out to concerts, out to eat and even gasp on holiday (with much tedious research beforehand as so many places are not wheelchair friendly). I didn't realise this meant my DH was not seriously disabled.

I go out for meals about once a month. I usually end up in bed for a few days afterwards. I’d love to go to a concert but the last one I tried (6 years ago) was too much for me and I had to leave early, but god forbid if I’d managed to stay and actually enjoyed myself! According to some on here that would mean I’m capable of holding down a job and not need any support at all.

TheWorminLabyrinth · 06/03/2025 16:23

"Can you give some examples?"

Stroke.

verysmellyjelly · 06/03/2025 16:39

Again, this ridiculous, exaggerated rhetoric of "turning on other disabled people" if you dare to disagree or question the current system. Sorry, but I maintain my right to think differently from you. I don't agree that being able to do any and every type of social activity means someone necessarily should be allowed disability benefits.

If you think that that someone who is in that situation should receive full benefits, fine. We disagree. But stooping to hyperbolic "you're TURNING on disabled people" in response is absurd.

verysmellyjelly · 06/03/2025 16:40

@PandoraSox If someone is seeing a consultant once a year, then that consultant could sign off on a benefits application if they felt the person was unwell enough to need them.

verysmellyjelly · 06/03/2025 16:42

PandoraSox · 06/03/2025 16:08

Oof. Some of the posts on this thread have a strong whiff of "I'm alright, they'll never come for me". Don't bank on it.

Disabled people turning on other disabled people is pretty grim.

Are you genuinely unable to conceive of disabilities where someone is so seriously unwell that they are not concerned about losing their benefits?

Your responses seem driven purely by ideological anger.

DaveyTheCavy · 06/03/2025 16:46

@ForeverDelayedEpiphany it seems we can't use PM on mumsnet right now. I wish you all the best. Flowers

verysmellyjelly · 06/03/2025 16:48

Disabled people having unapproved opinions seems to be the truly challenging thing, right, @Wildflowers99 ? Wink

iwentjasonwaterfalls · 06/03/2025 16:48

verysmellyjelly · 06/03/2025 16:01

@iwentjasonwaterfalls It's very telling that you fear having PIP taken away from you. I don't fear that. The only way that disability benefits would be taken away from me would be a total collapse of the welfare system due to the voters withdrawing public consent. I am in a clinical category where I am confident that I will continue to receive disability benefits. I don't actually feel anxiety or fear around this, however I do somewhat worry that taxpayers will be driven to the point of total consent withdrawal! That would be a truly tragic outcome for those in most need.

It's genuinely darkly comic to me that you think it should be made easier to get PIP. With what money, exactly, is this supposed to be paid for?

@verysmellyjelly you may have missed my reply; why is it "very telling"? What does it tell you about me?

PandoraSox · 06/03/2025 16:51

verysmellyjelly · 06/03/2025 16:42

Are you genuinely unable to conceive of disabilities where someone is so seriously unwell that they are not concerned about losing their benefits?

Your responses seem driven purely by ideological anger.

My DH has a serious, incurable, progressive neurological condition that will only ever get worse. His PIP award is the highest rates and light touch review every 10 years.

Even so, I am under absolutely no illusion that if benefits are taken from one cohort of disabled people, that could easily lead to more and more disabled people being targeted. It is naive of you to think that you might not ever be on the receiving end of swingeing cuts.

Disabled people need to stick together, not snipe about which disabilities are more deserving than others.

Wildflowers99 · 06/03/2025 16:54

PandoraSox · 06/03/2025 16:51

My DH has a serious, incurable, progressive neurological condition that will only ever get worse. His PIP award is the highest rates and light touch review every 10 years.

Even so, I am under absolutely no illusion that if benefits are taken from one cohort of disabled people, that could easily lead to more and more disabled people being targeted. It is naive of you to think that you might not ever be on the receiving end of swingeing cuts.

Disabled people need to stick together, not snipe about which disabilities are more deserving than others.

That’s not a reason to just keep paying more and more billions though is it? What do you want cut to keep funding this?

DaveyTheCavy · 06/03/2025 17:01

PandoraSox · 06/03/2025 16:51

My DH has a serious, incurable, progressive neurological condition that will only ever get worse. His PIP award is the highest rates and light touch review every 10 years.

Even so, I am under absolutely no illusion that if benefits are taken from one cohort of disabled people, that could easily lead to more and more disabled people being targeted. It is naive of you to think that you might not ever be on the receiving end of swingeing cuts.

Disabled people need to stick together, not snipe about which disabilities are more deserving than others.

This. @verysmellyjelly I think most of us are worried about our benefits being taken off us no matter how severely unwell we all. I have seen people with extreme lifelong conditions be refused PIP and have to appeal. People who are non verbal and have the mental capacity of toddlers kind of level of disability. It does happen.

PensionedCruiser · 06/03/2025 17:02

TigerRag · 06/03/2025 11:29

This is what I mean. He's not going to suddenly wake up tomorrow and be safe enough to go out himself

I'm of course aware that life long conditions do change. I was born with one. I'm now 36 and it has really changed (not for the better) in the last 5 years or so.

I think I should have made clearer that conditions change for most people - sadly, deterioration is the most common. However, maturity, medication and technology can sometimes make things better for some. Even if a diagnosis is unchanged, there is often change in the ways in which the condition affects a person

I am personally affected by a degenerative chronic illness which has deteriorated enormously in the last 6 months and am wrestling with a decision about whether I should inform the DWP. I don't think that I can cope with the hassle involved, though.

verysmellyjelly · 06/03/2025 17:19

@iwentjasonwaterfalls I don't respond to baiting.

verysmellyjelly · 06/03/2025 17:21

@DaveyTheCavy I wouldn't say I'm totally unworried, in that my concern is that the entire benefits system may lose public buy in and will essentially no longer exist. That's why I think it needs to be much more rigorous (by, in effect, cutting the least in need tranche).

I don't agree that there is a great need to be personally concerned if you fall within the most in need tranche, if the system continues to be sustainable. But it will not be sustainable if more and more people keep applying and being approved. So no, I would not say I have no worries! But I don't think it's honest or realistic to imply that everyone is equally at risk of losing their benefits.

iwentjasonwaterfalls · 06/03/2025 17:22

verysmellyjelly · 06/03/2025 17:19

@iwentjasonwaterfalls I don't respond to baiting.

How am I baiting? You said it's very telling, I asked you how and you're refusing to respond. If anything, you're the one doing the baiting.

Is it very telling that several other people have responded saying that they're also worried about benefits being taken off them?

I know exactly what you were implying, just wanted to see if you had the balls to go through and say it. Clearly not.

verysmellyjelly · 06/03/2025 17:23

@PandoraSox So are you saying you think the entire benefits system will collapse and no benefits will be paid at all, to even the most in need claimants? Because if that's what you're concerned about, then yes, I do share that concern and in that extreme scenario, I would also be worried about losing benefits. But if that's what you're referring to, I would think you'd have some focus on securing a sustainable system.

TheWorminLabyrinth · 06/03/2025 17:23

verysmellyjelly · 06/03/2025 17:19

@iwentjasonwaterfalls I don't respond to baiting.

How bizarre. When you tried to do that to me, earlier in the thread, and I refused to participate, you accused me of trying to shut down the discussion.

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