I agree with you, in fact I feel sex without intimacy is just lust... though sporadically, that can be fun too.
It must be awful if you can't "go all the way" (or any way at all) if it's because of poor health.
Especially if you initially thought it would be for a set period to allow good recovery, but then if the recovery time goalposts keep moving ever further away, it must take unending patience, understanding and love.
If the foundation of your loving relationship is friendship, and I mean proper deep committed friendship without resentments, then surely you can get through it.
I'm saying this as person that's going through this at present.
I adore (or used to) sex with my partner, and I'm keeping faith that "one day" the condition will become more manageable, and we can return to that joyful union,
BUT, I truly believe that if that can't happen, then I can deal with it, as it's only one part of a relationship that has been compromised.
It's difficult, coz not all couples are the same, and we all have varying needs and limitations on compromise.
I guess that a couple has to do what best for them both, with neither of them being made to feel "less", or not worthy.
I'm probably saying this all wrong, but I do agree it's a potentially complex situation.