Blood urgency lose bowels stomach cramps

[Shauna2866]

Hi I’m just seeing if anyone has been in this position before … I am not diagnosed I did have a colonoscopy in may and the lady never took no biopsy just said everything looked great and that was that my doctor wasn’t happy as he said sometimes it’s only visible through biopsies so now I have to go back at the end of the month for the past 2 weeks I have been experiencing urgency each morning and throughout the day going 5/6 times
Each morning I get the worst stomach ache but when I go the toilet it’s just gas and loads of blood but it’s just pours out and then after abit I will have a solid bowel moving with blood init and then lose bowels with blood init
Also getting a lot backache
My doctor said to not do another calprotectin test as they have all come back high my last one was nearly 700! So he said something isn’t right this has been going on since 2022 since I had my son via c section and every couple months it comes and goes my bowels will be completely fine and then one day it will just go all down hill and I’ll have all these symptoms .
But what is worrying me the most is when I get on the toilet it’s just loads of gas and then blood will just poor out not sure weather it’s diarrhea mixed but just looks like watery blood to me I’m at a loss and I just can’t wait to find out what is going on I have 3 small children at home and I’m sat worried everyday all day .
Can I ask also what was your first symptoms of IBD before being diagnosed ?

Also having a lot of mouth ulcers but mainly ones on my tongue that hurt so much 🤦🏻‍♀️

Hope you manage to sleep tonight

How did you get on at the doctors, OP?

@Shelleyfromthesea doctor called me and said she will try and see if I can have my colonoscopy sooner but they said they can’t as it’s only 2 weeks away and if my symptoms get worse for me to go A&E!
and with me already having high calprotectin levels there is no point in doing another stool test
I did have a colonoscopy in may this year but no biopsies was taken just if they took them I wouldn’t be sat here in pain each day and wondering what is going on but not long now I’ll just wait and hopefully I’ll get some answers to why I’m experiencing these symptoms thanks for checking in x

I imagine you are hardly eating, but are you avoiding particularly irritating foods? These can be foods with seeds (tomatoes, berries, seeded bread), leaves like lettuce/ cabbage, sweetcorn, nuts, high fibre foods like brown rice/ pasta/ bread, most fruits and veg unless they are well cooked and deseeded.

When flaring badly with Ulcerative Colitis (urgent blood and mucus up to about 25 times daily), I can tolerate things like smooth soups, tinned fruit, mashed potato, tender meat, yoghurt, kefir, etc. Also anything listed on your colonoscopy bowel prep should be easy to digest.

Hopefully not long now until diagnosis, then they can finally start medication.

@Swissrollover hi yeah I am avoiding most foods tbh as each time I eat say 30 mins after I need the toilet the mornings are the worst for me it’s just a lot of blood mucus only and a lot of gas sometimes gas only and blood 🤦🏻‍♀️ it’s a worry to go out but yeah not long now and hopefully I can get sorted out it’s miserable living like this everyday
x

@Shauna2866 I'm worried by the amount of blood you are losing - the end of the month is a long wait when you are losing so much blood. At the very least I think you should get your hb levels checked in case they are now dangerously low.

So sorry you’re still really struggling and are having to wait until the scheduled scope.

How are you feeling this evening?

I have ulcerative colitis and get terrible mouth ulcers when I'm in a flare. When I was admitted to hospital with my first major flare, one of the first things the consultant asked me was whether I'd been getting mouth ulcers.

I hope you're soon getting much better, OP. Your symptoms sound very similar to mine, but with the right treatment (steroids initially, now on a med called mesalazine), I've been in remission for years.

The ulcers could definitely be related, I have a family member with celiac disease and another with crohns snd colitis and both had lots of regular clusters of mouth ulcers during flare ups and before diagnosis.

My Mum had very severe Crohn’s - she was diagnosed aged 11 and had half her bowel removed over the course of her life. Mouth ulcers are associated with Crohn’s. I’m not saying it’s definitely Crohn’s but it does sound like it could be. The reason I’m posting is because if you are losing that much blood you should go to A and E, the doctor isn’t wrong to suggest that, you seem surprised that they’ve said that but actually losing that much blood is an emergency, regardless of the background or whatever other things you’ve got booked in.

@spiderlight this is what my doctor is thinking I may have with the high calpro test and all the symptoms I’m experiencing.
did you have urgency with lose bowels and blood in the morning I am not going as many times as you said you went but it is abnormal I am going anywhere between 6/7 times a day my doctor did try and get my appointment quicker but they said they can’t it’s in 2 weeks so I’ll have to just wait and pray it doesn’t get any worse

Same here.
OP, I would present at A&E for that amount of blood loss tbh. I've been told to before when I've gone into a big flare up. I've had inflammation markers up around 6000 before but the colonoscopy didn't show that much. Also conversely quite low but everything looked angry. They need to redo that for you ASAP!

@Shauna2866 how are you doing?

Sounds like how I was before my ulcerative colitis diagnosis.
My calprotectin was over three thousand. Went down to 7.8 once on meds.
Hope you get sorted soon x

I think you should go to A&E with that amount of bleeding.

Are you ok op? That sounds so worrying with all the blood

@Dramatic yeah I’m fine I’m going to have my bloods done today
doctor wants to see if I’m anemic be surprised if I’m not not!
then I have my colonoscopy next week x

@Autumnal589 my doctor is think UC
what symptoms was your experiencing? The same as mine ?
its the urgency I have in the mornings I hate and it’s just gas and mucus with blood only 🤷🏻‍♀️
I’ll be in a much better head space once I know what’s going on next week after my colonoscopy
will update once I have been today I’m having my bloods done also .

Hang on… they know your calprotectin is high?? They should be doing a mri scan with your symptoms plus a high calprotectin result. I’d say without a doubt it’s IBD even before you mentioned the mouth ulcers.
Get your B12 levels checked too. If your terminal ilium is inflamed you won’t have been absorption properly.

Crohns effects any where from the mouth to anus. So my money is on crohns.

If you read internet stories of Crohns there are lots of horror stories so I wanted to share DH story. It’s unusual but it does happen. Diagnosed 12 years ago had an intense course of steriods and symptoms went, put on a medication which caused awful joint pain so changed to another which with retrospect made him a bit more tired, he felt the cold a bit more and had photosensitive so had to be careful with sun cream. Crohns has offically been in remission for 2 years and he is medication and syptom free.

Sounds like ulcerative colitis. I had a clear colonoscopy in April - so they ruled it out. Fast forward to the end of June same year, I was in hospital and on the verge of needing surgery for a bag. My colon was so inflamed they on and off suspected toxic megacolon. 3 weeks I was in hospital overall.

Go back and request another urgent colonoscopy whilst you are showing the blood. Take photos of your poos to record it. If you fins the pain too much, or you start being sick - go to A&E.

Honestly I would go to a&e. I was diagnosed with UC and waited, I ended up so weak that someone called me an ambulance. I needed emergency surgery as my bowel had nearly perforated. This was after years of managing it with meds. I knew I was unwell but was trying to avoid hospital, turns out that was the worse decision. Don’t let things escalate! You may also need fluids.

My symptoms were
Severe diarrhoea. I couldn't leave the bathroom as needed to go constantly.
Lots of blood and mucus.
Horrible stomach pain.
Vomiting.
Severe weight loss.

My calprotectin was over 3 thousand and after diagnosis, I was given steroids and then went onto a maintenance drug which I am still on 6 years later. I have to be careful what I eat and keep up with my appointments but physically, I am definitely in a much better place.
Keep us updated x

My bloods have come back rather quick 🤦🏻‍♀️ doctor calling me tomorrow morning
full blood count has come back abnormal and
my ferritin levels 🤷🏻‍♀️ sat worrying again now ! X

Can someone explain these results to me I don’t understand blood test forms
x