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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think autism gets worse with each generation

494 replies

eastereggg · 30/12/2024 16:08

Genuine question.

Why does it seem that autism gets worse with each generation?

Example: a mother is a late diagnosed autistic but her child is very clearly autistic and displays much more severe characteristics than she did. The grandmother would probably be diagnosed autistic today as well.

There seems to be a recurring pattern that I'm seeing where autism is getting more severe with each generation. Is there an explanation for this?

OP posts:
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WearyAuldWumman · 30/12/2024 17:36

Leafcrackle · 30/12/2024 17:19

Yes, I think the language has changed too. You don't hear 'shy' much anymore. Ds seems shy in public, but that's because he's not coping with the social side and needs to be prodded into 'normal' behaviours. In class, he's quiet. But give him a topic he's passionate about and he'll hold the floor. Won't look at you, mind, and if he's very engaged, you might see him fighting not to flap, like when he was young.

I used to find it satisfying to flap my mittens when I was walking out and about - fingers curled back and the ends of the mittens flapping, if you understand what I mean.

Mum: "Don't do that! People will think there's something wrong with you!"

I'm told that my mother literally hid behind her mother's skirts when she was a child.

x2boys · 30/12/2024 17:36

Whoknew24 · 30/12/2024 16:37

I have t read all comments and will get hate for this. But watching people in either friend or family form I feel they’ve escalated the situation.

one particular woman I know told me she gets the DLA higher rate, carers allowance, carers element on UC and a mobility car full UC etc . She told me she has zero work commitments and has expressed how finically lucrative it is. Now this is absolutely not the case for everyone, but I do believe in SOME cases it’s financially beneficial and that some parents do harbour their own children for financial gain. Some also love being apart of something and to share their child’s journey etc, again on watching these videos etc it again screams more about the parent/parents need for attention and a lot of the time stifling their children.

Right so my child also gets,high rate care,and,high rate mobility and,we have,a,mobility car I get cares,allowance and universal credit ,to get such high rates
The,child,will.have,significant and complex,needs,my son is,14 cannot talk.at all.can only communicate in a very basic way he goes,to a,school.for children with severe and profound learning disabilities and autism hes,cognitively around 2/3 you would you think.I wouldn't give the DLA,up.in a,heartbeat if he could live a,normal life ?,

lleeggoo · 30/12/2024 17:37

TheRoundaboutHadLovelyFlowers · 30/12/2024 17:34

There are four problems contributing in my family:

  1. the tech industry has made ASD DH and me into a big success so we had a child together who is more ASD.

  2. Something has gone wrong with food so that DS gets terrible reactions to it.

  3. The NHS has no policy for to help ASD health problems.

  4. The school system doesn't work for ASD kids in the way that it did in the 90s. The screens are everywhere and it is too much.

Poor DS is on his knees.

School didn't work for me in the 90s. I was a regular truant and with very little understanding of myself I needed the adults to protect and help me. They didn't. They punished me

My own DD is home educated now for the same reason.

The difference is I asked 'why' is she behaving like this. My parents punished me, as did the school.

Theunamedcat · 30/12/2024 17:37

In my parents generation they were put in institutes or they would work the farm they were kept away from others and not allowed relationships etc my husbands uncle was kept at home "looking after" his mother until she died he died a year or so after her because he could barely look after himself

FreedFromDesireMindAndSensesPurified · 30/12/2024 17:40

It doesn't get worse with every generation, no. The reason you think this is because the times when it does are more likely to result in no more descendants. You're not seeing a balanced sample.

ColourBlueColourPurple · 30/12/2024 17:42

Perhaps all these variations are actually different conditions but are just all being grouped under the name of autism for lack of an identified diagnosis? I mean autism seems to encompass everything from young women dancing on tiktok to a list of their symptoms to people affected so badly that they are non verbal, unable to live independently etc. Perhaps they are actually completely different conditions?

Lostinmusic22 · 30/12/2024 17:42

I think we need some well funded, proper research. We need to discuss this topic more widely. Most people are cautious around the subject but clearly sen provision is severely lacking and will in only get worse.

WearyAuldWumman · 30/12/2024 17:42

pimplebum · 30/12/2024 17:19

I was attracted to to a partner who is also an undiagnosed autistic
both our kids are SEND diagnosed and have EHCp
like attracts like
and I’ve only just spotted mil traits which have magnified since being widowed , as soon as I said it out loud to my partner I was like “doh!” How could I have not noticed her traits for last 12 years!!! they were there clear as day, I just “ got” her and we all get along nicely as we respect each other idiosyncrasities

"Like attracts like"

True. I met some of my best friends on a Doctor Who forum. Two of them got married.

My late husband used to wind me up about watching Doctor Who, but he'd sit and watch with me. Now that he's gone, the penny has dropped with me. He couldn't stand to eat certain textures: nothing jellied, for example.

He also exhibited hyperfocus. He taught himself to play various musical instruments. In his late 50s, he started going to martial arts classes. He got his black belt in his mid 60s.

I had a chance encounter with a former pupil today - he remarked on our conversations about Doctor Who when he was at school...

He introduced me to his wife, whom he met at a convention.

Solasum · 30/12/2024 17:43

Once upon a time a significant proportion of childhood would have been spent outside, giving more opportunities for being very active, and no screens.

Diet would have been much simpler and predictable, and also organic.

Children would have started work earlier, so less expectation of being tied to desks learning in a very fixed way.

Tittat50 · 30/12/2024 17:44

Anecdotal example in our case. My child seems more impacted than his dad. I'd never actually have realised or considered it ref my ex partner if it hadn't shown up with our child and his children with second partner. I really don't know if this theory you have seen in your own experience is actually something one can prove.

I agree with a poster who talked about more open SEN behaviour in this generation. So son's dad either trained himself or was trained by society to mask and find a way to 'pass'. My son, now diagnosed, now it's talked about openly and more acceptable, does do things in my presence that are obviously different. Its a bit more acceptable at school to be quirky, loads of kids with sensory gadgets etc. If living in the era of my generation, I believe my son would have masked even more than he does now so might appear less ' different '

pooballs · 30/12/2024 17:45

Well very ‘severely’ autistic adults (as in, their autism causes significant disability) are extremely unlikely to have children, so you’re way more likely to see a more ‘high functioning’ autistic parent with a more severely affected child than vice versa.

dermalermalurd · 30/12/2024 17:45

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

This is nonsense

EHCPerhaps · 30/12/2024 17:47

WhatterySquash · 30/12/2024 16:56

I have looked into this in some depth for reasons to do with my work, and it is extremely complicated and seems to have many factors. It's hard to untangle factors like more sensitive diagnostic procedures and awareness, greater acceptance, and possible environmental factors. There's even a possible evolutionary factor that has been suggested - with the rise of academia and computing as professions, autistic people gained a greater likelihood of having successful careers and prestige, making them more likely to marry and have kids etc. so changing the gene pool and increasing incidence.

There absolutely have been some studies that have supported a link between some food additives eaten when pregnant and the incidence of autism in the baby - though more research is needed, that shouldn't be dismissed out of hand. There is also evidence that being born prematurely increases the likelihood of ASD and other ND conditions. As time goes on more and more babies survive premature birth so that is likely to contribute to the rise in diagnoses.

I stress I'm not asserting any of these theories as 100% true or fully evidenced, but there definitely are a range of factors that probably interact in various ways and it's not straightforward. I also agree there may be a factor of greater acceptance meaning that children are not expected to learn to suppress or manage their difficulties in the same way they used to be.

.. so it’s maybe epigenetic? Ie the food additive somehow triggers the expression of genes that would otherwise have been dormant.?
I don’t really understand the links with environment and autism.

Tittat50 · 30/12/2024 17:48

Lostinmusic22 · 30/12/2024 17:42

I think we need some well funded, proper research. We need to discuss this topic more widely. Most people are cautious around the subject but clearly sen provision is severely lacking and will in only get worse.

Temple Grandin's book is really fascinating. She cites some more recent research wherein there are demonstrable differences in particular structures within the brain shown on scans when comparing her brain to NT controls.

Jifmicroliquid · 30/12/2024 17:48

Because years ago it was only recognised in severe cases, the more high functioning autistic children basically had to learn to mask and adapt. They would routinely be recognised as classmates as the ‘strange kid’, but there was no extra support for these children as it wasn’t recognised they had a condition. They were just the odd kids, or the kids with the very particular interests or strange habits.
Once the condition became more widely recognised at less severe ends of the spectrum, it became more acceptable to be authentic and the need to mask became less.
I do believe there are downsides to this, as masking and adapting to a certain extent are needed to function in society.

CrazyGoatLady · 30/12/2024 17:48

When people say severe autism, what they often mean is autism with co-occurring learning disabilities, cognitive impairments or genetic conditions. Parents are getting older, which may be a factor.

I'm not sure that autism itself is getting more "severe" as such, but we are certainly identifying and diagnosing multiple and complex conditions more. And there are more kids in mainstream school who wouldn't have been when I was growing up, they'd have been educated in special schools as they were then. In my mum's home country, kids with learning disabilities would have mostly been institutionalised, you wouldn't really have seen them much. And they died younger. But now, kids with disabilities are more visible. There's more understanding of autism now, as others who I'd imagine are Gen Xers like me have said, autistic behaviours were punished out of us, so you couldn't stim, you squashed the anxiety, tried to mask, etc.

Hunglikeapolevaulter · 30/12/2024 17:48

Different ways of raising ND children now so they mask less?

buttonousmaximous · 30/12/2024 17:49

So firstly severely autistic people are less likely to procreate so as there is a genetic link it's the autistic people who are capable of forming relationships who have children and their children maybe similarly affected or their autism may be more severe.

Secondly I think there's a reasonable argument that todays society is less suited to autistic people. Fifty years ago the autistic child would have either skipped school and stayed home nurturing their hobbies today they are forced to attend mainstream school with a promise of support that usually leads to them having to learn to fit in.

Thirdly and I'll give myself as an example. I'm autistic I grew up getting belted if I stepped out of line. I was forced to eat foods that made me vomit. I was forced to conform It left me with an ability to hide my feelings, not react even if something is painful for me and a crippling desire to please others. I managed to get through school (was bullied throughout) get a job and get married and have kids. I was abused in my marriage and at work because I didn't know how to be different. I had a breakdown and eventually put myself back together and learnt through research and self development that I was autistic. That it's not normal to be on physical pain from lights, movement, noise and that I shouldn't have to endure painful experiences. My son is arguably more autistic than me but he gets to be himself, he is accepted (at home at least) for who he is. . Does that make his traits more obvious? If he was beaten and shamed like I was would he be 'less' autistic maybe he would but I know what I prefer for him.

Hoardasurass · 30/12/2024 17:50

RealGreyOrca · 30/12/2024 16:15

I don’t know shit about eugenics, but I would disagree. There is no pattern in either mine or my DH’s family, just random varying levels of functioning. Mostly undiagnosed. Our DC will probably be the first to be officially diagnosed.

Same in mine, some high functioning, some moderate functioning, some low functioning and the rest no asd.
Oh @eastereggg I'm high-moderate functioning (same as my dh was) ds moderate-low functioning and dd no asd.

Putthekettleon73 · 30/12/2024 17:50

MonopolyQueen · 30/12/2024 17:11

I think schools have become like sausage factories (but turning out kids that can pass exams and behave a certain way). I think we have appear to become more progressive and supportive whilst simultaneously making it harder for less able and ND kids to thrive.

Certainly at my primary school there was no fixed curriculum, we had mixed year classes and we went at our own pace in maths. In English we were encouraged to read widely and write creatively but we didn’t have formal grammar and spelling tests - whilst frequent - were “low stakes”. We did lots of dance, art, drama and music and random fancies of our teachers like hunting for bugs, learning about farm and traditionally crafts.

It was so free, honestly. I can’t imagine the regimented approach of today’s classroom works well for many kids.

Absolutely.

Tittat50 · 30/12/2024 17:52

Please stop talking about food chemicals causing autism.

I'm sure most people can contemplate the real possibility that food and diet can exacerbate some issues with those who have ADHD. ( I do see a link between excess sugar, food colouring and hyperactivity in my son). I have absolutely no doubt however that there is a significant genetic inheritance factor where one parent is ND in any way. I don't believe eating certain food sets it off and this is a dangerous mind set in my view.

MyPithyPoster · 30/12/2024 17:52

Autism is due to chemicals in the food chain

is it ?

pooballs · 30/12/2024 17:53

That said both DH and myself are probably autistic and have autistic children, one who is probably seen as more high functioning and the other who has to go to a special school and has significant delays.

It’s a very sensitive subject but I do wish discussion into autism and possible causes wasn’t so controversial and shut down so quickly. We don’t even really understand properly what autism IS- it’s defined by its symptoms. I find theories and research fascinating, there’s definitely a genetic factor but I believe potentially other causes.

Putthekettleon73 · 30/12/2024 17:53

EHCPerhaps · 30/12/2024 17:47

.. so it’s maybe epigenetic? Ie the food additive somehow triggers the expression of genes that would otherwise have been dormant.?
I don’t really understand the links with environment and autism.

Please do show or give sources for these studies. It's BS. Sorry. One of my children is autistic. He's awesome by the way. His brain is amazing. Some of life I wish came easier to him but he's can reach a much deeper joy in life than his NT siblings a lot of the time.

Same diet for all three of my pregnancies. Breast fed all 3. He's just more like his dad!

I HATE these "studies" that try to find reasons for a different brain type. It's so offensive!

Hunglikeapolevaulter · 30/12/2024 17:56

I'm diagnosed as well but I'm all for discussions on possible causes for an increase in diagnosed cases. I don't think it's offensive, there's clearly something going on whether just a widening of the diagnostic criteria, or an actual increase in cases.