Blood urgency lose bowels stomach cramps

[Shauna2866]

Hi I’m just seeing if anyone has been in this position before … I am not diagnosed I did have a colonoscopy in may and the lady never took no biopsy just said everything looked great and that was that my doctor wasn’t happy as he said sometimes it’s only visible through biopsies so now I have to go back at the end of the month for the past 2 weeks I have been experiencing urgency each morning and throughout the day going 5/6 times
Each morning I get the worst stomach ache but when I go the toilet it’s just gas and loads of blood but it’s just pours out and then after abit I will have a solid bowel moving with blood init and then lose bowels with blood init
Also getting a lot backache
My doctor said to not do another calprotectin test as they have all come back high my last one was nearly 700! So he said something isn’t right this has been going on since 2022 since I had my son via c section and every couple months it comes and goes my bowels will be completely fine and then one day it will just go all down hill and I’ll have all these symptoms .
But what is worrying me the most is when I get on the toilet it’s just loads of gas and then blood will just poor out not sure weather it’s diarrhea mixed but just looks like watery blood to me I’m at a loss and I just can’t wait to find out what is going on I have 3 small children at home and I’m sat worried everyday all day .
Can I ask also what was your first symptoms of IBD before being diagnosed ?

Also having a lot of mouth ulcers but mainly ones on my tongue that hurt so much 🤦🏻‍♀️

You need to be investigated for inflammatory bowel disease.
Crohns or ulcerative colitis.
Please go back to your GP and ask for an urgent referral to gastroenterology.

Have you taken pictures of the blood in the toilet pan? It might help the consultant to see what you are dealing with.

After colonoscopy my DH was diagnosed with diverticulitis which he manages as best he can, fast forward 2 years, blood and mucus, further investigation by a CT scan showed he has colitis as well. Hopefully your consultant will suggest further investigation, as this along with Chrons and IBD all have symptoms of blood and watery poo.

@Hobnobswantshernameback I have one booked for the 31st but I’m gonna see if they can see me before it’s making me feel so weak each time I go the toilet soon as I wake up I need to go I have the worst stomach pains ever 🤦🏻‍♀️

@Mindymomo this is exactly what I’m having watery blood first but also have so so gas sorry tmi but I need to see if I can get seen before the 31st
as it’s making me feel very weak

@EinsteinsFineWine hi yes I have taken pictures so I can show them
last colonoscopy was clear but there was no biopsies taken why I don’t know if they did I could of been on meds now but instead I’m still suffering so much but this time a lot worse than I ever have had

Salt water mouth wash, lozenges, mouth wash for the ulcers. Ask a pharmacist for help. I wouldn't imagine they're related to your bowel problems, but a pharmacist will advise.

When are you due for further tests? If you're frantic and have symptoms today, go to A&E?

My DM has a dreadful time with diverticulitis of many years. I really feel for her. She'll be having an MRI soon, to see what else could be going on.

I have Crohn’s disease and struggled with needing to go to the bathroom up to 20 times a day, with loose, bloody diarrhoea. I was initially diagnosed with UC but biopsies came back showing disease all the way to the terminal ileum. A follow up MRI concluded Crohn’s.

I’m no GP but with everything you have stated, especially the high calprotectin levels, now ulcers in your mouth, it ‘could’ be Crohn’s. I’m at a loss as to why they never took biopsies during your last colonoscopy! I have multiple biopsies every time I have a scope!

I feel for you and really hope you get some answers soon.

You get mouth ulcers with crohns so she does need to go back.

I had similar prior to Ulcerative Colitis diagnosis. Urgent diarrhoea for months, but I became pregnant (2nd child) and it calmed down to just once daily.

About 4 weeks after c section the blood started. More blood than fecal matter as I barely ate. It was very worrying and draining, especially as I was breastfeeding.

Luckily my colonoscopy was very obvious and I was diagnosed with Pancolitis, as it affected my entire colon. 15 years later and I'm mostly in remission now.

Your mention of mouth ulcers makes me wonder about Crohns more than UC.

In the meantime, until you get some much needed answers and support, it might be worth trying to follow a low-residue diet, which can help during a flare. Might be worth asking your GP first:-

https://crohnsandcolitis.org.uk/info-support/information-about-crohns-and-colitis/all-information-about-crohns-and-colitis/living-with-crohns-or-colitis/food

You poor thing. I also had similar symptoms before ulcerative colitis diagnosis, although obviously no one can diagnose you over the internet. I know it's awful but it's not too long till the end of the month and it seems unlikely you could get in any quicker for the colonoscopy. Even going privately I had to wait a couple of weeks.

As others have said, reducing fibre and eating white foods (white bread, rice, eggs, yoghurt etc) in the short term may help symptoms as they're easier to digest.

Best of luck and I hope you get it under control soon.

I’ll hold out hopefully until the end of the month when I can go for my colonoscopy not happy I have to go through it all again when they should of took biopsies when I went in may
hopefully I’ll get an answer to what is causing all this but I have had very high calprotectin levels each time I have had to give samples in ,
x

The symptoms you describe are all the symptoms I had before being diagnosed with Crohn’s (and still have those same symptoms during flares). Please push for another colonoscopy.

@GretchenWienersHair I have one booked in for the 31st of this month hopefully I’ll know what I’m dealing with then did you have high calprotectin levels before being diagnosed also ?
this is the worst flare I’ve ever had they come and go but this time it’s been really bad

@Shauna2866 I can’t remember to be honest as it was a long time ago, but I’ve never known my calprotectin levels to be lower than 300. They can get much higher than that though. I think up to 150 is considered “normal”?

@GretchenWienersHair not sure my doctors 0-50 is normal anything over is abnormal but I have had a lot of them done and each one has been high sick of it now can’t wait to see what is causing this it’s the urgency it’s a worry to go out
I haven’t been eating good cos I have no appetite I forced some soup down me last night and couldn’t manage all of that

My calprotectin results have been in their thousands during a flare. I’m now in remission and my recent calprotectin results were normal. I have Vedolizumab infusions every two months which have been great for me.

My daughter has ulcerative colitis and had FC test result of 1800 when she was admitted to hospital pre diagnosis. She had blood pouring out of her and had lost all control by the time the GP and hospital took us seriously.

She now has infliximab infusions every 6 weeks and is on azathioprine. Her last FC result was 60 which is considered fine for her ( her lowest since diagnosis was 30 )

Each time she's had a colonoscopy they have taken biopsies and all have been fine.

You need more Gastro investigations. Have they not even suggested foam or enemas to see if it helps stop the bleeding?

Your high calprotectin levels could be an indication of IBD but until you have further tests, which now should include biopsies, it will be a wait and see approach.

When I had my first colonoscopy, because disease could be seen, I was started on meds immediately. Then there was the wait for the biopsy results/MRI and the medication was changed.

@AngelsWithSilverWings nope they have not suggested anything other to wait till I go to my appointment

Crohn’s disease commonly presents with large mouth ulcers. They are usually found on the tinge and gums and can be quite large and round.
Have you reported these to your GP.
They are very much connected to your other symptoms.

Have you tried a food diary to see what your triggers are?

Some IBD can run from mouth to anus all through the digestive system.

@Angrymum22 I only get sores on my tongue never on my gums and ye so have mentioned it but he’ said maybe connected maybe not

I’m calling the doctors this morning as this morning I’m in pain with my stomach soon as I wake up after around 5 mins I need to go the toilet I’m in again with stomach cramps and actually had a accident but it was just gas and mucus with blood soon as I get to the toilet alls it ever is is blood mucus and loads of gas 😭 making me feel so weak really wish my appointment was today instead of another 2 weeks it’s the not known what it causing my symptoms that is making me feel worse x