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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Facebook DLA group feels uncomfortable

155 replies

Furrzu · 13/11/2024 21:46

My son has additional needs and I am in the process of applying for DLA. I have very little money and would be grateful for anything extra. I'd use it to make a sensory space at home for him, some clubs and for anything else that would help him. We've had a sensory profile done and there's a long list!

I joined a DLA Facebook group that has close to 150k people in it. Honestly, it's very uncomfortable. People posting about whether it's OK for them to use their backdated pay for a family trip to Disney. People going to tribunal to get high rate mobility because their child has flat feet and has to wear insoles but they're worried their child won't get it because they play football, so advised by others to omit this fact. Whether they can save the DLA and ask for UC to not class this as savings as they're saving it for their child for uni.

It's actually made me quite angry but not sure if I am BU. I only wanted advice on filling in the form as it is long and daunting!

So, AIBU? Is this a widespread issue?

I know, I should probably mind my business...

OP posts:
Mynewnameis · 14/11/2024 19:18

I've applied. If i get an award, it will be spent on general family expenses. My earnings are impacted by caring.
If the group bothers you, then why are you still there.

Cheshiresquirrelsss · 14/11/2024 21:19

LadyKenya · 14/11/2024 18:23

I would really like to read a thread titled "AMA I gamed the PIP system". Ridiculous, I know. But I would be interested to know how people supposedly manage to do this, with no medical evidence etc.

We had to appeal to tribunal for an almost 4 year old non verbal autistic (officially diagnosed) which with an EHCP at nursery. We send in tons of reports and were rejected outright when we applied and on MR. we needed a tribunal and got high rate care. No way you get DLA/pip without tons of evidence

Thevelvelletes · 14/11/2024 21:25

These types of threads always turn out the same that pip,DLA or ADP in Scotland is easy to get.
Those of us that have been through the system know that it's not and it's often a degrading process with all manner of undignified questions and having to bare your soul to answer them.
No one in their right mind would get involved with the benefits system unless absolutely necessary.
The land of milk and honey it's most certainly not.

LadyKenya · 14/11/2024 21:40

Cheshiresquirrelsss · 14/11/2024 21:19

We had to appeal to tribunal for an almost 4 year old non verbal autistic (officially diagnosed) which with an EHCP at nursery. We send in tons of reports and were rejected outright when we applied and on MR. we needed a tribunal and got high rate care. No way you get DLA/pip without tons of evidence

This. I have read on here so many times where posters have said how gruelling the process is, and how they are having to appeal due to being awarded lower awards, or no award, or saying that the length of the award is inadequate seeing as their child will not improve (think life long condition). And this includes sending in all their medical proof as well.

x2boys · 14/11/2024 22:10

Cheshiresquirrelsss · 14/11/2024 21:19

We had to appeal to tribunal for an almost 4 year old non verbal autistic (officially diagnosed) which with an EHCP at nursery. We send in tons of reports and were rejected outright when we applied and on MR. we needed a tribunal and got high rate care. No way you get DLA/pip without tons of evidence

Agree but if the group is the the one I think it is there is always, some poster insisting they get HRC etc without evidence tbh I think lot of them don't really understand what evidence is on because they then. Say they sent a letter from the Health visitor etc
One person said they only sent the EHCPwhich is often the great evidence.

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