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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

A diagnosis one

280 replies

CarGoat · 27/10/2024 09:18

Ok, I know diagnosis etc.. has been discussed to death on Mumsnet, but ...

Recently I have come to realise that in every single family I know (as in, families I'm friends with or know enough to have been to each others homes, kids have play dates etc...) there is a child with either an established diagnosis of ADHD or Autism, or there is a child undergoing assessment/on wait list for assessment.

The final realisation, (and I guess what prompted this thread) came when the mum of my child's best friend told me he has recently been diagnosed with autism. I have never seen any traits and had no idea. He's a lovely, well behaved kid, has loads of friends, interests, plays computer games with my DC, they hangout together, play games together, chat together,.do sport together. I understand there must be some difficulties his mum has observed which led to diagnosis etc.. it's just, he seems fine!

I then reflected on all DC's other mates and realised just how many either have a diagnosis of autism/ADHD or have siblings with this. My nephew is in the process of assessment for autism. My other nephew is also being considered for ADHD and has assessment coming up.

This is mad.

These children, while they may well meet criteria and I am not doubting that, they just don't seem much different to the average kid in terms of communication and behaviour etc... so all are relatively 'mild' in terms of presentation (i.e. autism is not of a level that's non verbal, the children have good peer relationships etc). I know people will tell me you don't thave levels like 'mild', but I'm not sure how else to explain it - just that the children all 'appear' perfectly fine. They just seem like normal, average, healthy children.

So ...

Is this just a quirk of where I live, in that in my village there just happen to be loads of children with ADHD and Autism, but this is not reflective of wider society?

Or

Is this reflective of wider society? Are the levels of diagnosis of these conditions now this prevalent?

And if the latter - shouldn't we make the criteria for diagnosis harder and just acknowledge that we are all a bit neurodiverse to some extent, and make adjustments to the schooling environment to account for that, rather than having to fund all these individual assessments and locate the problem in all these children?

I just think it's ridiculous to diagnose so so many children and if nearly every family has a family member with a diagnosis then surely the diagnoses are a bit redundant and meaningless?

(I know some people will not like this post, sorry. I am putting on my hard hat)

OP posts:
Labraradabrador · 29/10/2024 23:44

A rigid education system makes send more evident in that it causes more stress and makes the issues more obvious , but it doesn’t mean the send isn’t real and enduring.

Funnywonder · 30/10/2024 11:06

Labraradabrador · 29/10/2024 23:44

A rigid education system makes send more evident in that it causes more stress and makes the issues more obvious , but it doesn’t mean the send isn’t real and enduring.

I couldn't agree more!

NameChangeForThisThread4 · 31/10/2024 17:20

I have changed the name for this thread.

I believe we're underdiagnosing and overdiagnosing at the same time depending on where the assessment is done - services are not set up to see a bigger picture and autism clinic will see and diagnose autism, mental health - will see and treat mental health etc. We've seen this with other conditions.

Bucketsof · 31/10/2024 19:10

In my county, the SEND team is so unreachable, slow, and non-responsive. I’m surprised any child actually gets support. They plonk most needing support into generic SEN school where there is no specialist support for Speech, OT or PT. Lots of grinning happy Teacher Assistants but if yours needs Speech & Language … it’s unlikely to ever happen.

Kids in mainstream, needing support - get nothing. Oh, they’re on list with Triage Team …. for years. Families who can afford go for the private schools because get immediate & more attention & small classes, learning support and now the pleasure of adding 20% to cost of fees & learning support !!

So, I laugh at more SEND, in my County they actively trying to decrease it!!

mimblewimble · 31/10/2024 20:46

Labraradabrador · 29/10/2024 23:44

A rigid education system makes send more evident in that it causes more stress and makes the issues more obvious , but it doesn’t mean the send isn’t real and enduring.

Yes absolutely.

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